Dry, stinging, bloodshot eyes for 2-3 months

Posted , 13 users are following.

Hi guys, I am quite new to this but at my wits end of what to do about my eyes. Earlier this year, I noticed I was blinking a lot more than usual but it wasn't having any negative impact. In the summer I noticed the blinking getting worse and then I went to the optiician who said I had moderate dry eye disease. She recommended lubricating drops. Nothing was improving and I went to another optician who said I had Blepharitis. He recommended a warm eye pad and regular cleaning of my lids. This hasn't improved things either. I went to my GP who confirmed the blep and put me on a 4 week course of Deoxycycline. I've been on them 3 weeks and guess what, no improvment! It's affecting me quite negatively, have to wear my glasses all the time (previous wearer of lenses for 14 years with no problems). I'm not wearing eye makeup either incase it exacerbates my symtoms. I hate not being able to look groomed, sorry if that's shallow! I'm interested to read that it could be a candida overgrowth, I have suffered fungal infections before. I eat quite well, but suspect there might be a little to much sugar (alcohol etc). My eyelids looks a little red and slightly swollen, my eyes constantly look tired and a little bloodshot, this is worse during the week when I am working at a screen. Any advice at all? I am trying to eat more Omega 3 in my diet as well because I've read this might help. I suspect if it is candida that the antibiotic will be making me worse! Any feedback much appreciated xx

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  • Posted

    well i'd definately go for the diluted bay shampoo then . When i took my prescription into our local chemist their stockist said that one of the special cremes or drops wasn't due to have another batch done for while . The lady chemist then printed off what her chain of chemists had to say on the bleph' subject , about 5 pages , i'll try to find it , but anyway it definately supported the use of the baby shampoo solution . makes sense , doesn't sting your eyes if touches the eyeball . i'll get back to you if I can find the relevent sheets of paper .

    Another bit of help if you're on the computer at home alot , If you use chrome evedently there's a lttle program that can give the screen a coloured  " hue" to make it easier on the eye

  • Posted

    Hi davina6

    I have read the posts and i used to use the baby shampoo 3/4 times a day it did nothing for me.I have had it since 2003/4. but now i use wet ones the sensitive ones light blue packet (uk). I had red sore and itchy eyes i was told you can still wear make up i did not wear it for a few years as it used to make it worse.I did wear for special occasions and when i went out just not all the time.If you buy throwaway wands but do not double dip in mascara the one you are using i would throw it away and but new. If you want to know more look on this site for a friend of mine Lynda 79. I also use optrex eye drops for tired eyes. Since i have been using the wet ones i only clean my eyes 1/2 a day and very rarely have a flare up. So good luck and i hope you can get under control and feel better

    jeanetterolleyes

     

    • Posted

      Hi Jeanette, I hate the thought of having this for years, that makes me thoroughly depressed. Surely this is my bodies way of telling me that something is wrong? I need to get to the bottom of it. Getting married next year and need to be looking and feeling my best. What is your friend's website called please? Also, would you say your symtoms are controlled ie no symtoms? I'm nevous about giving wet ones a go, aren't they quite harsh?
    • Posted

      Hi

      I know what you mean about being worried about trying the wet ones.

      I read that someone was useing the optrex eye wash which has the same blep killing preservitives,you could did q tip in the solution and just use on lash lines.

      I dare not use any thing with preservitive at the moment.

      had laser irridottomy ,and lence replasement surgery this year,due to having high eye presure and narrow Angels.

      My Angels have now opened and my eye presure is down.

      Eyes feel a bit sticky when I blink  the left one hangs a bit at the inner corner 

      drives me mad so any help there would be great ?

      i use warm compress and clean lids with Blepasol or blepaclean,use preservitive free eye drops for my dry eyes.

  • Posted

    Dear Davina,

    I have Candida and was able to kill the Blepharitis. A friend killed it first. I found another product (as that was no longer for sale with killing agent in it) that killed it for me.

    If you have sensitive skin and are allergic to shampoos or detergents, handwipes, fabric softeners or even spermicidal jellies you should not use them.

    If not, I used Wet Ones, antibacterial hand wipes. They come in a red or now yellow package. They have .3% Benzethonium Choride in them. It took me 3 1/2 months to kill it. I used then only on the eyelashes. First week I did it 4 times  day and after a week and a half I went down to 3 times a day for about a month. After that, a piece of cake as only used them 2 times a day (morning and night).

    These wipes kill staphylococcus and when I looked up Blepharitis it was a cause of it.

    Granted, I looked up everything after I killed it. I had the terrible itching so was desperate.

