Does this sound like achalsaia?
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I have been having some Gi issues /swallowing difficulties for a while now. One of my general practisioners recommended I look into achalaisa as a possible diagnosis. Just wondering if anyone with achalaisa would take a peek at my symptoms to see if this diagnosis fits.(Note I do have an upcoming Gi appoinment just looking for a little insight)Around 5 years ago i started vomiting early in the morning or late in the evening or if i tried to eat too fast.I had a negative endoscopy and negative scan for gall stones and placed on Nexium.I continue to vomit off and on , but blammed it on heartburn/working nights/stress ect.About a year ago i noticed food was getting "stuck" and that i would cought and vomit up most of my food.The vomiting is very painful and it feels as if all the muscles in my chest are contacting.I also experience intense chest pressure and discomfort when eating.It feels alot like someone is compressing my heart or stretching out my throat. I have trouble with breads,pasta,meats,anything too cold or too hot,cakes/pasteries,nuts , caffeine, carbonated beverages , alcohol ,and for some reason gum . I had 2 confimed cases of esophageal thrush which required treatment and a barium swallow which shows my esophageal muscles contracting and forcing food back up into the esophagus.My GI provider chose to dilate my throat during a routine endoscopy due to visible muscle spasms.He has'nt given me a name for this he just keeps saying the muscles do not work right.I am very underweight and exhausted from fighting to eat all the time.Any help or advice would be appreciated.
1 like, 15 replies
dorsetgirl rngirl32
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oesophagus it will tell them within 5 minutes that you have achalasia. At the moment I'm on milkshakes and I blend my food waiting for surgery. I have found a meetup group on line which I also found helpful I wish you well
rngirl32 dorsetgirl
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Arif57 rngirl32
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graeme35202 rngirl32
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Your symptoms may well be those of achalasia of the cardia. Its not a common condition and no-one really knows why people get it. However there is a lot of evidence to suggest that it may be an autoimmune disorder where ytou have produced antibodies to the nerve cells in your oesophagus and so have the dosordered oesophageal mobility that they found on your barium swallow.
Typically the symptoms are those of having difficulty swallowing, particularly some of the foods you describe. Food gets stuch just above the gastro-oesophageal valve and it can be painful. Often vomiting whilst distressing does relieve the discomfort.
You may experience reflux at night when laying down. This reflux is often oesophageal reflux not gatric...i.e its the food you have eaten in the evening thats stuck in a distended oesophagus thats coming back up.
In the meantime try to eat as early as possible. Eat small amounts at a time. Eat slowly and drink warm water if that helps. Avoid foods like bread and potatoes and rice.
If you have a referral I am sure they will do a manometry test. Here they push a very small fine tube up a nostril and down the back of your throat and into your oesophagus to measure the pressure. Dont worry ..it sounds horrible and its just a little uncomfortable..not painful in any degree and once in place its ok.
Im sure that from the last barium swallow they have rules out a hiatus hernia which can again cause some of the symptoms you describe and also they have done a blood test and ruled out helicobacter pylori???????
But in the ansence of anything else I would say your symptoms do sound like achalasia. Dont wory a small op as a day case will sort it out. I had my op last septemeber; had most of the symptoms you describe and more. I am now 80% back to normal which is probably as good as it gets.
mssg me if you want more info
Good luck
Graeme
Arif57 graeme35202
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graeme35202 Arif57
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I knew all about balloon dilation and rejected it. It has risks of perforation and many people find the relief from symptoms is temporary. Many have it 're-done. I had a myotomy and then a partial anterior misapplication. The myotomy effectively wrecks the valve and though some people don't have a misapplication, it is pretty much the gold standard technique. This surgery does require an experienced surgeon and I was lucky to live in Bristol and got the services of Mr James hewes. The man is a genius. As I was an immunologist I knew a lot about the condition and surgery. I did enjoy watching the video of my own op!!
if you do indeed have achalasia from the tests push for this surgery. Done as an over nighter. Done using key hole surgery. 5 small incisions. All now faded. No complaints and 80% better. Still have some swallowing problems with some foods. But no nightime refux and I can eat pretty much ok.
graeme35202 Arif57
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rngirl32 graeme35202
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Bobogarrett rngirl32
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robert60861 rngirl32
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len27570 robert60861
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Where did you have your POEM done.
From what I have read it is usually a couple of days in hospital.
Why did you have 5 days in hospital
Glad it sorted your problem.
I am considering this treatment against the traditional Heller Myotomy, but as it is so new am a bit unsure.
robert60861 len27570
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I had my POEM done in Japan. I have lived here for quite a while and my op was done by the surgeon who created this procedure.
The first two days were for check-ups and pre-op stuff.
I had the op on the 3rd day and was released on the 5th day.
My surgeon travels extensively and conducts procedures abroad on a regular basis.
len27570 robert60861
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robert60861 len27570
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sazo rngirl32
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