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Dr determined I don't have PMR, I'm pretty sure I do; who's right?

Posted , 11 users are following.

DebbieHurts
DebbieHurts

My dr thinks it's been too long for me to still have PMR.  We are trying to find something else it might be.  I do think it could be fibromyalgia, but why does it hurt so much when I try to reduce the prednisone?  I still take 20 mg and I know it is terrible for me.  Already had 2 back fractures and one eye is developing a cataract.  I'll take the dead slow method to her to see if we can try that; I should have tried to keep at it long ago, I guess.  I am very unwell, using a walker, and hardly keeping up with my life.  

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  • DebbieHurts
    DebbieHurts

    Posted

    Thanks for all your replies.  Your support is priceless!  There seems nobody I meet knows a thing about PMR or what might be wrong with me, yet I can come here and feel like I'm not alone after all.  Tomorrow I see my main dr.  I want to tell her about the worst pain I have which is around my lower waist and back.  It almost feels bad enough to be another fracture, but then some days it calms down a little, so I don't think it is a fracture.

    • Porgi
      Porgi DebbieHurts

      Posted

      I have terrible pain in my ribs and back but a recent x-ray shows nothing. I can't understand it either. Gp says calcium level okay and won't send me for another dexa scan. It's got so that I think no one , not even family now believe me when I say how bad it is

    • EileenH
      EileenH Porgi

      Posted

      My rib pain is almost always due to muscles and myofascial pain syndrome...
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