    I used the antibiotics (3 times) for the eyes. The only problem is that to kill it you need to attack the problem where it really resides (on the lashes and rims of the eyes).

    I have had 5 doctors try to find it in my eyes. That includes the one who diagnosed the Bleparitis. They keep saying it will come back.  Been well over a year and not back. My friend too has not had a problem since she killed it.

    I still have dry eyes and Candida too.

    Hope this information helps you as one person told me it is a $20.00 cure.

    Lynda79

     

    • Posted

      Hi Lynda79, hearing good things about Wet Ones, just a bit worried it might make my eyes worse and really want to get things under conrol for Christmas. I had another appointment with my optician yesterday who is convinced I have an allergy. He says the tear film is not that bad but he can see that I am blinking a lot, which is a symptom of allergy. My lids are slightly inflamed but my eyes are quite bloodshot and tired looking. He has told me to take an antihistamine and I'm already on anti allergy eye drops. Also using tears naturale and Lacrulube at night. I'm wracking my head for what it could be. I'm athmatic so it could be dust? I also have a feather duvet, but I've had this a number of years, can you just develop allergies to things if you've not been allergic before? I might have candida too as have had fungal infections before. Also, I'm always very groggy in the morning, takes me ages to wake up properly, perhaps I'm anaemic? Ahhh! One last thing, when cleaning your eyelids, do you clean the pink bit 'inside' your eye? I've just been cleaning the eyelid margin and lashes. Your feedback would be appreciated xx
    • Posted

      Hi davina , i've been going through old paperwork and the 8 week course of antibiotics that I had was Lymecycline .

      i also found a copy of the letter that my optician sent to my GP which pointed out the following

      Signs/symptoms: Discomfort right eye, staining to fluorescein, symptoms of recurrent corneal erosion .

      This condition should be hepled by night time lacrilube and daytime geltears . However if you prefer please refer to a specialist for further advice .

      My Gp then found me a local consultant whom confimed the problem to be Bleph' . i felt the 8 week course helped alot and I wish i'd stuck to the cleaning procedure right through that time . It's definately alot better and mostly these days i'm only in some small of discomfort first thing in the morning .

      I wish I could have seen how he rolled my eyelashes( top row ) back with the aid of the match stick . If i had then my cleaning of the top lashes areas would have been very good .

      i can't find the name of the special bleph' " killer drops" but no doubt your consultant should be aware of the product .

      Best of luck and perservere with whatever you can .

    • Posted

      Dear Divina,

      You need to get rid of feather everything to see if you get better. They can cause allergy problems. Just store away for a while and if you kill the Bleph off then try them again.

      I rubbed my eyelashes and did not put the wipes into the eye. The bottom rim did get done as rubbing those lashes.

      A doctor online talked about using antibiotics on the lashes and called it "off label use". I asked the doctor about why put the antibiotics in the eye

      when the problem was on the lashes. He said some antibiotics get on the lashes.

      Make sure you wash each eye with a different wash cloth in the shower as you can reinfect yourself.

      Buy throw away mascara wands ( I used them at the same time I was killing the Bleph off) and never put a used anything into your makeup.

      Buy new. Brushes that touch the eye area too need to be new too.

      I bought applicators that look like cuetips (cotton buds) sharp on one end and flat on other end. Used them just like mascara wands, I never put a used one into the new eyeshadow. I used eyeshadow for eye liner. I just bought dark ones.

      Hope this helps you,

      Lynda79

    • Posted

      Hi Lynda, really helpful thanks. I've packed up my feather duvet and using a regular one. I did notice my eyes a little less bloodshot first thing this morning but they're looking slightly worse now (in work with bright lights and aircon). I'm using the Blephasol wipes twice a day and doing the heat pad at night. You talk about washing your eyes in the shower, should the water not be sterile for your eyes? Do you think I should continue with the Blephasol wipes or just plain water? Also, thanks for makeup advice, should I replace my eyebrow pencils as well? Sorry for all the q's xx
    • Posted

      Dear Davina,

      Eyebrows are pretty far away but you could wipe them with a handwipe with Benzethonium Chloride in them to clean them after use.

      Google the causes of Blepharitis. When I did, I found that staphylococcus was a cause.

      The Wet Ones, handwipes, kill that. It is called a Quat (google that too).

      All these other wipes are just for keeping the eyes clean.

      If a person does not have sensitive skin or allergic to shampoos and the other items I mentioned this can be killed off.

      I have had 5 doctors (changed offices) try to find it.

      The problem is not in the eyes but on the eyes. Like I mentioned there are doctors online that mentioned that too.

      As for the makeup, anything that touches the eye area can reinfect you. I threw out everything and started fresh.

