Dr. Says I have unilateral vestibular loss anyone else have this ?

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After 2MRI's one with contrast , hearing test and a bunch of others test that's what dr. Says I have. Now I need to retrain my brain to help with the unbalance in my right inner ear. I have sereve hearing loss in right ear and left is normal. I drive big trucks so I am off work for now till I can get this under control. I've had one time with dizzy spell and throwing up but mostly just lightheaded. Feels like ur just wobbly, for now the ENT just making me walk while looking from side to side. Anyone else with this kind of problem ? Need advice do I go somewhere else for more info , dr wise  or what? I know it's gonna take time to heal , but I need to get back to work.

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  • Posted

    Hey there I was recently diagnosed with vestibular nerve damage due to an inner ear infection a while back. I am in therapy and have been going two weeks twice a week and I do feel a difference. I also have the feeling of unsteadiness and lightheadness. No spinning since ear infection. I am also off work since can't stand for long periods of time. Good luck with your recovery. I am also seeing a tmj specialist and an Ent specialist in Dec.
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  • Posted

    Hi Ray, ¯\_(ツ)_/¯

    Oh, Yes that is exactly how I am, 'tho I do not have hearing loss. I have unbalance for 3 years, fortunately I am retired. You need to do the exercises seriously for the first year because that is when most of the brain compensation happens.

    Google for 'balance training exercises for vestibular rehabilitation' (mostly for eyes, walking, balance, and ball stuff.

    Sounds as if you do not have positional dizziness, but it would not hurt to look at BPPV exercises, leaning and rolling.  Educate yourself all you can.

    The doctors have not helped me, tho' I go to vertigo specialist, otolarygologist.   His report reads, come back next year.  He did consider killing off more of vestibular equipment with gentamicin,XX  or looking at migraine dizziness. XX  sorry.

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  • Posted

    Hi Ray. I have been diagnosed with vestibular hypofunction, damaged vestibular system basically by my Neuro-otologist there was no known cause for this to happen to me. He says that there is no cure and that it is indeed the brain that has to be retrained in balance through excersises. I do not have vertigo or nausea, I do have imbalance hearing loss tinnitus and eye movements like looking at a very unsteady film. It is all very frustrating and horrible and taking so very long. I do hope you feel better soon.
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  • Posted

    Hello to all in this forum.  I have been reading these discussions for a while now, and have learned a few things - or at least had them made more clear - by other people who experience these issues.  They seem to be better informed than most doctors.  In my own case, all of these problems started up shortly after I had the flu and my eardrum perforated, I guess due to severe congestion.  Shortly afterwards, I began having dizzy spells, including a few instances of vertigo.  I have see 2 ENT's, a Neurotologist, 2 Neurologists, 2 GP's, an Allergist and 3 PT.s

    I have had an MRI to rule out a brain abnormality, and gone through a VNG test to rule out Meniere's.  I also have problems with discs in my neck and congestion and hearing loss.  I believe that I am dealing with one or more of these maladies:

    Cervicogenic Dizziness, Viral Labyrinthitis, and Secondary Endolymphatic Hydrops.  I would suggest that anyone who can't seem to be diagnosed read up on these topics.  I do appreciate that others take the time to explain what they're dealing with, and what has or hasn't helped them. 

    I wish everyone the best - life is too short to feel lousy!

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  • Posted

    Hi---Did this happen to you suddenly?  DId they tell you the cause?  For 10mos I had dizziness & I did the therapy.  When I stopped the therapy dizziness came back & I also had MRI but no real diagnosis.  After the dizziness just went away I was left with feeling off balance.  Some days are better than others.  I went to so many doctors with no specific answers.  I never threw up but could feel spacey.  I was told it would go away & it did but it took a long time.

    Can you get temporary disibility?  I feel for you & is a terrible thing.  Hope you get better soon.

     

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