Dry mouth for 8 months! Could it be Sjogrens?

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I was wondering If i could ask anyone who has been diagnosed with Sjogrens a few questions regarding symptoms, diagnosis ect. I would really appreciate your help 😊 (sorry if this is a bit long!)

I am a 21 year old female, I am not taking any medication what so ever, drink MASSES of water and don't drink any caffeine or alcohol, (the thought actually terrifies me how sad is that ! 😂wink

I have had an extremely dry mouth for 8 months now to the point where I feel like I'm choking its that dry, I get mouth sores, and occasionally my mouth even bleeds its that dry.

I have had a number of blood tests done..diabetes, auto immune diseases, thyroid, vitamin deficiencies ect...all to have come back clear.

I have had my eyes tested and the optician said they are fine and have an adequate amount of moisture in them. My eyes fortuneatly feel fine (for now anyway)

However, my saliva came back perfectly for a whole week in may! I have no idea why this happened or why it stopped but it was a very bittersweet week 😢

I have been referred to see a head and neck specialist to hopefully get to the bottom of this

Anyhoo! My questions where:

1) Can you have dry mouth without dry eyes with Sjogrens?

2) What happens when you go and see a head and neck specialist and what tests do they do?

3) If it was Sjogrens could my saliva come back perfectly for a week and then just go again or does this indicate its probably something else?

Any help at all would be really appreciated 😊 x

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  • Posted

    Hi I have had diagnosed with as for 24 years for the first two years i had no Silivia at all I drank heaps of water as well one of the reasons I never started on medications was one reason is medications can cause less siliva in your mouth it took me two years to come right .And my mouth is moist most of the the time except on a very hot days I am more thirsty and I still do not take medication except for vitamins and one sleeping pill at night I know that it was really hard for me the first two years i just would take one day at a time take care chrissy
    • Posted

      Thank you for relying Chrissy. Do you mind me asking what you did to make your mouth moist again x

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