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Does this sound like cfs ?

Posted , 8 users are following.

beth77670
beth77670

i have been referred to a cfs specialist (havent been seen yet) and wondered if my symptoms sounded like it.

i have constant tiredness with episodes of feeling compleatly exhusted and have to liedown.

the top of my arm muscles can go very weak.

i have achy muscles but not severe.

i feel nauseous almost constant and in varying degrees.

constanly have a feeling of illness.

I get a overwhelming feeling of fatigue which stops watever i am doing and i have to lie down , it is occumpanied by a strange pressure in the upper abdomen , slight nausea and weakenss, but can go as suddenly as it came.

I wake up unrefreshed every morning .

eyes are heavy and pressure on top of my head.

i do not seem to get the exageration of synptoms when i have done somthing or been out for the day , its just wether i feel ok at the time to do somthing but i can then suddenly feel more unwell but doesnt reflect on how much i do.

it would not make a differnce if i rested for a day i could still feel unwell.

since iv been ill i get bad ibs symptoms

thanks

1 like, 9 replies

9 Replies

  • lori93950
    lori93950 beth77670

    Edited

    you may want to get a blood test for ebv and mono it certainly sounds like a lot of the symptoms that come with this horrible virus . could be a parasite though so get to your drs and get a full blood panel .

    • beth77670
      beth77670 lori93950

      Posted

      doesnt that virus the reason people get cfs somtimes ?

  • Beverley_01
    Beverley_01 beth77670

    Posted

    Hi Beth,

    Did you post this before? I think that I replied? yes, cfs/me has no rhyme or reason sometimes and you can do things get no symptoms and then other times be flat out. It is a fluctuating condition, that's the nature of it. when you see the specialist, they will ask you lots of questions to determine if it is cfs/me. you will also need blood tests before you see the specialist to make sure you don't have a condition that has similar symptoms like vitamin D deficiency, b12 deficiency or even iron deficiency. Thyroid issue etc should be tested for plus diabetes. you have to have 'normal ' results for cfs/me to be considered.

    Hope that helps

    Beverley

    • beth77670
      beth77670 Beverley_01

      Posted

      yes i did , iv just been panicing abit lol as some people seem to be able to rest the be ok for a day doesnt seem to go like that with me

    • Beverley_01
      Beverley_01 beth77670

      Posted

      I know it's easier said then done but, try not to panic. I haven't got into a pattern where I can rest and be better for a day. mine fluctuates alot. I can feel okish, go out, immediately my walking is really bad but I am ok to speak. then I have bad brain fog, can't speak, my cheek will go red hot, I start to slur, my entire body starts to shake and I need to lie down. my eye sight blurs and I feel like I will faint. I lay down and manage to rest. I feel utterly awful. as I rest, I start to get a headache, I feel like I will vomit because of a smell that I now can't stand. an hour or two later, I feel awful but can walk again, my speech is better and the brain fog is lessened but my arms are weak and I have to ask for help to prepare food. I eat but am exhausted and have to spend the evening resting possibly still with the headache. I am spaced out but ok. I wake the next day and I know I need to take it easy but, I have some energy so happily get to the washing up! half way through, I feel the fatigue but ignore it. I sit with a cup of tea telling myself I will rest later. I have no idea if I did too much yesterday, the day before or a week ago. I just know I have exceeded my limit somewhere. People with the condition all differ. We share some symptoms and not others. some people can go days and then have a flair up. I feel it is often just there mostly with some respite occasionally. It is any fluctuating symptoms that tend to make it cfs/me, from what I understand plus, the normal blood tests.

      it isn't always caused by a virus/parasite. Mine is from a car crash. It is basically something that challenges the body and the body reacts inappropriately and it then tries to protect the system by cutting down what we can do.

      Beverley

    • beth77670
      beth77670 Beverley_01

      Posted

      thank you that really nice helping me to understand it, very helpfull thank you 😃

  • shaexo2000
    shaexo2000 beth77670

    Posted

    i have every single symptom you called off. currently dealing with the pressure in my head

  • miller.jones
    miller.jones beth77670

    Posted

    Have you had full blood work up?

    This sounds like it could be a few things from the likes of thyroid to even pre diabetes.

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