      I used mascara and killed it at the same time by just being careful with the throw away wands (never double dip) and washing the eye area one at a time with seperate washcloths (doctor online even mentioned that too).

      I used the white wash cloths so that I could wash them in a bleach load.

      I also took my makeup off when I came home. My daughters tell me that coconut oil (organic) works great for that and uses it on their face too. She said it had antifungal properties too. Good to know.

      When a friend killed her Bleph I just jumped on what did it. I found the item in another product and just went for it (Wet Ones). As to why it killed it, I found that out later because some were allergic and so I did research as to why.

      Hope this helps you or if I can answer anything else let me know.

      Lynda79

       

    • Posted

      Can I ask Lynda. Are you completely free from bleph now? Do you still use the wipes and do you suffer from dry eyes and use drops ? Sorry for all the questions but I can't imagine life without it now!! 
    • Posted

      Thank you for your comprehensive response. I've just a few questions.

      Should I be bathing my eyes in addition to using wipes twice a day?

      Which Wet Ones are best? Blue or Green? And how often should I use?

      I have a real issue with dryness (no pain or stinging) but discomfort. Would you recommend anything?

      I know coconut oil a brilliant all rounder - do you think it would be beneficial to my eyes if it is an 'oil' though?

      Thanks again for all you help xx

    • Posted

      to me it's about getting the blocked or semi blocked glands clear of infected oil . The infected stuff clearly stops "good" stuff flowing as needed meaning the eyes dry out and sting . Red sore eyes follow and worse I'm to believe .

      " heating" the gland areas to make the gunge more viscous ,  or runny , and then squeezing it out followed by cleaning the gunge off with a solution of whatever type , followed by drops to try and keep the eyeball surface " wet" and repeating until the infection has gone seems to be the answer that is suggested .That and of course the lubricant at night that will hopefully see you through the night . the other ladies have been recommending what has worked for them . I was using the bleth' liquid on a cotton bud but this morning tried their own make of wipes . i think i caught each eye ball .

      Personally i think that the heating of the gungy areas for a decent amount of time and a better method of manipulation to the eyelids is the answer . Keep the bad stuff being replaced by newer stuff , cleaning off the bad stuff so that it can't reinfect the new stuff coming through . tomorrow i'm going to seriously put some time to the problem . will have to skip cleansing and only add the night time lube as lids too sore .

      good night

    • Posted

      Dear Janmin,

      It has been over a year and a half without the blepharitis. I still have dry eye. I use the eye drops for lubrication without preservatives.

      After I got rid of it I found the info that it was a staphylococcus infection.

      I rinsed my one eye and then used the same little cup and did the other eye so put the Bleph in the other eye.

      The wipes do not work for all (just under 20% of people have sensitive skin or are allergic) but for the majority they do kill staphylococcus on the eyes. I am proof of that. My friend used a facial scrub with Benzethonium Chloride in it and killed hers too.

      It did take over 3 months to kill it. I did not miss a day. I do not use the wipes any longer.

      If I touch my eyes with something I shouldn't I will wash with an antibacterial (regular soap) soap. So far, everything is good.

      Hope this info helps.

      Lynda79

    • Posted

      Dear  Davina,

      I only used the wipes when killing it and just water in the shower. Makeup removing is when you need to use 2 wash cloths or if washing eyes off.

      The wipes I used were US ones. They are in a red package and now yellow. Honjon, on this site, used the UK ones. Not sure of the color. Perhaps, someone can answer that for you. You can purchase them online too.

      The coconut oil I mentioned was for makeup (mascara) removal. My daughter said it was great. You use what is best for you. It may help the drying problem. If you try it and don't like it you can use for other areas, even cooking.

      The wipes have .3% Benzethonium Chloride in them. Check the back of the package and make sure this is in them. Some have used cheaper ones and they had less of this in it and bothered her eyes. I can only vouch for the ones I used but Honjon had similar results with the UK ones.

      Hope this helps a little.

      Lynda79

    • Posted

      Hi Lynda, how often do you need to use the Wet Ones when killing Bleph?
    • Posted

      Dear Davina,

      I used them (tore each one into 8 sections) 4 times a day for the first week and a half. My eyes felt better so went down to 3 times a day for about a month then down to 2 times a day for 2 months.

      Some people work and did it 2 times a day and killed it too. Two people have told me their eyelashes grew back in.

      They do not go in the eye only on the lash area and the rim when rubbing with them. You can rinse with water if you get into your eyes.

      I wrapped a small section on my fingertip. Too big of a section will get on skin and it is drying.

