Does this sound like Hidradenitis Suppurativa?

Hi Janelle85

So sorry to hear you are suffering so badly. Sounds lik HS to me by what you've said. Cannot believe that you were told you had herpes without them even testing for it - how insensitive can someone be? Have you been referred to a dermatologist? You should be referred to one if not as you really need to see someone that can diagnose you properly sweetheart. You can probably find lots of advice if you look on these groups. Hidradenitis Suppurativa Trust - Patient Support Group and Hidradenitis Suppurativa Strength in Love and Numbers Family Photo Forum. I hope so.

You'll probably find that lots of people find relief in many different ways as what works for one person may not work for another. For instance, I started taking baths using Epsom Salts and I find that this really helps me. Also, I stopped wearing panties years ago because I found that flare ups were worse when I wore them and eased off when I didn't. Always stick to wearing natural fabrics next to your skin. I've also heard recently that sulphur soap has really helped some people.

The only thing you can do is check what other people are finding works for them and see whether it might work for you. I really hope you can find some relief sweetheart. It's a horrible disease to have to deal with. Mine started at around the same age as you and I'm 60 now. I did have surgery on my armpits which I'm glad to say was successful for me. 

I hope this has been a little helpful to you and please do try to get a referral to a dermatologist. Good luck with whatever you decide to do Janelle.

 

It's probably your bartholin's glands. I would get these sometimes along with my HS outbreaks but it's different than HS. I showed it to my gynecologist thinking I was starting to get HS in my vagina and he said you couldn't get HS there and that it was an irritated bartholin's gland. The same triggers may cause it though that brings out your HS. I stopped wearing tampons and started wearing menstrual cups because the tampons seemed to irritate those glands tremendously when they were inflamed. Maybe something in the cotton?? I don't get the irritation anymore. My HS is also now in remission once I found my food sensitivities/triggers which are nightshades, coconut and nuts. Good luck!

This sounds very much like HS to me.   However no one can diagnose you over the net.  Go back to your doctor and tell them you want a referral to a dermotologist.  You will get a firm diagnosis and expert help in dealing with this.  Doctors don't generally know much about HS so don't rely on their knowledge. 

The best way to treat a lump which recurs is to have it incised by a surgeon so ask your doctor or the dermatologist to refer you.   I have had several recurring ones and had them incised and none of them have ever returned.  Other ones yes but not those.  x