Does this sound like MS?
Posted , 4 users are following.
Ok, a little bit of a back story. Symptoms started the begging of June (13 weeks now). I've been seen by 5 doctors non in which have a clue what's going on with me. I was treated twice (3 antibotics) for a tick born illness (without being tested for it), was give a low dose of steroids for 5 days, tried a antiviral medication, and now currently taking gabapentin which is helping some. My current doctor finally ran some test and the only thing abnormal found is low white blood cells, high sed rate, and high c reactive protein. 2 tick panels were negative, lupus and autoimmune panels negative. My current doctor has pretty much given up as she has no clue whats wrong.....I have a referral to a rhematologist but if I get approved as a patient they will not be able to get me in until December. So after my last appt with her I came home and started my own research which as lead me to believe that it could be MS. I scheduled another appt with her on Monday to ask for MRI's but I have a feeling she is going to tell me to wait to see the rhematologist in December. Anyways, what are your thoughts? There's a list of Symptoms I've had......
- Skin burning (Mainly in legs but some in back, bottom, and arms) This sensation recently will sometimes feel like I have icy hot on my back.....the cool, burn feeling?
- Tingling, crawling, or electrical wave feelings (really dont know how to explain it) this feeling happens here and there (again mainly in my legs, but some in back, bottom and arms) Once in a while this feeling will take over and its like every nerve in my legs will do this at the same time and when its doing it all at once consistently it becomes very painful.
- My skin seems to be very sensitive to hot and cold all of a sudden (going to my moms and sitting on her toilet is like sitting on a huge ice block)
- Extreme fatigue
- Muscles become very sore out of no where (in the middle of all this)
- Now Muscles (arms and legs) get a cramped / tight feeling after even just walking around walmart for a hour and sometimes just streching
- I have started waking myself up at night jerking (legs)
- At one point I had shortness of breath, and even some chest discomfort
- Often times I will have a very out of it feelings
I just thought it would be good to get opinions from people who actual have MS. Does any of this sound like anything you suffer with? Should MS be considered as a possible cause to my suffering?
Thank you from the bottom of my heart for your help.
0 likes, 5 replies
bic24773 bammmerbam
Posted
Hello, your symptoms are nearly exact match to mine. I have MS and I thought I was having a relapse but my neurologist says not, I've just been tested for vitamin B12 but not had results yet. Check it out. That and magnesium deficiency. If you have low blood cells sound possible, have they tested you fir deficiency? It's so frustrating isn't it, this is the second time I've been through the hell of feeling like a hypochondriac, the first being prior to ms diagnosis. Good luck, and yes push for an MRI it can help with ms diagnosis as well as spinal problems. 💚🌹💠
bammmerbam bic24773
Posted
Thank you for responding. It appears as if they did do a "Chemistry" test which included glucose, calcium, potassium ext but not b12 or magnesuim, I have however started taking a lot of vitamins since all of this started going on.....in hopes of helping with the fatigue....just hoping to feeling better in general really I guess. I am currently taking Magnesium, B12, Proabotics, a multi vitamin that includes high calcuim and Vitamin D, and Omega 3. The Omega 3 seemed to help with the fatigue some but other than that my symptoms have not gotten any better at all
I will for sure mention to the doctor that I would like to be checked for deficiencies as well. Not really sure why I am having such a hard time finding my voice in all this with doctors as I am usually a very straight forward type of person. I had actually been doing my own research long before my last appt but was still at a lose as well. MS was something that ALWAYS came up in my search but I never looked into it bc I believed that the symptoms only affected one side of your body (ie couldn't have burning or tingling in both legs or in legs and arms) It wasn't until after my last appt that I looked into it further and thought that my symptoms could fit with it or I would have mentioned it to her before now.
bic24773 bammmerbam
Posted
We seem to be quite alike, I have the same problem, my Dr just kept saying 'well we know what that's is "and smiling benignly" . My symptoms are very neuro so I can't understand it, and yet is Google my symptoms and it comes up ms, but I cannot walk and the pains getting worse. I had to fight and I mean fight for a blue badge, my husband actually cried when they turned me down. I'm going to push for answers myself if my bloods cone back ok because nothing makes sense. I hope you don't have MS but it's not a death sentence. My mum had it and was doing ok until she had a fall and broke her hip. My sister's too. Keep strong and take someone with you, it's always easier to fight for others. Vitamin b13 deficiency dies give neuro problems and an ordinary dose probably wouldn't bring you back up. Pm me if you want my email but please keep it in touch let us know how you get on. Hugs 💚🌹
bammmerbam bic24773
Posted
It's the weirdest feeling because I pray that I do not have it but at the same time I am ready for answers. I literally cried my eyes out when my lupus ana tests came back negative.....not because I wanted to have it but because it meant that I was still left without answers. It's such a odd torn feeling because of course I want negative results but I also want to know why I have these symptoms so that I can get the proper treatment that I need. Sigh. I will for sure PM you. Would love to keep in touch and have someone to chat with that understands. Hugs back to you!
fester bammmerbam
Posted
Good luck .