Dropping doseage

Hello DD

Pleased you are doing well and managing to reduce I feel the only way to go at this is to have an open mind if it doesent work you go back up for a while

I have just got to 2.5 and after my blip last year I have taken 2yrs 6mths to get there but ( fingers crossed ) feeling good !!

Yes this return to winter isnt nice This time last week people were out in T shirts and flip flops ! now its winter coats again !

best wishes

Mrs G

Devonshire Dumpling has the two years gone quick for you ?

Mrs G I see you are 2 1/2years has yours gone quick

Hope you both have a great weekend and are feeling well

Hi Sparkin

Well the beginning of last year felt a very long time when I ended up going from 4mg to 15mg and suddenly the whole of the last years reductions were gone !! Coupled with really bad winter weather and being inactive was horrible and felt endless

I am heading now to 2mg in my new slow way I am useing but off on holiday in a week and last year at the same time I was on 10mg so thats great and now I am managing to do more of my normal activities so thats good

last years blip taught me some patience with PMR as when i had it before I went from 20mg to 1mg in a year and just maintenance of 1mg for a year with blood tests to check nothing was happenning and I had no blips at all

It would be a nice thought that by October ( 3 years ) I would be off the steroids but I didnt realise you could get it twice so I wont relax in case there is a 3rd time !!! We havent got anyone on here whos had it 3 times so I dont want to be the first !

best wishes

Mrs G

Hi Sparklin, I think it depends what sort of day I'm having as to whether it seems like two years ! :?

Some days it feels as though I've felt like this forever, but then when I think back to the staying awake all night streaming wet, hardly able to get up the stairs and unable to turn over in bed, it can seem a lifetime away.

:lol:

Two weeks now that I have been alternating my daily dose of 1mg and 2mg, and things seem to be OK. :P

Mrs G, hope the sun has returned where you are, lovely here today, must make the most of it though. Hope your reduction is continuing well. :P

Best to all, DD

DD I think the mistake i keep making is trying to get down to quick when I should be thinking that the preds keep the pain at bay. Not very warm here to day so just had a lazy day doing nothing

Mrs G when I first got the PMR in Nov my daughter who is matter of fact said to me. Come on mum you have it now and will have to adjust.

I was also shocked to find that you can get it more than once. Perhaps the Pmr just goes to sleep for a little while then wakes up on us lol