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I had a transphenoidal surgery April 16, 2018. I felt great for about 30 days afterwards and then my symptoms slowly returned but overall, felt 100% better until about a month ago. I started having severe headaches again and my period stopped. My neurologist did a blood test and sure enough my prolactin was elevated (not bad 146). MRI scheduled and my tumor has not only grown back but is bigger than before I had my previous surgery. My scan that I had in December 2018 showed that is was going well and just packing material. My drs. response was that this doesnt make since, my cell division was .3% on my pathology. I have now switched to bromocriptine since cabergoline did not work before. I have a followup scheduled this November to see if it has shrunk. If not, he'll do surgery again then radiation afterwards. Im scared as hell, its now considered macro and is invading my carvernous cavity which is inoperable and somewhat pushing against my optic chaism. Is there anyone out there that has dealt with this same situation? If so what happened and did one med work over the other? Thanks!!
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