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Don't like being on methotrexate but it really works for me

Posted , 4 users are following.

shirlee86000
shirlee86000

We hear all kinds of negative things regarding methotrexate I also have had a few side effects but I wanted to start a discussion on it's good side. It really has helped me be pain free, yes my hair has thinned slightly but a small price, all in all it's a wonderful drug, I know it's toxic etc but without it my life would be so different, anyone else agree and tolerate it ok?

1 like, 7 replies

7 Replies

  • maggie15623
    maggie15623 shirlee86000

    Posted

    Hello Shirlee, yes I agree entirely.  I have been on this drug for 6 years and although I do suffer with various negative side effects, on the positive side I am pain free and have my mobility back.  Hearing about other drugs and their side effects, I am happy to stay on the methotrexate!  All the best.
    • shirlee86000
      shirlee86000 maggie15623

      Posted

      Thanks for sharing Maggie I am glad it works for you too, let's hope it continues

  • joyce79244
    joyce79244 shirlee86000

    Posted

    My hair also thinned when I began Methotrexate. I am still taking Methotrexate and my hair did come back...curly!  My hairdresser says that is not unusual.  
    • shirlee86000
      shirlee86000 joyce79244

      Posted

      Hi Joyce

      Mine has definitely thinned mainly around the hairline on the temples, ( a lot of people get that anyway as we age) it does seem to of slowed down now, I guess my body has got used to it. One thing though when I first started on the drug my rheumatologist told me that I need a flu jab and a phemonia one as the immune system is suppressed, I was horrified, so not long ago I got a bad cold, fully expecting it to go to my chest with an infection, I went to the docs they listened to my chest and says a slight crackel and gave me a prescription for antibiotics to pick up the next week in case I needed them, and basically I didn't need them as it went on it's own, I was really pleased x

  • ras98940
    ras98940 shirlee86000

    Posted

    Hi Shirlee,

    I am methotrexate and folic acid free, took 7 a week doctor increased it to 10 a week, but still I kept on using 7, but last year in december 2016 I just had enough of these drugs, I am pain free.

    • shirlee86000
      shirlee86000 ras98940

      Posted

      Hi

      Wow so you came off it, well I have had no problems either with pain since being on it so my rheumatologist has said when I see him in August that he will look at taking me off it, the only thing I have had is a stiff index finger for a few days, no swelling, and a couple of other times where it literally lasted a day then went, I will obviously have to mention this, I am scared to come off it because of it returning, but want too if you get my meaning, I take 6 a week (15mg) and a 5mg of folic acid the other 6 days, I think I would feel better slowly dropping them 2 at a time before coming completely off. So did you just stop? And you have had no ill effects at all?

    • shirlee86000
      shirlee86000

      Posted

      Well I started this discussions just a couple of days ago and I mentioned that my fingers have been a bit stiff on a couple of occasions but didn't last long, but no swelling which is great, well guess what, my middle finger on my left hand started to hurt yesterday and oh my goodness double it's normal size and so painful over night and this morning, I thought things were going too well for me 😒

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