Does sitting makes things worse?
Posted , 5 users are following.
Aged 71 and my biopsy result was 'chronic inflammation'. I've noticed that things become worse - itchiness increases etc. - if I've been sitting for any length of time, usually in the evening, watching TV or reading. I always use a spray of water and sometimes coconut oil after I've been to the loo.
I'm using Dermovate intermittently, when things worsen. My GP said to use it when I was itchy, but I have no regime, and the obvious inflammation, principally at the back and inside the labia, has never cleared completely since I first saw my GP. My appointment with a dermatologist is on Thursday - I've had to wait three months - so, perhaps I'll know more after this.
Have others found that sitting for any length of time makes things worse? Apart from jumping up every ten minutes, anyone got any advice?
1 like, 25 replies
ann67814 Cheetah
Posted
then I have used the steroids daily rubbing in for 90 seconds.It was useful to
learn that LS causes skin thickening so the skin thinning that steroids can
cause is good in the context of fusing.I just wish I had read it sooner as
once I had the general discomfort sorted I just used the Clob once a week
only smearing it on and the fusing just crept silently on. I now have major
fusing.
I have an appt. for a biopsy in a couple of weeks as I have an open sore
on the inside the small remaining labia which is causing concern thought to
be VIN.
I would recommend increasing your steroid use and perhaps ditch the undies
when you are sitting around. Good luck.Ann
sue47444 ann67814
Posted
Cheetah ann67814
Posted
Hi Ann. This is a repeat of the post I put below, as I didn't post it as a reply to you. Thanks for replying. So sorry to hear that you have major fusing and now concern over the sore. Thank you for telling me about the Dr Goldstein video and I'm going to watch it this afternoon. I, too, have been using the Clob about once a week, as advised by my GP, now that the overall inflammation has cleared, but there are still two inflamed areas remaining that have never cleared. The dermatologist I am seeing is a specialist in vulvar problems, so I hope she will advise me further, but I think it will be a case of increasing the steroid, as you said. It will be good to speak to somebody who really knows about it, as, although my GP was lovely and very concerned - he did the biopsy - he's obviously not going to know as much as a specialist.
I do hope that your biopsy goes well and they are able to sort things out for you. Thanks again and take care.
Guest Cheetah
Posted
Had my results for biopsy, they want to do further investigation, rang the hospital and asked for someone who could ring me with more details, which a nurse did, she said I had cin3 and they would remove the affected spot, she said it wasn't cancer , they are pre cancerous cells which they will take out, she said she would send me leaflets explaining, I received them this morning, but on the leaflet it said VIN, So I think I have LS and I've had it for sometime, I have patch on my vulva which never goes properly away.
ann67814 Guest
Posted
Ann
Cheetah Guest
Posted
I hope it all goes well for you, Chinney. The good thing is that they've caught everything early. Went for my dermatology appointment this morning and the clinic had been cancelled! To be fair, they had been trying to get hold of me, but we had left the house before they had phoned the landline. I hope I don't have to wait for another three months!
Cheetah ann67814
Posted
Cheetah Guest
Posted
Just wanted to add my best wishes (how stupid is it that there is no 'edit' and please let us know how things for for you.
Guest ann67814
Posted
Chimney.
ann67814 Guest
Posted
Guest ann67814
Posted
Hi Ann, I get open sores, I've been told I have vin3, I'm waiting to get appointment to see a different consultant who will remove the pre cancerous cells, I'm just using hydromel ointment as I have been prescribed anything else yet. Take care.
ann67814 Guest
Posted
We can be grateful it is precancerous rather than cancer, we have
the chance to get it treated and hopefully keep it under control.
I have read the info on the Patient website but am not ready to join
a forum on that subject perhaps after treatment I might consider it.
Ann
ann67814 Guest
Posted
Hi Chinney,had my biopsy yesterday it wasn't as bad as I expected
uncomfortable but not too bad. Only problem is that he didn't take
From the labia where the sore is but from just inside the vagina. I am
a bit worried in case he has tested the wrong area.
When I asked if there was anything I needed to do to help healingI was
just told "to keep it dry" how you are expected to manage that I can't
imagine!!!Have you heard anything more yet? I go back for results in
2 weeks.
Guest ann67814
Posted
Hi Ann, got an appointment 29th June, I use to have a bath daily, the vulva specialist told me water aggravates it, she told me just to get a tiny amount of water and spray it once, which I do and I use still mineral water , I have a strip wash from head to toe daily careful not to splash any water down there, so far its working, I put hydromel ointment morning and evening very sparingly , I now don't wear any knickers, let me know how you get on, and I will do the same. Take care x
ann67814 Guest
Posted
Guest ann67814
Posted
ann67814 Guest
Posted
Hi Chinney, I have been worrying about how things are going for you.
I am fine, had my biopsy which came back as 'congestion' but he had
taken the biopsy from a different site to the place where the sore is.
ann67814 Guest
Posted
I lost my earlier post before I had finished. Seen the GP today. and
am going to be using the strong steroid twice a day to see if that will
make a difference, Due to see the gyni again next month. Hope
things go a bit better then. It does seem that I have been lucky
and not got the Vin. but am hoping that the new steroid works.
It can't be normal to have an open sore for 7 months. I do hope
that things are going ok for you.
Ann
Guest ann67814
Posted