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I have been sick for seven months now. I've seen a primary doctor, two endocrinologists, and a cardiologist so far. I'm having a very hard time getting my primary to take me seriously, and a cardiologist I saw yesterday told me that after spending 15 minutes with me, he could tell that I'm an "upright person" and wrote my symptoms off as anxiety. Here are some test results and diagnoses I've had:
- Low titer positive ANA with speckled pattern
- high rheumatoid factor
- confirmed Hashimoto's with normal thyroid function, so endo doesn't think that's causing my symptoms
- low cortisol for two blood tests and a saliva test, but normal response to ACTH Stimulation test which ruled out Addison's
Here is my ever-rotating list:
- crippling fatigue
- bouts of tachycardia not exceeding 130bpm when I'm NOT anxious
- horrible hives that leave bruises and broken capillaries for about 5 days after the hives have gone (mainly on lower trunk and extremities, but all over as well, and worsened by sitting too close to heaters)
- joint pain in hips, knees, elbows without pressure points or swelling, but with warmth to touch
- random neuropathy, pins and needles/electric shock sensations
- rash on my chest that doesn't itch when I'm exposed to sunlight, heat, or intense emotions of any kind (ongoing since teenage years)
- random lowgrade fevers that last as few as a couple hours or as long as 1-2 days
- sore throat and flu like symptoms if I don't get enough sleep
- trouble swallowing
- mildly enhanced blood pressure
- loose stools
- muscle twitching, pain, and weakness
- winded easily
- occasional vision issues
All of these symptoms come and go. When I was 13, I had a bout of mono which triggered an autoimmune response that left me paralyzed for 6 months. My neurologist suspected either Gullian-Barre or Post Viral Ataxia, but couldn't differentiate between the two as I was too old for PVA and my symptoms lasted much longer than usual, but I didn't have the hallmark neuropathy associated with GB. He took a wait and see approach to my recovery and after 6 months of physical therapy, I recovered fully. He did tell my mother to expect autoimmune disease to show up at some point in the future, or that my disease could come back out of remission.
I'm positive all of this is related but doctors keep blowing me off. I know you have all been through the painstaking process of getting a diagnosis, and I seek major comfort in your advice and wisdom. Any and all is GREATLY appreciated!
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