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I am so glad to have found this forum.
I have cerebral palsy and I'm a wheelchair user. I've been struggling with pain in my feet for well over a year now and have all the other symptoms of Raynaud's.
The furthest I've got to a diagnosis is actually a nod from my podiatrist when I asked him if it was Raynaud's! Guess it's a start! But I do have constantly cold hands, white fingers when they are particularly cold, either red or purple freezing cold feet( but they can also get extremely hot and go rw red?) My nipples go purple! And I'm wondering if the ear pain experienced when trying to wear headphones could be connected?
To cut a very long story short, I originally thought I had a pressure sore on the underside of my heel which was discounted by the district nurses. (I have a red mark on my right heel that has always been extremely painful), and it wasn't until my left heel started giving me exactly the same pain, but had no red marks, that I realised this pain could be part of the Raynaud's. It's a cross between burning and stabbing. Having done some research I understand that stress can bring on an attack. So I'm assuming that an attack is when the pain is at its worst?
I am by no means asking for a medical opinion, just to hear from someone who has gone through this as well. If it's not something that is common with Raynaud's, I know I need to have further investigation.
Thank you so much for taking the time to read my post and you really do have my sympathies!
Best wishes to you all
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