Don't know how much longer I can do this

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In June last year I was diagnosed with hyperthyroidism and graves disease after a routine appointment with my gp turned into me being rushed up to A+E because if rapid heartrate and abnormally high blood pressure . I was put on carbimazole and propranonal and was sent away with a refural to see a specialist at the hospital. To cut a long story short I've see the speacilist every six weeks since and each time he has altered the doses of my meds but my levels aren't settling there either way to high or way too low. On the last visit to see him he said my levels had shot up againg and the best tying for me would be radio iodine treatment but first I need to be hypo again to receive the treatment safely. I feel like I'm going crazy my anxiety levels are through the roof and im suffering from what i can only describe as a brain fog where im detatched from reality..since June I've put on 5 stone my hair is falling out at a rapid rate I have bald patches at the front of my head I'm 28 years old and I should not be going through this! I'm scared to leave the house I've cut all my friends off because they don't understand me and when I ask the specialist or my gp for help they say "oh its because of ur thyroid " .. I just want to be back to normal I feel like a freak . I've been asked on several occasions if I'm on drugs because I'm acting strange and my pupils are always massive. My speech can be slurred like I can't get my words out fast enough i get ringing in my ears and dizzyness, my body is slow and useless..I'm on tablets for depression and anxiety have been for years but they don't seem to help me at the moment I feel like I'm at breaking point I think about death all the time and get intrusive thoughts I'm living in a knightmare that I can't wake up from I need help and don't know where to turn I've referred myself to a mental health service all I can do is wait

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    Hi Amy,

    I am so sorry that you are going through this. I know it may not seem like it right now, but it will get better!! Once you are able to get the iodine treatment, it will be 10 times easier to regulate your dose and then you'll begin to feel a lot better. Graves' disease is an autoimmune disease which can cause your levels to fluctuate frequently, which makes you go from hyper to hypo. The radioactive iodine treatment will basically destroy your thyroid. Once that happens, you and your doctor will be able to find he right dose that your body needs without your thyroid constantly changing that dose on you.

    I promise it will get better, just hang in there! I'll be keeping you in my prayers!

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    • Posted

      I had extremely bad Graves' disease

      Just over a year ago ... a very long story cut short ... I almost choked when I was told I could get RA IODINE .. which would render me HYPOthyroid for life !

      I decided since it was my immune system that was causing my disease , as is the case with Graves .. that I would treat my immune system by boosting it and nourishing it !

      I took Carbimazole for some months which brought the antibodies by into line and I fed my thyroid and immune system with natural supplements !

      I am now Euthroid i.e. normal !!!

      So it is an Extremely drastic step to advise Radio active Iodine which Destroys the Thyroid and can and does in many instances , cause dreadful health issues .. as many in my family know only too well !! The thyroid is an integral gland in the body and without it and without thyroid hormone replacement, we would likely die..... so it is NOT always necessary to take such drastic action !

      Graves disease can be controlled and the patient can live a normal life !

      M

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    • Posted

      Hi Madge, thanks for sharing your inspiring story. You're right, trading hyperthyroidism for hypothyroidism is no improvement at all. Hypothyroidism is much more difficult to treat and regulate than hyperthyroidism.

      I'm curious what sorts of immune system boosting methods you found helpful.

      Thanks!

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  • Posted

    O my, I remember all those symptoms. I was unable to go to work for 6 months. Couldn't leave the house on my own but had to sit with front door and back door open as I couldn't be shut in. I lived 24/7 On the settee as I thought that if I went to bed that I would die. One of the doctors I saw told me to 'go home have a glass of sherry and get a grip'. My thyroid was under active. My life was a nightmare. Turns out that the fillers in the thyroxine were doing this to me. Within 3 weeks of taking the liquid thyroxine I started to feel normal. Chin up, if you have a good doctor they can help. I changed mine and never looked back. 

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  • Posted

    Hi Amy, do read through the many posts here. You'll find that damaging your thyroid via medical treatment results in the impossible and never ending thyroid hormone regulation. Every post I've read here is that surgery and radiation cause more problems than they solve.

    Check your meds for side effects, as thyroid meds can cause anxiety, as can other meds.

    Also, get yourself to an acupuncturist, trained in Asia. They are great for relieving many symptoms. If you can get some relief from your symptoms, you'll be able to think straight enough to decide what avenue of healing is best for you.

    With thyroid disease, the first step is to make sure you're getting enough nutrition, protein, proper diet. If you aren't getting the raw materials you need, your body won't function right.

    Also do some research on the causes of thyroid disease and eliminate these. They include whiplash, lack of protein, Mercury and bromine toxicity, radiation, stress and many other factors.

    There are some folks who've used high protein diet to get thyroid disease into remission.

    Good luck!

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