Don`t know weather to laugh or cry!
Posted , 6 users are following.
Have been in lots of pain in last few weeks, had steroid injection for quick relief, no help at all. Doctor wrote to hospital to my Rheumaologist....I have had fibro for the last 20 years, so with PMR as well, not been easy. ( Now I`m down to 10.5mg).. Didn`t hear from hospital for appointment, instead they sent "suggestions to my doctor, who has just rung me!
Firstly, and most importantly, the rheumie said, I must get off the steroids ASP.! without DMARDS...take painkillers, possibly tramadol (which I can`t tolerate or any actually because of fibro!) blood tests to look at inflammation....(2 months ago it was 10)
Feeling a bit scare about coming off steroids, so told my doctor it will be a VERY slow method!....
I
Have tried Bowen therapy, but don`t feel well enough to resume at the moment....
I would welcome any suggestions, thank you.....
Meant to say, have had PMR for the last 4 years.....
0 likes, 33 replies
jeanne333 linda17563
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linda17563 jeanne333
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ptolemy linda17563
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linda17563 ptolemy
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ptolemy linda17563
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FlipDover_Aust linda17563
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Does pred actually reduce your pain? At what dose did the pain get worse? Is 10.5mg enough for you at the moment? If you've had PMR for 4 years you know how this all works - and so does your GP obviously. Getting off pred is not the goal - getting to the lowest dose possible is!
linda17563 FlipDover_Aust
Posted
I am stiff in mornings, but it eases a bit by lunchtime...very tired, I then take second dose with evening meal....I don`t leave the house much, and rarely drive....don`t think 10.5mg is enough, but what can I now do! Whenever I drop, I get awful flares....
It seems to me, there are some rheumies that are hell bent on getting us off a drug they put us on in the first place....regardless! Maybe they know something we don`t...
How are you now that you have stopped MTHX, ok I hope?