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A few years ago I started to get involuntary movements when I was going to sleep. Literally any parts of me fly out whether it be my arms leg finger head. This then followed with pain in the lymph nodes in the left of my groin along with sharp pains in my left hip. This followed to the right side and my right hip. I then started to get pain all over my ribs sharp stinging pains the same as my hips. I get cramps and these stinging pains all down my arms too and I have white patches on my tongue that if I brush off they come back hours later. The last few weeks. My sternum and around the collar bone hurts too. The pains in my hips are unbareable i feel like crying . I have had hundreds of blood tests all clear brain mri clear three chest X-ray's all clear two three abdominal CT scans mri lumbar spine x 2 four abdominal ultrasounds a camera in bowel stomach bladder vagina throat and literally only found gastritis and h pylori yet here I am in agonising pain in my bones and these horrible movements . Doctor has mentioned fibromyalgia but I'm sure it's something worse but I'm at a dead end and I don't know what to do waiting list for a r hematologist is almost a year away I can't cope with this much pain
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