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Does this sound like Vestibular Neuritis?

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Kevin5555
Kevin5555

Hello, this is my first time posting.  I have a serious health issue, but the doctors haven't been able to pinpoint what it is.  Basically, I've had six weeks of dizziness and unsteadiness.  It sounds like Vestibular Neuritis, but please let me know what you think.

On June 9th I got some kind of stomach flu or food poisoning.  I had severe vomiting and diarrhea.  Other than a canker sore under my toungue, I was starting to feel better.  I was exercising again and working again.

While walking across a bridge in the park on June 14th, I suddenly got a fear of heights.  I felt the same sensation the next day while sitting at a traffic light, that happens to be on top of an overpass.  I felt panicky.

As the week went on, I was getting panicky in the car every time I had to stop at a light.  I had to look down at the sterring wheel because the cars criss-crossing in front of me was making me disoriented.

Then I began to get dizzy spells throughout the day, plus I felt a permanent unsteadyness 24 hours a day.  A lot of times I had to concentrate hard to walk.  My eyes were not going where I wanted them to go.  Work really brought on the systems.  I started missing days.  I also had to have people drive me around to places. One time I had heart palpatations when there were a lot of people around me.  Eventually I asked for a leave of absense.

On the 26th, a dizzy spell got so bad I had to go to the hospital.  It was mainly disorientation, not like the room was spinning. I was still able to walk around the hopital, but very slowly, and had to concentrate hard to do it.  MRI showed no tumors or stroke.  They said it was a middle ear issue, perscribe some medicine and sent me on my way.

So far I've seen one ENT, but other appts are coming for nearologist and another ENT.  My hearing test was perfect.  The ENG/caloric test came out normal, which surprised me.  He suggested I might have Mal de Debarquement Syndrome.

I became became imprisoned in my home, and I started to feel physically weak as the days went on.  After learning about vestibular exercises on the Internet, I decided to start doing them on my own.  They seem to have helped with my balance and with my eye-darting issues.  I now go for very long walks. I am starting to drive again too.  However, everything feels totatlly different than it did before this all began.

There were a couple of nights where my brain was doing odd things. I got hot flashes (even though I'm a guy) and heart palpatations in the middle of the night one time.

My persistent systems right now are:

-suceptible to dizziness when on the computer, watching TV, doing quick head turns, being inside stores

-high-pitch ringing in my left ear

-fullness in my right ears that comes and goes, almost like there is fluid in them

-harder to concentrate

-unsteadiness as I move.  Sometimes it's a "bobble"; othertimes it's like I'm leaning in one direction or another.  Sometimes it's almost normal.

-sensitivity to sound, like the bath water running

-misidentification of sounds.  I sometimes think the garbage truck is outside, only to figure out it's our air conditioner.

Let me know what you think.  I would like to begin living a normal life again: return to work, use a computer and watch TV normally, be able to drive long distances without worry.  I'm thinking it's VN, but I did not have an "acute" spinning phase, plus the caloric test was normal.  The canker sore may be relevant because I've read that the herpes virus can attack the nerve. 

 

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  • jonAustralia
    jonAustralia Kevin5555

    Posted

    Isn't it all very much the same scenario? Even though Doctor and Specialists can't help, they can't help but charge either; I guess that's life. I have had this dreadful condition twice now, the first two years ago which totally disappeared some 8 weeks later and again some ten weeks ago and lingers. Same ringing in the ears, which intensity varies. Same feelings of vertigo when in a supermarket and continuing soreness in my neck if I lean my head right back, so of course I don't do that unnecesarily :-). Both my onsets were accompanied by total loss of control of walking and I just dragged myself on both occasions to the toilet for 6 hours of vomitting and only that. The first time two years ago I panicked as I am a bachelor, and rang an ambulance and spent 3 days in hospital where they did all of the tests that you guys describe, most of which make you feel worse, at first. Unusualy I can drive with no symptoms at all, go figure that. I walk and jog daily with a tendancy towards my right which corresponds with my ear problem, ringing and virus onset. I just plod on and hope that people of my hometown of Torquay, Vic don't think that i have started drinking early. Speaking of which I have become at times a binge drinker when the stress and self-pity become too much. Night time walks are out still as without the bearings for my retrained brain to call on, the symptoms are far worse and I don't want to end up in the ocean, next stop South Africa or worse, Antarctica, whichever comes first. I am lucky that after 10 weeks I can train daily in my home gym and walk and/or jog, most days.So, what to gain from my above rant. There is hope and there are several symptoms and remedies some/all of which may work. It's just a shame that some specialists in our combined countries haven't worked out one "BEST" plan but then again, maybe I'm thinking that there isn't just one? Best regards fellow sufferers, I wish with all my heart, that we were all much better... Jon
    • fasthorse
      fasthorse jonAustralia

