DOUBLE VISION AFTER MVD SURGERY FOR TN

Had surgery July 27, 2016 stayed in hospital

Until August 8, 2026, have double vision

Have numbness in right side thight and calf on top of skin.

My doctors P.A, was the only one to talke to my husband it took about 3 days b4

my surgeon talked to my husband

My husband was not told that a muscle was cut in my neck/I was told by doctors P.A., I didn't know any thing about cutting a muscle in neck.

My right thight began to feel numb about 4 or 5

Days b4 I was pushed(2 b released )out of hospital

It seemed to me that my surgeon, and his

P.A., only cared about his MVD. His P.A, talked

To my hubby about putting me in a nursing home, o

Of Course my hubby said no.

Something, I didn't know is that for 2 days I lay

In ICU staring up @ the ceiling seemed I could not

Communicate until my third day. Oh, the nursing

Home discussion was had when I started 2 ask about why my right thight was feeling numb on top of my skin.

When I returned home my whole leg on top of the skin felt numb

(all the way down to my calf). Typing with 1 eye is not good 4 me. I went for my follow up and all my surgeon talked about was his MVD surgery.

I kept asking about him about

Y my right thight and leg was numb/ he said bend, toes, raise leg, make toes like a pigeon, didn't say anything about numbness. I made appointment with him again but I will be seeing his P.A,. On Sep. 19, 2016 his Secretary said he might have time to talk with me quickly.

I had follow up with him on August 11, 2016.

Next appointment is with his P.A, on September

19. 2016. I never told him to cut any muscle on my neck. What was the purpose of that (I think this is Y I have double vision.)

Has anyone had muscle cut in neck I was in shock when I was told by P.A., that the reason I had to take spasm pills was because doctor cut muscle in my neck. I have one of the best insurances

United Healthcare and I had to tell my husband

Because he was not told about any cutting of muscle in neck, heck he was not told y I was staring @ceiling for 2 days. My hubby didn't even know I was staring 2 two days because I suffered a stroke. I am good now but this double vision is awful, when does it stop.

Had to get this awful surgery off my chest, I am

Sorry for Rambling on anout my problems.

I found out I had a stroke when I called my

Neurologist, (he was the one who recommended my surgeon) I called for an appointment he told me to come in the next day. That was after I went to the emergency room and had MRI, because I had fallen early in the morning on my way to the restroom. I had gotten a walker and didn't want to waked up hubby.

I went 2 see my neurological, the next day.

My neurologist had my MRI from the emergency room. This was when I found out I had a stroke must have bn during surgery or after seems no one knows.

Maybe when I was staring @ the ceiling for two days. I dont know if we can mention the hospital, but I was at one of the best hospitals in Oklahoma City. (Integris Baptist Hospital)

I hope no one has these problems that I am having,

I hated this double vision wirst than anything

This is why I wanted to tell my story

Christiana

What is being done for your double vision

Please tell me it has cleared up

Hi Christine1956

What is going on with your double vision,?

Iam suppose to do pencil exercises until I see doctor on September 19th 2016.

Have yours been cured as of yet?

God bless,

God bless us and keep us and give us peace

I had the double vision for 4 months and then it disappeared. I have been to the eye dr. 3 times and they kept saying it takes time. I have complete numbness on the left side of my face. I put chap stick on all the time. It has been a long slow recovery for me. I had my surgery 6/15/2016. I just started driving again. My nose runs on the left side all the time. I get no answers just told wait it takes time. My mouth is always dry and I have headaches every day. They found a vein was looped around the nerve several times and they had to cut n it then burn it on both ends. I am trying to be patient. Hang in there each case is different and the results are different also. Kathy F.

Hi Christina.  I see this is an old post, but I'm in week six of the same problem.  I had my second MVD surgery October 31st.  I'm curious if the problem finally went away for you?  I hope so!  Thank you!

I had meningioma surgery 1in 2014. Location was bad, near brain stem. Most was removed then radation of the remainder. The operation was a success in all ways except nerve damage. I was left with numbness over half my face. not much taste anymore. Muscle weakness around left side of mouth makes speech more difficult (slight slurring) when I am tired.

The worst of all is double vision. Inclusing torsion (one eye sees at an angle so the two vision gazes are not side by side. One is at 45 degrees). I was told to wait which I did for 12 months. Not much improvement. I finally had surgeries on both eyes to try for correction of double and torsion. Results were somewhat  better vision, but still dizziness and much difficulty navigating through an average day. Prism glasses help with straight ahead gaze (driving and running) but not with other normal vision during the day.

The lesson is this. Waiting for nerves to heal takes a long, long time (years not months). In the end double vision (with torsion) is not correctable by surgery.        

Hi Christina,

My name is Kathi, I had endoscopic MVD surgery May 2012. The surgery was a success, but i had post surgery cranial swelling and double vision in the left eye. I was 49 years old at the time of the surgery.

Unfortunately, the double vision, although it has improved slightly, not enough to go back to driving comfortably, sometimes the double vision makes me very dizzy.

The stroke & the damage it left after the surgery compromised my balance, so I'm not 100% the person I was before the surgery.

I was VERY lucky though. I am alive. The TN is gone. There are other challenges, I admit & I fight those daily, but I am adjusting to my sight, my balance and accept what I can't change.

I hope your double vision has improved.

I hope you are doing well.

I have been down this road. The worst part is the torsion. This means one eye sees things at an angle as well as double. It is very hard to treat. I've struggled with it for almost 3 years now, and that is after two eye surgeries. I will explain more if you wish. The standard doctor answer to every patient with this condition is to "wait and it will resolve". Well, I'm sorry to report that it does not often work out that way. None of them have double vision so they have no idea how debilitating it is.