Doubt my diagnosis

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I was diagnosed with Chron's in June, ever since i have doubted my diagnosis. Reading how others are with Chron's, i just dont feel that bad, i have minimal pain or discomfort, 1 mushy bowel movemet in the morning and no blood. My colonoscopy showed ulcers in my ilium, i have been on budesonide which gave my constapation and headaches, my dose is now reducing. Going back to the consultant in 2 weeks and will mention mu doubts, anyone else in the same boat?

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  • Posted

    Same here and I am still in the process and not sure, the internet says any inflamation is IBS. But I do not have any classic symtoms of Crohns i have acid reflux mainly. I would take a second opinion if i was diagnosed with Crohns before taking and meds. The meds sound nasty. 
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  • Posted

    Yup totally agree with you ! I was diagnosed at 13 (now 27) - at the time my mother was not keen on me on the meds, as the meds that were going to be prescribed had a side effect of leukemia so we took a natural approach and saw a dietician who changed my whole diet. I was on the diet for maybe a year before slowly coming off it. I think I was misdiagnosed ! I definitely think i have IBS or IBD as some things can just go straight through me but I don't think its Crohns.

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  • Posted

    Hi Colin, I too doubted my diagnosis, all I had was a vague pain which wasn’t persistent, had all the tests then asked for a second opinion as the GE only said it was probably Crohn’s because he couldn’t find anything else. Again I was told it was Crohn’s, never heard of it and after researching i didn’t think I was in the correct age range for it to start up. Took 4 years before I started getting regular flare ups and it was only then I accepted I had it. Even though I am 5 years on from a small bowel resection which has given me remission I feel lucky that my experience has been mild considering how bad it can be. We can’t see what is going on inside us and it is easy to doubt we have it when we are otherwise feeling well so do mention how you feel about it to your GE, none of us like the fact it is a chronic disease which cannot be cured so I think a bit of denial is only natural. Hope your consult goes well.
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  • Posted

    There are different degree's to which a person is affected by the disease. Some are very sick and look it and others have very mild cases. They keep telling me I have UC, but I have symptoms of Severe CD. I am low on just about every vitamin known to man and my last two biopsies showed undetermined IBD as they couldn't tell if it is UC or CD. That said it all to me. My doctor classified it as severe and I still am not as bad as some I have met, so be happy that you don't feel that bad, because it can get very bad quickly. Mine went from mild to severe in a matter of a couple of months and I lost 45 pounds of body weight in 3 months. I have been like this now for over a year and a half. It is a terrible disease that you shouldn't underestimate, as it can cause complete suffering in no time.

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  • Posted

    Hi. Me and my sister have Crohns. I was only recently diagnosed so I am still suffering slightly but my sister has had it for almost 3 years and she does really well 90% of the time. The rest of the time you would never know she was ill and she hardly does herself! However you could be at early stages of crohns and if so then you're lucky you caught it before it got worse. Back when my first symptoms started I just thought I'd eaten something funny and that's why I had diarrhoea as it was on and off and some days I was fine, others I wasn't.

    However do mention this to your doctor, but I'm sure they know the signs and they could well have caught it early smile

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    • Posted

      I thought it was food poisoning or an infection and not chron's, no family history of it, only my mother has diverticulitis. But yes if it 100% is chrons then im grateful im not currently suffering as much as i have seen people suffer from chrons.

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