      Posted

      Hello, Jon...indeed. Prayers for everyone who suffers this disorder.  I've heard from a neighbor that any alcohol only exacerbates the vertigo problem..just sayin'. You're blessed to be able to run and work out..even if not consistently. I hiked close to 6 miles, Sat. no problems, but at times have to remove sunglasses to thwart oncoming dizziness when walking...i'm not sure if that's visual, or simply pressure of the glasses above the ear...Still, the walk always seems to help with the vertigo..sounds odd, but true. A friend sent info re: virus/bacterial ear infections...advocated use of tea tree or garlic oil in the ears...i haven't tried it..Dr. Bob Marshall said on radio last week, that the increase in balance problems comes from bone loss/weakness as the inner ear also has tiny bones...so folks might want to focus on  their mineral intake...hope this helps.
  • Kevin5555
    Kevin5555

    Posted

    Had two appointments today, a Otologist and a Neurologist.  This is basically what they said:

    Otologist-"You have had two hearing tests that are perfect, plus that ENG test that was normal.  This effectively rules out an inner ear problem.  I'll refer you to John G Oas, neuro-otologist."

    Neurologist-"I see nothing that would justify an MS test.  Your MRI was pretty clean.  Get another one down of the brain in six months.   I'll refer you to my collegue, John G Oas, neuro-otologist.  He works with patients like you and even has a spinning chair with barf bags." 

    The average wait time to see him is four months, but the neuro did send him an email to see if they can take me sooner.

    Meanwhile, my symptoms have been back for a week now; today was particularly hard since I've had dizzy and headache combined, and had to go to both appointments, and had to work a four-hour shift on the laptop.  Overall, it isn't as bad when it was at its worse in June-July, but still the fact it got better and then worse again makes it harder to hope for a full recovery.

    Oh yeah, the olologist did say this to me.  "When I get people with your symtoms, and we can't effectively diagnose what it is, I tell them that whatever it is, it will eventually run its course and you'll get better.  Also, even though my ENG test was "normal" there could still be slight difference between the two sides to cause an issue."

    • kel2015
      kel2015 Kevin5555

      Posted

      This is exactly where I am at right now as well, since the start of it all mid-May. A bunch of nonsense. 
    • anne05147
      anne05147 Kevin5555

      Posted

      Hi Kevin, did they say the average time span for these problems to run a course.  I know it will be different for everyone but mine started in sept 2013 and i get periods where i feel better and then it comes back and goes away and comes back etc., etc., When i feel better i get hopeful it's run its course and then when it comes back i feel deflated and then hopeful again when it goes away.  I know i am starting to adapt to the unpredictableness of it but i feel that it might never go away. 
    • kel2015
      kel2015 anne05147

      Posted

      Hi Anne, that is also how I feel my progress is going too. When I do have a 'good' period now, I almost tell myself that if I take advantage of how well I'm feeling then I will pay for it by having a 'surprise ' setback or something of the sort. 
    • Kevin5555
      Kevin5555 anne05147

      Posted

      Anne, he never got that detailed.  He may also not be counting the people who fall off the radar, like many of the people you see on the message boards.  I don't know how he could possibly know that everyone gets better unless he did 100% follow-up with everyone he's come across.
    • Kevin5555
      Kevin5555 kel2015

      Posted

      Kel, I "caught" mine in early June. Maybe we have the same virus smile
    • kel2015
      kel2015 Kevin5555

      Posted

      Kevin, I don't doubt anything these days...seriously! Funny. Am I the only one who has had odd 'conclusions' as to where these 'so-called viruses' evolved from?? Maybe it's just my self-conscious' way of entertaining myself through all of this, but since we all put so much into over-thinking and analyzing and rationalizing into our symptoms and conclusions, I've definitely had doubts about these viruses came about and how the ENT-world is getting so much profits off of us. Since this has happened to me in May, I have come across random people who have vertigo and they have no idea as to where or why. I'm not saying that I actually believe any odd theory with the ENT world, but when we are as vulnerable during these times, many humerous ideas tend to come to mind smile. 
    • chris1303
      chris1303 kel2015

