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Does this sound like poss MS! Part 1

Posted , 2 users are following.

amanda82732
amanda82732

Hi not sure where to start been ill for so long I have fibromyalgia following RTA in 97 plus other things but I am queering the MS diagnosis now am due to see a Neurologist soon.

last year was a total nightmare for me virtually housebound especially since September I will try and keep this as brief as possible.

I have suffered with dreadful muscle spasms mostly in my calves and for that I am taking Tizanidine mostly doing a great job, I devolved dreadful dizzy spells and headaches was referred to ent who put them down to migraines so on an epilepsy pill for that topamax was helping a lot but probably nerds upping as headaches getting worse. 

I have Interstertial cystitis has plagued me for years the problem now is I am desperate to go get there have trouble emptying so stay there first time it happened fell asleep fell on the floor and badly hurt my foot to much hilarity to the family happened again fell into the side if the bath with no panel on ouch and of course very dead legs it is becoming a serous problem now did suggest to Dr about self catherterisingdidnt really get an answer fell asleep today but managed to wake up quickly. Also have severe IBS

this is a symptom that has knocked me literally off my feet fatigue! I get u guess a warning sign my legs start to buckle feel dizzy have to get to where I can lie down then I sleep for 3 hours it happens virtually everyday 

 

1 like, 4 replies

4 Replies

  • wendy80842
    wendy80842 amanda82732

    Posted

    hi amanda,

    it's certainly a possibility that ms is the cause of symptoms you're experiencing. it's good that you're seeing a neurologist, if he/she feels that a general neuro examinations findings warrant further investigation, you would most likely have one or more mri and a lumbar puncture to get a better idea of what might be going on. funnily enough, i finally found out that i had ms, having previously been clueless, after a fall on ice quickly led to a huge relapse and a sudden onslaught of symptoms. it's not an atypical way to find out you've got ms, but a physical trauma can give it one hell of a nudge.

    i'd recommend the UK MS Society web page, while there is a forum for undiagnosed or newly diagnosed on there, the general boards are seen by many more of 'us' and are read by those of us with more direct experience of ms. you'd be hard pressed to come up with a question that someone can't answer.i hope you get some answers/help soon.

    wendy

    • amanda82732
      amanda82732 wendy80842

      Posted

      Hi Wendy thank you so much for your reply that is very helpful to me, must admit terrified about the idea of a lumbar puncture after a bad experience with a forgotten darn it well it used to be a long needle had it when I was giving birth with first child 34 years ago it was agony and heard some horror story's about the lumbar punctures it depends how good the person is doing it I guess what a way to find out you had MS!!

      i will check the UK MS Scociety thank you for the advice take care x

  • wendy80842
    wendy80842 amanda82732

    Posted

    hi again,

    i'm pretty horrified by needles myself, i managed to sew a sewing machine needle straight through my finger tip, nail and all, as a teenager, LP's aren't the pleasantest of things. i know, but it's a diagnostic tool, they tend to use, you could refuse it, but, if it is MS, it might leave you feeling like there's a question mark over any diagnosis, sorry... on MS society site, see if you can find someone near you who can tell you about the neuro doc you're seeing, and definately take a list of symptoms, written down, and any particular questions too so you don't forget anything. i'm terrible without a prompt sheet, it's useful to take someone with you, as support and to help remember info.

    take care, wendy x

    • amanda82732
      amanda82732 wendy80842

      Posted

      OMG Wendy that is awful and I bet it bloominh well hurt!!

      Thank you for being honest about the lp's but I guess if it's a diognostic tool then I would have to bite my tongue and have it done no point being in limboland at the end of the day after the first consultation they might say nope not at all, trouble is they say who you might be seeing or a member of the team so not that helpful lol, yes I do intend to write that list thanks for reminding me I really have to do that or forget so much I need to say but I am taking hubby as he see's how it is effecting me and how much I have gone downhill in a year and bless I know he is worried.

      Thank you for you time very much appriciated.

      Take care Amanda x

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