Posted , 4 users are following.
I have been struggling with PHN for 10 years now. My pain in on the left side of my head. I went to see a new neurologist and we discussed a drez procedure. I was wondering if anyone on here has tried it? If so any luck?
Thanks
0 likes, 9 replies
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lisa65143 carsha
Posted
i will look it up.
dear crasha
we are in the same torture chsmber
i have ph. For 6 years in my right side.
if it is a nerve ablation I have read that the outcomes are not encouraging
i hsvr fewef attacks now but my n
head still feels like i am in a bees nest
lisa
lisa65143 carsha
Posted
ohn in my scalp etc the worst place
lisa65143 carsha
Posted
i wouldn’t do it
iit Is iffy
i don’t snyone messing in my head
lisa65143 carsha
Posted
they don’t go into your head
it is te spinal cord
i wouldn’t do it
you mean your pain has not subsided a teeny bit at a time
mine has
i hope yrs will
what about medirtstion, legal Mary,
tell me more about yr pain
even simple ice packs help me when I am going nuts
sue2910 carsha
Posted
10 years...I can't imagine. I would be leery of anything that messes with the spinal cord or nerves directly, and even then, would ONLY agree if the doctor has performed this a LOT and is willing to let you talk with patients who've had it done...the good, the bad, the whatever.
I've had right-side pain for four years, and FINALLY (two weeks ago) had good results with acupuncture from a certifiied acpuncturist/Chinese medicine specialist. I realize we're all different, and our bodies are all different, but acupuncture provided more relief in one hour than anything I've tried: massage, Lyrica, chiropractic, neurologist visits, etc. I told someone the other day, my new "healthcare team" seems to include my massage therapist, my chiropractor and now my acupuncturist. They're the only ones who deliver consistent and positive results--and don't think my body needs more drugs or a few invasive procedures.
GOOD LUCK.
babs99203 carsha
Posted
It appears to be used in only very specific types of nerve damage. Many doctors offer options as they think they can help, or they're just not as ethical as they should be. Do you have TN? Or is this definitely PHN? Do a LOT of research before considering ANY invasive procedure. Most of them have limited success in treating PHN.
carsha babs99203
Posted
My PHN is in the same area that TN patients have pain. Yes I know for sure it is PHN. I had shingles for almost a year in the location. It was a nightmare. I don't know what else to do. I can't live like this. I am only 37 and I have tried everything else, Medication, SCS, Nerve Shots, Acupuncture, P-Stims, etc. This seems to be the only thing left to try. I trust my doctor. He has done several of these surgeries before and has offered to reach out to previous patients for me to speak with before I decide.
lisa65143 carsha
Posted
I completely agree.
If you use PUB MED a free National Libtrary of Medicine database you will see that the outcomes are chancy.It is too invasive ''
WE ARE not doctors,, but we actually know more than they do ,
they dont suffer like us
and they use these techinqiues for people mainly with back pain.
sue2910 carsha
Posted
Make sure the doctor/surgeon lets you talk to patients who've had both good AND bad results. Often, they provide access only to patients who'll say good things about them (egos, you know). Also (a tip I picked up as a newspaper health writer), call the nurses' station at the hsopital where he/she practices and ask THEM. They see what happens in the hospital, and they know who the good/bad doctors are. Sometimes they'll talk, sometimes they won't. But it's your body, and it's worth a try if/when you get to that point. Ask them if THEY were considering this procedure, which surgeon would they have do it?
Get as much information as you need....all points of view, all possibilities.