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I'm new here and joined because I want to (hopefully) find out I'm not the only person with CFS/ME/Fibro who has had to give up driving due to feeling/being unsafe.
I've been ill for 10 years since having PVFS from glandular fever. I had a massive relapse in 2010 and haven't been able to drive since. The way I feel when driving, and even being a passenger is terrifying. My brain and eyes don't work together. Stuff is moving all around me and I'm powerless to respond. I just feel totally confused about where I am in space and time, sounds really odd but can't think of another way to describe it. I feel dizzy and off balance all the time, basically I constantlu feel drunk! It's awful. I've lost my independence. Worse still as I can't cope well being a passenger my husband shouts at me as I am contantly bracing myself for a crash and shouting watch out, thinking that every car heading around a round about is going faster than it is because my
judgement is gone. Basically I'm the worst back street driver ever! I hate it! But my body is just unable yo comprehend what's going on around me and is so sensitive to every tiny movement. I feel like this when just walking around as well - very off balance and everything swaying, my eyes don't focus on things properly as I move.
Please tell me I'm not the only one who
feels like this?! Many thanks, x
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