      Posted

      Kevin, apologies if we've discussed this...but have you had a neck mri? I insisted on one after a clear brain one and after a clear otologist test like you. My neck is not in good shape...neurologist on Friday...Sorry to hear you are struggling again.
    • anne05147
      anne05147 Kevin5555

      Posted

      thanks Kevin.  I'm not inclined to go along with this virus for myself, cos mine started a week after a physio did some back crunches on my spine for my stiff neck.  Sees too co-incidental to me although my GP said it was highly unlikely, but then it was the physio who works at the same practice as my GP.  I wasn't trying to blame anyone but make a connection to when this all started and it was definitely after that physio.  I am hopeful that whatever was crunched out of place might work it's own way back, but i would not have physio again for my neck in case they make it worse.
    • anne05147
      anne05147 kel2015

      Posted

      yes, i know.  I try to pace myself on a good day and do things slower than i normally would so that i don't mess it up.  Have absolutely no idea what the problem is and i think the specialists are just groping around in the dark but trying to remain positive to give us some encouragement, more an art than a science as to what's going on i think.
    • laurence76206
      laurence76206 anne05147

      Posted

      Hi Anne,

      We were tralking about avoiding certian foods in a previous post, can I ask what foods you avoid.  I think I said that I have been diagnosed with VN but the consultant also thinks I am suffering with migraine.  Like a lot of the other posts on here my dizziness started with a viral infection (probably the Herpes virus as I had a cold sore on my eye).  Since then I developed intolerances to certain foods which I found to aggravate the condition.  I was told to avoid citrus, caffiene, chocolate, alcohol and salty foods and to drink plenty of water, I have done all these things but still get days when I am very off balance.  I have been trying to figure out if there are other foods affecting me.

      I had a bad day yesterday as I felt very dizzy but I did feel as though I had picked up a chill (probably walking in the rain the pats two days).

      Best wishes

      Laurence

    • anne05147
      anne05147 laurence76206

      Posted

      Hi Laurence  i am avoiding cheese, chocolate, marmite, wholemeal bread, and something else, which i can't remember, not very good start if i'm losing my memory is it?  Can't think what it is.  I have been noticing since being told that it's silent migraines that i was waking up with a dull ache at the base of my neck and behind my eyes.  I increase the nortriptyline to 20mgs but then found no difference so went back down to 10mgs as that seemed to help me for nearly a month, but then i had 2 days last week thursday and friday where i felt spaced out with the visual problems again. 

      Were you told not to have any salt, i don't think salt was mentioned and i do have quite a bit on my dinner which my husband says i shouldn't but we don't use salt in our cooking so i shake it all over my dinner. 

      I do need to drink plenty of water which i also forget to do cos' it is so boring sloshig down gallons of water but i must try harder. 

      I have been off work since my surgery last monday and thinkt he anaesthetic set me back with the vision thing going on thursday but i also find lolling around not doing much isn't helping either, cos i think if we don't use our balance to move about a lot then it's harder to get back to normal.  Anyway if i remember the other food that i'm avoiding i will let you know but i definitely know from having 2 chocolate biscuits a few weeks back by the time i got home from work i was all over the place within the space of about 2 hours of having them.

      I think because this is now our achilles heel anything that trigger it off and if you got a chill that's probably affected you.

      Keep on keeping on.  Best wishes.  Anne.

    • marlene21102
      marlene21102 anne05147

      Posted

      Hi Anne ,hope your getting back somewhat since op ,take a look at this 

        Trigger Point Therapy.its for neck,back,shoulder etc 

       also Wavering technique .

         I'm looking back into gluten ,second trip on that ,why Im doing that ,I've had this what I've always thought was prickly heat ,got it on arms ,legs ,bust .plus rash on arms,not sore but red ,on flesh part opposite of elbows .

         2 consultants have said about my having Ecezema ,this is a sign to gluten ,plus balance / Dizzyness ,plus it will give you anxiety ,my daughters mother in law is a celiac ,she says if it was that I would have severe stomach prob ,but it can be gluten sensitivity I've got going on .So will be off again down this route ,my local mate ,has a daughter with gluten ,so going to have word with her today ,see what's said ,as I know her daughter had a prob for over 2 years before finding out the gluten prob ,see if it caused her the balance ,even to the neck ache .Plus I'm up on the Gluten society site .

         There's got to be a few common factors in all we've got going on ,which is our link to it .

