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Hi, I am afraid I have got very anxious and depressed about my illness and getting a diagnosis/treatment.
My illness started suddenly about 2 yrs ago in Dec 2013. I felt like I had the flu coming on just befor Christmas 2012. Constant fluelike/hungover type headache, fatigue that came and went in waves and lasted about 3 hrs. Tummy problems, nausia, bloating etc. Symptoms continued over Christmas and into Jan. Visited GP early in Jan, who said I had a virus and it would clear up in a couple of weeks - it didn't.
Lots of blood tests followed (sorry not sure of exactly what) all normal.
symptoms carried on in a similar way over the next 6 months, the main symptom being the permanent flu/hangover type headache 24/7, as well as occasional fatigue.Throughout this time I had enough energy to go to the gym 4 times a week and work out quite vigorously. At the same time as undertaking some quite physically demanding DIY work and an active social life.
During this first 9 months tried various things like cutting out gluton, accupuncture etc. By the Autumn of 2014, the symptoms were getting more intense especially the flu like head ache and lightheadedness, nausia + some vision focusing problems. I consulted new GP (due to house move) not very helpful.
By January 2015 visited new GP again and insisted on a thorough examination, when it was found I had a heart murmor, which resulted in heart valve surgery in June of this year. Many of my symptoms we wrongly attributed to the faulty heart valve. The Op was successful but all the symptoms continued. GP decided it was probably an inner ear problem, so because of long wait, I went privately to get this checked out, all ok.
In the past couple of months all symptoms have got worse to the point where I can barely function and following a severe dose of Food Poisoning in Nov I am very fatigued (although I did suffer from occasional fatigue, it has not been a signifcant problem until the past few weeks)
My GP is now convinced that I have ME/CFS and has just ordered the following blood tests:
C Reactive Protein
Immunoglobins & Electrophoresis
It is good to be getting the blood tests, but if they come back negative
my GP says I must have ME/CFS. I am not so sure - what does everyone think?
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