      When I quit using them, once or twice I had a little itch and jumped on it for just a day or two and then gone.

      I still use throw away mascara wands. I use one on both eyes now but I never double dip as afraid. Pretty sure I got it from using old mascara.

      Hope this helps and sure hope it will help you if not allergic.

      Lynda79

    • Posted

      Thank you, you are very kind. I will give them a go. I'll test them on a small area of my skin before using on my eyes. There is some chat on this forum about cleaning inside the upper lid ie pulling back lashes with a matchstick - you don't need to do this if using the Wet Ones do you? Thanks smile x
    • Posted

      Thanks Lynda

      I am seriously thinking of trying the wipes. I live in Ireland and have only seen a pink pack. I will check if they have the Benzethonium chloride.

      I was going great for a couple of months but having a bad flare up now. I'm using the maxitrol which always works but not having much success this time!

       I feel like the inside of my eyelids are cut and swollen. Feeling very sorry for myself! 

    • Posted

      Dear Davina,

      No, don't need to do that. I feel that the infection is in the lashes and goes down so have to work at it for some time to kill it.

      I have not heard of that method.

      Someone who has done that may be able to answer why.

      Hope this helps.

      Lynda79

    • Posted

      Dear Janmin,

      You can order them from an online drugstore (chemist). The red box ones are now in a yellow box in the US. Same ingredients.  Some of the off brands have less of the Benzethonium Chloride in them.

      My friend used a facial scrub that killed it but it must have had more Benzethonium Chloride in it (they can use up to .5% on face products, read that in a tox report) as she said she killed it in 3-4 days. It took me months.

      I can only vouch for what I used. There are a lot of variations out there. Hope you are not sensitive or allergic to items I mentioned.

      Wish you success.

      Lynda79

    • Posted

      Hi Lynda , surely the infection is what blocks the glands and stops the lubrication flowing ! it ends up in the lashes where it needs to be "cleansed away " !

      I'm the one who mentioned the match stick , as in my consultant / surgeon who examined me used a match stick to curl back my eye lashes and lids to be able to get access to my eyelids' gland openings for a greatly magnified view . If you borrow a good magnifying glass and get a volunteer to allow you access my optician says that you'll be able to see comparative usefullness of each opening .I've taken her word for it ...lol . there's anterior and posterior bleph' and it does surely end up in your lashes , from being moved on from glands . i hate to think that the info concerning " mites" is factual ! I think of it as bacteria ONLY !

      Have you tried the bleph' gel surposedly even used to clean the lashes prior to any eye form of surgery( that what it says on the enclosed leaflet )

      Hope your week has been non troublesome with the dreaded Bleph

    • Posted

      Thanks Lynda

      I am a little sensitive alright. I Have slight rosacea so my skin is dry. It can't hurt to try anyway so I will look them up. I'll also check the ones I saw to see if they have the correct ingredients! At this stage I have nothing to loose ! Thanks again Lynda you are great for all the advice !

      Janet 

    • Posted

      Hi Janmin , just noticed your correspondance with lynda  regarding cleansing of lashes . Have recently got some blephagel and wondered if you'd tried it ? I haven't yet . Accordingly to the info leaflet its "Sterile Gel for daily hygiene of eyelids and eyelashes Hypoallergenic, tested under ophthalmologists control , Preservative , paraben , alcohol and fragrance - free .

      Blah , blah . blah , then "eye and eyelid damage due to acne rosacea ( disease of the skin on the face which cause redness )  ".

      Do you think that there can be a link to the use of make up ? Can make -up go off , and or be a breeding / feeding place for bacteria ? It could certainly block ducts wouldn't you say ? Could possibly the action of removing the make-up mean that a small but significant amount of the make-up gets wiped into the gland openings ? Not a make up user !  lol

    • Posted

      Dear David,

      Honjon, on this site, had the oil problems and could not watch TV for even an hour he said. He is the one who used the UK wipes and those had Benzalkonium Cloride in them. They worked for him.

      After looking up online I realized they were both Quats. Quats kill stapylococcus.

      I do not have Blephaitis any longer. I do have dry eyes and a wrinkled retina. The wipes cannot do everything.

      Look at Honjon' info.

      Hope this helps.

      Lynda79

    • Posted

      Hi Lynda

       The wet ones worked for me and then stopped. I rercently started using again and they are helping but not with the sane intensity as before. In any event you have helped many people and I appreciate your input to this forum. Perhaps this time the magic will happen again. Thank you.

    • Posted

      Dear Henry,

      Think about using antibiotics and if you quit too soon how it comes rushing back. This is similar. It is a staphylococcus infection and the wipes have very little of the medicine in it to kill it so it has to a concentrated effort and daily use. If you quit too soon, it will come back.

