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Hello all, looking for some advice. I am a 22 year old male who was just diagnosed with erythromelalgia, which is a rare vascular/nueropathic disorder affecting my hands, face, feet. I also have luekopenia (mild), thrombocyotpenia (70k platelets), and elevated liver enzymes. I have been struggling with these problems for the last 3 years and believe that the erythromelalgia is coorelated to my autonomic irregulataries.
I have a body temp of 96.7 and a resting pulse around 50. I am intolerant to both heat (eryhtormelalgia) but also to the cold. I barely sweat anymore and become fatigue randomly throughout the day. Minor lightheadness and dizziness occur if im bent over or sitting for a while and then i get up but ive never fainted so i don't really think POTS. Occasionly my heart races but i think that is more anxiety than anything. Also i have IBS but i was just treated for SIBO (probably from antibitoic use) and it has gotten much better however my stomach still gets sluggish sometimes but nowwhere near the same as before.
Is there such a thing as multiple system dysautonomia? I thought dysautonomia was the general term but each form only affecting certain mechanism whereas i seem to suffer more from general conditions. I had lyme disease 3 different times in the past.
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