Does this sound like normal procedure complex cysts/elevated CA125
Posted , 4 users are following.
Hi everyone
I was diagnosed with complex ovarian cysts at the start of the year but they were not really changing so no further action was needed. I insisted on a further scan and a Gyno agreed to remove them if i really wanted them gone which i did.
We booked a date for a laparoscopy and he gave me the CA125 test too. It had got really high (even though it had already been slightly elevated at the start of my problems). He cancelled the laparoscopy and said futher tests were needed to rule out 'any sinister pathology'. So i had a CT scan.
After 2 weeks of awful worry he called me today and said the CT scan showed up nothing that really concerned them except the cysts they already knew about. Now i have to wait till NEXT Tuesday for an MDT team to review the scan and see what they think.
If they think something is amiss i will then need to have an MRI scan.
How much longer will this go on before they just get in there and do what needs doing? So frustrated.
1 like, 7 replies
Red1990 awaywiththefairies
Posted
Youd think he might explain his actions though!
I have complex cysts and I'm having surgery in a few days, my doctor hasn't even done the CA blood test or arranged a CT or MRI because of my age (just turned 24) however, having worked in neuro-oncology for the past year, I sometimes do wish that she was more thorough!!
I hope that you hear something soon; please keep us updated, keeping fingers crossed for you xxx
awaywiththefairies Red1990
Posted
Well i heard back from the gyno receptionist who told me i need to go this Friday for an appointment with my gyno to discuss which surgery i need. She seemed to think it was 1 ovary removed which contains the cysts which is fine by me!
She said the MRI they had mentioned as a maybe def didnt need doing now? So i think Friday will be best bet for answers and Im not leaving that room till i get em :D
Good luck with your surgery. Let us know how you get on with your recovery etc x
Red1990 awaywiththefairies
Posted
Do let me know how you get on, a lot of the CA blood tests are quite poor in providing accurate information if you're pre-menopausa?l (probably should have mentioned that In my previous post)...
Good luck, you're one step closer to getting it all over and done with :-). X
lucy57725 awaywiththefairies
Posted
I completely understand. I'm awaiting result of the same CA125 test (taking two weeks) and in the mean time I've become a mess. I've also started getting other symptoms whilst waiting for the results. The messing about is just ridiculous x
awaywiththefairies lucy57725
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la16954 awaywiththefairies
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awaywiththefairies la16954
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