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Dreadful side effects

Posted , 5 users are following.

Eileen_Doris
Eileen_Doris

I am on 75mg patches for over a year now and agreed, they do not last the 72 hours. However, the side effects are dreadful. Firstly, there is the sweating. I was with friends the other day and people who saw mw were passing comment to each other about the state I was in. The perspirations was just pouring off me and my hair was soaking as well as my clothes, yet in seconds the gooseflesh was standing on me from extreme cold. This just goes on all day long. My husband complains about me jumping in the bed like a fish and I am proned to cramps in my legs while in bed too. When it comes to getting up I find it so hard. If I do not get up immediately I awaken I am sound asleep again. I could sleep the clock round. I can be edgy on it and would go into tears for very little. My 'get up and go has got up and left'. I get something like panic attacks where I am desperate for cold, cold water and think I will never get it in time before I will die. It feels as though I could do with oxgeyn near at hand to partake off when these great sweats take over. But, which is worse? This or the severe pain? I really do wonder at time.

Please! does anyone else get these severe sweats and what do you do to cope? A cold facecloth is a joke. More like a dousing in ice cold water and then immediately find me hugging a hot waterbootle because I have turned so cold yet there is still the sweat running of me. Please reply iff you have any good ideas or am I a freak?

1 like, 8 replies

8 Replies

  • shelley9
    shelley9

    Posted

    Hello, Sweathead here, it literally drips off of my hair and the sweat runs down my face and my entire body is covered in a film of moisture. I get in front of a fan but have to cover up because all that sweat makes you cold when the fan blows on you-it is a weird feeling. In the summer I have to take cold as I can stand showers-first on my head to stop the sweating. It is horrible but not as horrible as my pain was or could be if I didn't use these. I am on 100 or 125.

    Once my husband and I were up at our little deer cabin and we were in the bed and I had one of my power surges-it woke my husband up-he said the heat was radiating out from me like a heater, he asked how I could stand that. Well, I still have pain, not real bad and I have also gone too long without changing my patch and paid the price. Anyway, you are not a freak you are just experiencing one of the side effects of the drug. My mouth sometimes get so dry I cannot swallow or hardly talk, I don't like that either but it is better than that pain.

  • Annia65
    Annia65 Eileen_Doris

    Posted

    Eileen, I am 73, was on patches which went up to 75, I couldn't take it any more & stopped cold turkey, the WRONG thing to do. The sweating has stopped, so has the dry mouth & twitches. I don't know if I can take the pain, I have total arthritis specially in my lower spine where I had surgery 30 years ago. But I do feel better today. Good luck.
    • Eileen_Doris
      Eileen_Doris Annia65

      Posted

      I have reduced to 50mg and it has meant going cold turkey too as the GP did not allow me to reduce gradually. It was dreadful but I stuck it out and did am glad I did.  I would like to reduce further but am a bit of a coward but I know I will reduce and finally come off the patches

       

  • drewwoody
    drewwoody Eileen_Doris

    Posted

    Its taken a year but here you are everything you have put here are the same as me

    I hope by now your feeling better I'm sorry I don't have any ideas I just wanted you to know your not alone

    • Eileen_Doris
      Eileen_Doris drewwoody

      Posted

      Thank you for your comment and encouragement.  I know that I will come out of this a better person if I just got off the patches. It will take time but I will get there.  Why does the medical profession not tell us of the severe side effects and how the patches slow your main organs away down that the do not work nearly so well.  That is where the breathing difficulties and many more come from.

  • drewwoody
    drewwoody Eileen_Doris

    Posted

    I'm now coming off the patches as I can't take anymore of the sweats ,I have no life at all don't go anywhere because of them my advice stay clear of the patches if you can I'll cope with the pain good luck all
    • Eileen_Doris
      Eileen_Doris drewwoody

      Posted

      Since I posted first I have now had to go on oxygen each night now.  I got my machine 3 weeks ago. It is not easy to wear as it straps twice around the head and down over the nose.  It is great from the point of view that I have fresh 'air' but it is very uncomfortable to wear. As I alluded to in previous posts, the patches slow the organs down and I have now proved that.  Just recently I have been told I have a type of COPD yet I never smoked or was living/working where there was passive smoking.  The lungs are very sluggish.  The problem with my bowel is chronic.  Tests have shown I have a bowel that has slowed so far down it finds difficulty in functioning.  I have to take medication for that and will admitt that several times I thought it was emergency hospitalisation needed.  Not funny!!!  When they were doing tests for my low oxygen level the found that my heart was also beating slower than normal and stopped/or missed several beats at a time while I slept.  This machine forced me to keep breathing while I sleep. This all started after I went on the patches.  I am on them now about 6 years.  It is only when you prove it for yourself that you believe what others tell you.  A lady told me she believes that is what killed her daughter.  She was on the patches a few years and her organs started to slow down.  She died and was only aged in her early forties.  There was  no other cause of death.  I am still in my fifties and feel that I should be living a better life.  That is why I want to come off the patches. 

       

  • simon27470
    simon27470 Eileen_Doris

    Posted

    Hi Eileen im th same ive severe back pain due to spinal problems , everytime i go out i alo carry a small facecloth sometimes im sa sweating like a racehourse where steam comes off my head im also very embarraced , but my problem ismy atch stopped giving me releif an i ould get relief so i doubled up on my patches so im now wearing two atches 72 on each arm and i getsevere burns on my skin , my problem is i want to come of them or ease down th dosage but as soon as i take them off within an hour boom the pain is terrible so then. Put the patches back on but then i have a change over eriod of 48 hrs here im all over the place and cant settle , i recently spike to a temp doctor at my surgery about my concerns he said just ake them off and dont use them is she really that thick, she never even read my history so thatshere im at today ,

    good luck simon 

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