DON'T GO TO A GYNO..go to a DERMATOLOGIST!!
Posted , 8 users are following.
There is another discussion about this going on. I suggest checking out that..but basically other people are finding that a Dermatologists have better insight, solutions and options for wide skin conditions. I have had my life changed because a dermatologist recognized the condition. Gynocologists do not. Instead they want to do painful costly biopsies....which is a very hard process from the shot to healing. It was one of the most painful shots I've ever had. They don't know how to slowly do baby shots and slowly numb from the base up like they do for ingrown townails. This should be a standard concept for all doctors to slowly numb their way up to sensitive points on the body or phlanges.
Now..2 years on Protopic by a dermatologist..has changed my life!!!
Also..I had high insulin levels which Dermatologist addressed as possibly connecting my other skin issues that go with borderline diebetes.... having the lichen was the worst of these...especially when you have to go to work and don't have a private office!!!!
0 likes, 15 replies
hanny32508 Kubie
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HI Kubie,
?It is good to read that you found a dermatologist that helped you. I myself was very lucky with my gynocologist. Perhaps it depends on the person you visit.
?LS is no fun. The stuff you all the time have to carry with you to keep things comfortable down there is a nuisance.
?I am borderline diebetes as well. But I blame it on my thyroid issue. I keep a farily strict diet that helps both the borderline thing and LS. Avoiding added sugar for one. No goodies for me. No icecream cake. And because I'm feeling so much better I don't even mind anymore.
?Good luck with all.
Kubie hanny32508
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hanny32508 Kubie
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samantha1970 Kubie
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I was referred originally to a private gynaecologist who supposedly has an excellent reputation. H dismissed me as having everything in my head when I told him about the itch and pain. He even wrote to my GP saying I was psychosemantic (all in my head and I had mental health issues). He looked at my vulva for two seconds and said he couldn't see anything. If I hadn't been going on holiday that evening I would've reported him to the GMC for his conduct.
I went back to my GP and directed her to refer me to a vulva dermatologist, this was like a dream come true.
I guess everyone has a different experience. If you are fobbed off with one doctor, try another.
i too use protropic and have for about 6-8 months and it suits me better than dermovate.
hanny32508 samantha1970
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samantha1970 hanny32508
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Yes I agree, you don't know who you will see and if your not happy I think you need to push for alternatives like I did. The vulva dermatologist and GP were not happy when i advised them of this gynaecologist actions and they read the letter knowing that he didn't care. Strangely enough, he w.as in the newspaper a few months before hand being praised for his skills in the gyne field.
Ive since been seeing the vulva dermatologist, 4x in last 18 months and when I went last week she told me that unless I have any additional symptoms or a problem to follow up with my GP. She said if she didn't know from the biopsy, when she looks at me now my vulva looks normal like others.
Most of the advise I have taken from this board, in addition to the protropic. I.e. Baking soda rinse, coconut oil, sometimes Emuaid or emu oil, borax use. I have had the Mona Lisa touch 6-12 months ago too. A little on my diet (cut down on sugar but my vice is wine).
I rarely have itch, cuts or white patches now.
Mentally after working on everything for two years, im feeling a lot happier about the future.... 😊
Kubie samantha1970
Posted
Amazing..really...does a vet ever tell your pet..it's all in it's head.
I've heard of arseholes like this..they are very bad scientists! Whenever I hear anyone with a medical degree tel me its in my head..I run..as far as I can from that person. Happened to my mother back in the 80s. It turned out she needed a hystorectomy.
NO ONE wants to go to a gyno....no one WANTS to feel that needy that they want to pay lab bills and co-pays.
its ridiculous!!
Kubie
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I can be sarcastic/sassy...It's really for entertainment..and venting at the same time.
samantha1970 Kubie
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It's ok! Yes I was so upset if I hadn't of been going on holiday the same day I would've reported the man! I've told everyone who needs a gyne since to avoid him and advised my other doctors of his actions. The evidence spoke volumes. He works in the public and private sector too, pleased I didn't pay any money directly as a private patient or I would've demanded it back. He sat and said to me just because I can't see anything doesn't mean your not going to get cancer down the line. He was the worst type of British doctor I have seen. I think he was so horrid as I had gone to the toilet before my appointment (as most people who are about to be poked and prodded do). I came out and he was waiting by the reception desk for me. I guess I p*ssed him off. I wasn't even late for the appointment time, he was 2 minutes early. I think he decided before I went in he was going to be difficult.
Pollyanne Kubie
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j02359 Kubie
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I think that the key thing is to go to a vulval specialist. I had a dermatologist first and he wasn't nearly as good as my gynae consultant who specialises in vulval disease and has a great reputation in the care and treatment of LS. Good to see so many improvements for you Kubie and for others like Samantha too. Really encouraging. Every best wish.
heather63700 Kubie
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Hi. I'm newly diagnosed LS. Went to see Dr. Goldstein a vulval specialist. He gave me clobetasol which I've been using every even if after a bath. I thought things looked better but just took a look. Things look awfully red inside. I've lost pigmentation. Any idea when things might look better
hanny32508 heather63700
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Sorry that you have been diagnosed with LS. It will take some getting used to. And you went to see Dr Goldstein. He's familiar to many here on this forum.
Just wondering Heather, how much of the Clobetasol are you using each time? I hope you apply very thin layers. What were Dr. Goldstein's suggestions?
?From my experience - it takes a while before LS is under control. What were your symptoms that made that you went to visit Dr. Goldstein?
heather63700 hanny32508
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My symptoms were burning not itching. I also noticed a white film up around the clitoris. Ive lost areas of pigmentation inside the vagina. I also have redness and its sore. I went to four doctors before my dermatologist finally did a biopy which came back negative. I was not convinced so I went to see Dr. Goldstein who diagnosed me visually. He prescribed clobetasol which I am to use every day for one month. Then every other day for one month then twice a week for the rest of my life. I made a mistake of using too much once or twice and I learned my lesson. Less is more. I use a very very small amount.
hanny32508 heather63700
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I encourage you to also brows through the various topics on this forum, for instance regarding baking soda and borax, and taking out most added sugar in your diet, to just name a few.