Driving me insane!!

Posted , 11 users are following.

Ok..... just an update on my condition, all started in october severe vertigo attacks room spinning and stuff......Saw ENT specialist basically no good so i asked my gp to refer me to an nuero ocologist in london which he did had various test done and was diagnosed with vestibular neuritis this brings me up to now so here goes

I have had no severe vertigo since December but have not been right since .......... some days i feel good had a few weeks where i felt i was over it completely then the last few weeks feel like ive gone back 2 months very light headed foggy head feel like ive got a rubber band around the lower part of my head and i dont know why this is happening is it all part of this illness or have i got BPPV back again im so fed up with this that im becoming depressed with it. Feel like i need to blow my head up to cleasr all the thick foggy sensation.

im going for some VRT soon but from what i can gather there very hit and miss.

I just need to know whether wham im feeling is normal or have i got something else as i dont really suffer from any balance issues .

Any advice or personal experiances then please post as im feeling my life is over as i used to know it

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  • Posted

    Hi Steve

    Sounds like what I had just seen a neurologist yesterday and said I have migrane with vertigo ! Could it been the same for you ??

    I have never had sore heads ect I got tablets as its classed as middle ear only took so far and I feel fine ! No dizziness or ligh headedness ( sore far )

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  • Posted

    Have they taught you the Epley Maneuver? It's helped ease my symptoms. It's still there but much less intense and fewer episodes per day.
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    • Posted

      yes had that done twice in December like i say no room spinning vertigo but not sure if i have some crystals still floating around not quiet sure how BPPV works .....is it always room spinning or can i just cause general dizziness?
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    • Posted

      The Epley Maneuver is a quick series of moving your head in certain directions and holding each for a minute or so. You have to know which ear is the bad one, then do moves in the proper direction for that. My GP told me about, immediately thinking I had vestibular Neuritis. I tried doing it, but I also had my physical therapist put me through it twice to make sure I was doing it exactly right. I've seen gradual improvement, almost at 90% or more. It DOES happen from time to time, but I've noticed it's mostly when I'm looking up or turning to one side quickly.

      You can find it demonstrated on You Tube, although the man doing it said you'd be cured after one time using it. Not so. But still I believe it's helped me. Now you have to know that while you're doing it, it will induce spinning or dizziness. But when you're finished, sit on the side of the bed for a minute, it stops.  My Physical Therapist and the internet said that we're trying to coax some calcium crystals that have moved out of one side of the ear, back into the correct side. Others say you're "retraining" your balance factors.

      I've also read and heard from PT that the Epley is the best one, but there are 2 others, Daroff and Seminon (or something). It's possible one of the others would work, but I believe the Epley is best.

      My doctor gave me meclazine for nausea and dizziness. It's lilke Dramamine but doesn't make you sleepy. I've taken only a few times; can't say if it helped or not, but it certainly doesn't hurt.

      By the way, I do get migraines and have trouble sleeping, always. But I have special pills for the migraine (Imitrex) and I've started using Melatonin to get to sleep. It works and is not addictive. I just have to check with my GP if I can take it indefinitely.

      I hope you improve very soon. Even though I've improved immensely, I'm not perfect yet. So I'm keeping my specialist appointment at the end of the month. As someone said, they have to rule out certain things and then, I think, they just narrow it down and give a diagnosis. My personal opinion is the VN  Labyrinthitis and BppV all have the same symptons, so the Epley is used in all.

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