Does this ever end?
Posted , 12 users are following.
Has anyone managed to get off of the prednesone completely?
0 likes, 16 replies
Posted , 12 users are following.
Has anyone managed to get off of the prednesone completely?
0 likes, 16 replies
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marilyn79703 Achenpain1
Posted
ptolemy Achenpain1
Posted
Anhaga ptolemy
Posted
Achenpain1
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diana21296 Achenpain1
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constance.de Achenpain1
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How long have you been on pred so far?
Achenpain1
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diana21296 Achenpain1
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Daniel1143 Achenpain1
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FlipDover_Aust Daniel1143
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Daniel1143 FlipDover_Aust
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EileenH Daniel1143
Posted
Often PMR diagnoses are revised to RA at come later point - MTX will probably work very well in patients who have been mistakenly diagnosed as having PMR but it is really early LORA (late onset RA). Anyone who really struggles to reduce their pred dose or who didn't have the very dramatic response to pred originally might be advised to try MTX. You can always stop taking it again if it makes you unwell or if it doesn't work. If it doesn't make you feel bad and seems to allow a reduction in the pred dose - what is to complain about? Flip is an example of that, as are the other couple of ladies I mentioned.
The most recent international guidelines on managing PMR suggest using it but ONLY as an approach that has been discussed and agreed with the patient. But it shouldn't be forced on anyone and it doesn't REPLACE pred in PMR - but then, how certain is any diagnosis of disorders which have no 100% accurate marker?
FlipDover_Aust Daniel1143
Posted
Like I said, I have no noticible side effects from taking MXT but I have plenty from taking pred - including the beginning of cataracts - and I'm only 52! I've also put on a significant amount of weight, lost muscle tone, skin and hair thinning and who knows what it's doing to my insides!
EileenH Achenpain1
Posted
About 25% of people get off pred in up to 2 years but are at a higher risk of a relapse later. About half get off pred in up to 4 to 6 years and the rest need longer, sometimes being on a low dose of pred for life but that also includes people who develop adrenal insufficiency - which may be due to the PMR or it may be due to the pred.
Lee-Colorado Achenpain1
Posted
I have GCA and started this journey in Nov., 2013.
diana21296 Lee-Colorado
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