        Takecare xx

    • laurence76206
      laurence76206 anne05147

      Posted

      Hi Anne,

      Yes I have reduced my salt intake to around 4-5g per day (i think the UK is max 6g per day).  I also drink lots of water but like you tend to forget some days.  I drink very little else aside from camomile tea to aid my sleep.  I take lots of vitamins and minerals.  I do suffer with my eyes, it was suggested by Rocksolid (i think) to look into Vertical hetererphobia   I will ask my optician about this.  I am sure it is mostly the thing I have with my eyes that makes me off balance.

      I will keep doing the VRT and walking daily, hopefully this will make a difference in the future (at least I will be fitter).

      By the way, do you suffer problems with your stomach as I do.  I was also told this can be connected to migarine?

      Best wishes

      Laurence

    • chris1303
      chris1303 laurence76206

      Posted

      Nausea is something I forgot to mention in my long list of symptoms but I suffer this almost daily, its annoying enough to be constantly adding another level of discomfort....sorry to butt in! 
    • anne05147
      anne05147 laurence76206

      Posted

      Hi Laurence, i know this might sound strange but what does 6g of salt look like, i'm not using teaspoons of it on my meals just a general shake of it over a meal.

      I now only drink decaff and didn't drink alcohol anyway.  I am going to see an optician on saturday and will mention my balance problems and vertical heterophbia.  I wear varifocal glasses but might go for bifocals this time as find it a problem sometimes with everything going skewed when i turn my head to check whilst driving at junction that the varifocal part is blurring my visiion.  I will be asking the optician a lot of questions this time round. 

      My main triggers with this problem are looking upwards and also looking upwards and raising my arm above my head, e.g., if i want to open a top cupboard drawer or get a hanger off a rail in the shop etc.,

      I have had IBS for many years now, but it comes and goes and haven't had it past 2 years since having this instead.

      I also have had autoimmune diseases in the past like alopecia areata and lichen plantus, where my body tries to beat itself up - such fun!

      I must inform my body that i am not at war with itsmile

       

    • laurence76206
      laurence76206 chris1303

      Posted

      Hi Chis,

      No problem, I am lucky in that I only get this occasionally and generally my appetite is good.  That said i have never been able to regain the 9Lb i have lost in weight since this thing started which is weird.  It may be down to not having my 7-8 pints of beer per week or eating chocolate (oh to have those days back again!).  It could also be due to the ongoing anxiety we suffer with this condition?

      Are you due any further appointments.  I have just called my consultants office to request a call back from Mr Rea to discuss some further issues I have.

      cheers

      lauernce

    • chris1303
      chris1303 laurence76206

      Posted

      Hi Laurence, the nausea doesn't stop me eating, it's just a nagging background issue.

      By coincidence I have my first 40 minutes tomorrow with a neurologist following my neck mri having issues that the ENT couldn't deal with....I may not even have VN! I could have wasted 6 months and done irreparable damage to my cervical spine through 225000 exercise movements! I'll let you know tomorrow...just pleased I pushed for mri's...cheers

    • anne05147
      anne05147

      Posted

      found out that 6g os salt is about a teaspoon of salt, so no i don't sprinkle that much over my food, but then some foods are naturally high in salt also and i do like peanuts.  I don't know about giving up every food so am trying to work out which ones are the main culprits, and the quantity and frequency of them that would cause the problem, as potentially i think it is possible to have a bit of everything in moderation, i hope.  Maybe gluten is a problem also but i don't want to end up one of these food bores who tells everyone what they can and can't eat whenever you sit down with them for a meal.
    • laurence76206
      laurence76206 anne05147

      Posted

      Hi Anne,

      I am told that a heaped tea spoon is 6g.  A slice of white bread contains 0.43g which is more that a bag of crisps (0.33g)!.

      Like you I also have other conditions.  Many years ago I was diagnosed with ME.  I have managed to work most of the time with the condition and the only real problems it caused were at te start (i had to give up all my sports).  It may now be affecting me due to the VN but the consultant is not sure.

      I also suffer Glaucoma (this runs in our family) so have to put drops in my eyes nightly.

      I was also told I had H.pylori which causes similar symptoms to IBS, around 50% of the worlds population have this but only around 10% suffer any symptoms.

      My main problem is looking down, which is a bit annoying as my head is tilted down when reading, eating using the PC and so on.  This causes me to get a bit lightheaded.  I am doing VRT to try and alleviate this.

      I am due an appointment at the eye hospital any day so will also raise the issue of vertical heterophobia.

