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Hello my name is Matthew. I began having weakness in my limbs 4 months ago. I then experienced an inflamed esophagus, stomach ulcers, and an inflamed colon which was diagnosed by an endoscopy and colonoscopy. I have last 25 pounds since this all started. I am in pain and weak nearly all day everyday. My fingertips on my hands have become swollen and I can see veins that I wasn't able to see before. Just about a week ago I began having pulsations and pressure in my throat, ears (popping) and sinuses. I have headaches that are usually in the back of my head. I also have a pimple-like rash all the way down my right arm. I have severe pain in my kidney area as well. Anyways, I have had MRI's/CT scans of my head, neck, chest, and abdomen 4 months ago which all came back normal. I have seen a rheumatologist who ran blood work on me and said it looked good other than elevated enzymes in my liver. She now says based on my bloodwork I do not have vaaculitis or other auto immune diseases and she diagnosed me with fibromyalgia. I am not convinced I have fibro, because I have been on medication for it for a month and my symptoms have just become worse. I feel helpless because I can't see another rheumatologist for another 3 weeks and I am becoming much worse. What should I do now? ERs are useless for me because all they do is run more blood work then send you home. Does this sound like vasculitis to you all? And are angiograms helpful in finding vasculitis? I am worried it is attacking my GI tract and my liver. Now that i am having severe pressure/pulsations with from my neck up with headaches i am worried it has spread there as well. Thank you for your time.
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