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dry bronchiectasis

Posted , 6 users are following.

pamela15262
pamela15262

Diagnosed with dry bronchiectasis 8 weeks back. Hospitalised for a week. Spent 3 more weeks in bed, anti biotics for 10 days, ventillion, and symbicort. I continue to have bouts of exhaustion, spending most of my day in bed. Continued tight band across my chest, escalating into servere pain centered and radiating across to the left, and shortness of breath. can anyone help me understand?

2 likes, 6 replies

6 Replies

  • trish40354
    trish40354 pamela15262

    Posted

    Hi Pamela,

    Welcome to this site.

    I am new to bronchiectasis, diagnosed in May this year.  Personally, I am still coming to terms with having it! 

    I had been ill from Sept 2014 to March 2015, constant chest infections, lots of pain in chest/shoulder and was told x-rays were all clear. I finally had a ct scan which showed bronchiectasis middle and lower lobes of right lung.  My symptoms vary day to day, some days exhausted with a tight chest other days its more manageable.

    The best thing for me in "controlling" things is regular clearance, lots of water and cutting down on dairy.  I also take vitamins, preobotic tablets as suffer with indigestion now which causes pain in chest/shoulder! I also have smaller meals as my body copes with food better.

    I have read so much about bronchiectasis (knowledge is good!) and decided that I had to get some control with it.   I have seen a respiratory consultant, had two sessions with a physio who showed me how to use my accapella device, which helps with my breathing issues.  I also have antibiotics at home which I can start immediately I think I have an infection.  I also have sputum pots at home to ensure I get a sample into the docs immediately.  

    You are really going thro it and do hope things improve for you very soon.  Did they say what your severe pain was? Where are you at with seeing a resp consultant, physio etc? What other support have you been offered?

    There are lots of wonderful people on this site who have helped me so much with answers to my questions. x

    • pamela15262
      pamela15262 trish40354

      Posted

      trish thankyou for your help here, when I can get someone to even explain what is exactly dry bronchiecasis i will be in a better place. i simply do not understand, i have not yet seen a specialist. i went to hospital with huge tempreture, shorness of breath, chest pain, including pnumonia, and the worst possible migraine ever, it caused blindness for over 24 hrs and temp. paralisis. i am constantly tired out, every day i have chest pains. i just need to find someone to explain what is dry bronchiectasis, ( there is absolutley no sputum) as everything i read is wet brochiectasis. i pray someone out there with this type is out there and can help me.
  • trish40354
    trish40354 pamela15262

    Posted

    Hi Pamela,

    You def need to see a respiratory consultant, also essential you see a physio.  Hope your doc has this in hand!  As far as I know, dry bronchiectasis produces little if any sputum. Any sputum on the lungs is incredibly difficult to bring up if you suffer with dry bronchiectasis. A respiratory physiotherapist would be able to help you with this.  Do you use a nebuliser?

    Hope you get the answers to your questions. x      

  • Stixlabushka
    Stixlabushka pamela15262

    Posted

    i find coughing a lot just depletes your energy levels.

    and if your lungs are working overtime they are using more energy too.

    rest, water and diet is your best bet.

    unsure of your dry bronch?!?!

    mine is moist and wet and constant clearing of airways.

    i have found chinese medicine works with coughing control and boosting lung immunity. i get it once a month with herbs - ye they are revolting but they work.

    you also need to attempt a little exercise.

    a common side affect of lots of coughing is bronch.people just having a cough for 6 months is not normal, thats when they see someone and it can be too late.

    you may need a stronger steroid inhaler to stop the coughing.

    try and see your specialist asap. keep a diary so you can show them.

    breathe well

     

  • janet24
    janet24 pamela15262

    Posted

    Hi Pamela....I know you posted here 2 yrs ago but I too have 'dry' bronchiectasis...

    I was diagnosed Oct 2016 and struggled until around April. Since mid Oct this year I've been really unwell again...courses of abs, steroids and now waiting for a new CT scan. I'm thankfully I have a good respiratory consultant and am now under the watchful eye of a respiratory nurse who is getting me an appointment to see a specialist physio. I've just been prescribed a nebuliser as my breathing is apt to go out of control fairly often.

    I really hope you've got some help too...how are you doing?  

  • maica314
    maica314 pamela15262

    Posted

    Hi pamela and trish,

    been researching online abt dry bronchiectasis and its frustrating coz I couldnt find any.

    Was diagnosed with dry bronchiectasis 2017. Didnt have any phlegm and I coughed up blood for the fist time (1/2 cup) I was hospitalized and got discharged after 8 days they were having a hard time figuring out where the blood came from. Then they saw the xray and scan and it shows dilation of airways. Was informed I can go back to normal activity like exercising and stuff.

    After 3 years, it happened again without warning. But from what I remembered I got a flu 2 weeks before it happened and I just took some cough meds. Doctor informed me that should I experience coughing/flu like symptom I should get a check up.

    From then on, everytime I feel like coughing because there is something in my throat, I restrain my cough. Im afraid everytime I feel it because what might come out is blood again.

    I couldnt get more info on this sickness, like I dont have any pleghm at all and I dont know when blood it will come.

    Pls share your experiences, like how to prevent it. Whats triggering the hemoptysis. i dont have any maintenance medicine except vit c 1000g.

    Thank you

    maica

    35 yrs old

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