      Best wishes

      Laurence

    • anne05147
      anne05147 laurence76206

      Posted

      Hi Laurence,  I'm sorry, it's not simple is it?  Can't look up, can't look down, can't turn to the right, can't walk in a straight line, can't do supermarket lights, can't walk down stairs without clinging to the rail.  It affects every aspect of every day life.  I am involved in a study where i went to see the otoneurologist and due to go  back in september for some exercises, i assume and then a follow up in november with the consultant.  He said it's like a jug, i can't change what i've put in it up to this point but i can change what i add to it from now on.  He said i had basically wasted 2 years going to ENT and that if i'd been referred to him sooner he could have helped me get better faster.  I don't know anymore, as i say to my husband quite a bit, i'm probably stuck with this and i don't mean that to sound defeatist, it's just that what with the loud tinnitus and this combined if i have a good day its a real bonus, but i no longer think on a good day week, oh it's gone away, cos i know it probably will come back the following week, month, so i enjoy it when i feel quite normal and make the best of it.

      Kind regards

      Anne.

    • paula59
      paula59 anne05147

      Posted

      Hi Anne and everyone, Was so fed up after my visit to neurologist on 13 august that I couldnt be bothered to pick up the laptop and report back.  As you know, had silent migraine now for 3 years in October.  I dont think it is, I have a bad neck from a car crash and I think its SCM injury.  Went with all my notes prepared, very excited.  When I got there to see Dr Zermansky, he was away on holiday and they had mistakenly made me an appointment for botox at the migraine clinic.  I had already seen his assistant on the last visit and explained it all to her. We had decided between us to discharge me from there and I was to see the consultant and tell him my findings and discuss it further.  Well I was right back where I was 3 months ago in the same clinic.  Total waste of time, so I was out inside 3 minutes.  She said she would make me an urgent appointment to see him when he came back and Ive got the letter now for November.  Gordon Bennett I dont believe it. Just wasting more and more time while Im struggling with this stupid illness.  Had a really bad week at work with everyone else off on hols and me doing 3 jobs.  I was so stressed today and consequently the dizziness just got worse and worse.  I feel better with sunglasses on so wear them more or less whenever I can, even inside. I dont work on a friday so Im going to phone the secretary tomorrow and create hell.  Just want to speak to someone who knows what they are talking about, but I think we have all found out, that that actually doesnt exist.  Are they all totally useless.  It would appear so.  The only good bit, at least Im not paying for these visits like the guys in the US.  Shouldnt get stressed it makes it all worse.
    • chris1303
      chris1303 paula59

      Posted

      So sorry to hear that Paul a, I'm with the neuro tomorrow after 6 months to the ENT trail. You may have read I'm a bit fed up too...only after I insisted on mri's did they find my neck isn't so good. GP...anxiety. ENT...vest neuritis, mri....neck in a mess...oh how about a neuro....! Best wishes and keep fighting! Chris
    • anne05147
      anne05147 paula59

      Posted

      sorry to hear this Paula,  what a disappointment!  Don't let it get you too down, cos' whatever the cause it will only make you feel worse if you get down too.  I also don't totally go along with this silent migraine thing but i am still trying to work with the restricted diet and take the meds prescribed for it.  My neck is definintely connected to it all, but i also read somewhere that this is also a symptom of silent migraines.  It's hard to know what to make of it all.  I know that i have a bulging neck disc though so that's a definite and it seems logical to me that would be the cause of my neck problems.  I know for definite when i'm stressed i can feel the visual problems i have worsening.  Hope you can get back to see the consultant very soon and that he's actually there when you get there.  I had that with my first ENT appointment, waited 5 months to get seen and then he was off sick the day of my appointment, so in the end paid to see him privately a week later.  When you get stressed breathe slowly and deeply through one nostril whilst holding the other closed, then breathe out through the other nostril whilst closing the opposite one and do this a few times and you will, hopefully, feel your head clearing. I'm due back to work Monday after being off 2 weeks following a surgery. I know i get dizzy at work but i think it helps me keep on top of this problem because doing mostly nothing for the past 2 weeks i notice my vision has been worse and so has my neck and shoulder.  I think if we don't keep moving we start to rust up.  I will try to remember to wear my sunglasses too and am going to optician on saturday to get some new glasses so will ask for tinted indoor lenses too with reaction lenses for when i am outside.  I thinkt the glare from computer also affects our problems.

      Hope you feel better soon,  Hang in theresmile 

    • marie43202
      marie43202 paula59

      Posted

      Hi Paula,

      I, too, totally get your frustration with drs.

      I can't help but think these symptoms are all due to nerve damage. I was in a car accident as well many years ago. I was stopped at a traffic light and rear ended by a truck. Unfortunately, when I was hit, I had my neck bent down reaching for my purse on passenger side so I did get hit at a bad angle. Didn't realize the extent of damage to my cervical discs (severe, multiple cervical disc degeneration) until years later after a MRI. MRI was performed due to sudden excruciating neck and arm pain, I was unable to move at all and in tears. Basically, "shoot me now" pain. Now come to think of it (after reading all these threads), I experienced the same dizziness and nausea after the accident, particularly after physio and massage therapy. So much so that I could not continue with this treatment. Maybe for the ones that had a traumatic injury, this is not related to the ears but to the cervical nerves.  The ears, not to mention the tingling in the hands and feet are affected by injury, inflammation, entrapment...whatever, of the cervical nerves.

      As usual, grasping at straws, trying to make sense of this madness.

      Take care.

    • kel2015
      kel2015 marie43202

      Posted

      Marie, I also have a constant feeling that this could be all nerve-related. I was a passenger of a badly hit vehicle 20+ yrs ago where 'I shouldn't have made it out of there alive', and have had numerous neck and back pains in the past 10yrs. One of my odd symptoms in all of this is also 'tingling'/numbness sensations on areas of my face, which I believe has been related to nerve damage in the neck/upper back region. The chiro did let me know that my hips are not aligned, as well as extreme tension from my sciatic nerve on left side all the way up through my jaw-tmj. 
    • marie43202
      marie43202 kel2015

      Posted

      Oh my gosh, very similar to me...face, hips not aligned, herniated disc in lower lumbar area. I get a tingling on the side of my head, sometimes it also feels like I have a mask on one side, and there are times at the peak of these symptoms where I feel my speech is affected. You would think I am having a stroke. Gone to hospital a couple of times thinking that I was but nope. I think we are on to something...lol. 
    • kel2015
      kel2015 marie43202

      Posted

      Wow! I also went to ER thinking I was having a stroke,...half of face felt so odd, almost like I had applied a topical numbing creme! My speech also felt off, like I couldn't form words correctly! Oh wow...we are better off diagnosing our darn selves I think...we are getting closer!! 
    • Terry6872737
      Terry6872737 paula59

      Posted

      Hi Paula,

      I'm really sorry to hear that.  As you know all too well, most of the medical community is useless in their concern for the issues that this condition poses for those of us suffering from it.  The SCM is a good direction to follow and another thing that you may want to Google is Whiplash Associated Vertigo.  There is a lot of information out there on this issue as well.  I believe that it is linked to the SCM issue.

      I am nearing 100% recovered from this dreaded condition and it has been a long journey, 17 months this week.  I got to 95% or so and didn't seem to be moving forward anymore.  I started taking Ginkgo and it is moving forward again for me.  I also have an appointment tomorrow for what is called a Manual Lymphatic Drain or MLD.  You may want to look that up as well.  The drain supposedly jump starts the lymph nodes in the area of the massage in order to help the body rid itself of excess fluids.  I believe that some of my residual issues are related to fluid that just won't escape from around my inner ear.  You may want to Google that as well to see what you think.  I had 3 months of physical therapy on my SCM and still get a neck massage every 2 weeks.

      We all should have medical degrees by now with all of the research we have to do on our own.

      Best wishes

    • laurence76206
      laurence76206 marie43202

      Posted

      Hi Kel and Marie,

      I also have the exact same issues with tingling to the face and speech problems.  I have raised this with every consultant I have seen but had very little reaction.  It does get worse the more I try to do e.g I spent 6 hours on the PC yesterday by the end my face felt tingling and I had difficulty forming words when talking to my wife.  Like everyone else on here I have had all the MRI scans neck and head (twice) and seen  three different consultants, the diagnosis is VN (with migaraine).

      I have requested a call from the consultant today to go over some of my symptoms with him as I don't want to wait until my next appointment in 5 weeks time.

      Good luck to all on this site, I hope we do get the asnwers we all seek.

      Best wishes

      Laurence

    • kel2015
      kel2015 laurence76206

      Posted

      Hello Laurence,

      I am sorry to hear that you are having these same odd difficulties as well; this is not the life we are to be living indeed. Ashame as to all of these specialists too. I truly do believe that we are all capable of overcoming all of these problems without having to strain ourselves by trying to get in to see these doctors. They are all aware that patients are waiting months to get in to see them, and then we are in and out of there within minutes with no further resolutions, but rather more possible negative thoughts to repeat in our heads. Medical profession is insanity. Alternative routes may be our best option. 

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