      Even after the 31/2 months you have to watch for any signs and not ignore them. I used the wipes 2 days if I had an itch (or whatever issues you have) more. This only happened 2 times in the first week after.

      Hope this helps you.

      Lynda79

       

    • Posted

      Thanks Lynda , i'll certainly do that .

      Sometimes i can get by for months with only the dry eye aspect , only use a lube' at night and a thorough soap and hot flannel wash in the morning of the lashes and often not even have to apply drops . If anything , I think that mine comes back with a vengence when I think that i ought to be using a Bleph' product for more detailed cleansing , and/or drier air at home/ maybe dust particles .

      I wouldn't be without my heated bag . It's good to know that it's there and available , even on non problematic days .

      Thanks again for your direction ,

      David

    • Posted

      Hi David 

      I haven't tried the gel never heard of it. It sounds like something that might work. I think if you can stop itching you stop the cycle. 

      I am just coming out of a bad flare up. I started the maxitrol and it didn't seem like it was working at all this time but today I woke up and had great relief. I am going to continue with the maxitrol for 2 days and fingers crossed I'll get a good break again!  As for your question about make up I don't  think it causes it but it definitely worsens a flare up. You are probably right about it blocking the pores. Not being able to wear makeup is the hardest part for me!  

    • Posted

      Hi , yes Blephasol is the liquid cleanser and Blephagel is the gel version to apply with your own wipes i suppose . today i've only had to use drops twice . trying the poly vinyl ones ( snow tears ? ) at present . Was hoping that they might not evaporate quite as quickly as the others do . No difference . About to have 10 mins or more with the heat bag , a bit of chasing the goo out and then the lacrilube gel minutes before going to bed .
    • Posted

      Dear Lynda79,

      Thank you for sharing your experience with WetOnes. I used it last night and my eyes felt better this morning! I am continuing to use and am hopeful that it will continue to cause improvement. 

      i had had a question about how to use. Did you wipe it only on the eyelid by the lashes or also on the lashes when you wipe? What about the lower lashes, did you wipe there as well?

      Thank you so much!

    • Posted

      Dear Lynda79,

      Thank you for sharing your experience with WetOnes. I used it last night and my eyes felt better this morning! I am continuing to use and am hopeful that it will continue to cause improvement. 

      i had had a question about how to use. Did you wipe it only on the eyelid by the lashes or also on the lashes when you wipe? What about the lower lashes, did you wipe there as well?

      Thank you so much!

    • Posted

      Dear Lynda79,

      Thank you for sharing your experience with WetOnes. I used it last night and my eyes felt better this morning! I am continuing to use and am hopeful that it will continue to cause improvement. 

      i had had a question about how to use. Did you wipe it only on the eyelid by the lashes or also on the lashes when you wipe? What about the lower lashes, did you wipe there as well?

      Thank you so much!

    • Posted

      Me too Janmin, I hate not being able to wear makeup. My eyes are my best feature and feel ugly without my mascara and having to wear my glasses all the time. I know it's silly but not being able to look groomed is really affecting me. For me part of my self worth comes from how I look and I hate looking like this. It is making me feel more anxious which is probably compounding the problem. Also getting married next year and want to be feeling/looking my best. I've read about evening primrose oil capsules (meant to help tear production) and also manuka honey (use as an ointment on the eyelids). My eyelids were looking ok at the weekend (have started using honey) and this morning they look puffy again. Eyes look constantly tired. Was in floods of tears with frustration this morning and was so close to phoning into work. sad sad x
    • Posted

      Hi Davina , just noticed your message to janmin . You are certainly being put through the wringer with this Bleph . If you'd noticed my correspondance with Henry it would seem that the lipiflow treatment doesn't work that well for everyone . yesterday a fellow sufferer was asking if any others had tried the " in house" BlephEx treatment . There is a sufferer who posted about a year ago , evidently , who claims it worked for her . i'll be googling later for more info .

      Hang in there . the more the subject is talked about , the more likely it will be commercialy viable to find more solutions .

      David

    • Posted

      THanks for the support David smile Is this treatment available in the UK yet?
    • Posted

      Hi Davina it appears that there are some people offering the sevice here in the uk . Have watched their vid' and it looked pretty quick to have done . Didn't look to unbearable . Later when i've a bit more time i'll make a greater effort for more information .

      I obviously didn't get enough lube in last night , so a gritty start to the day for me .

      I know i said that i was going to try and let the immune sytsem sort it out and NOT use the wipes , but as it's the only part of the body that DOESN'T get a good clean daily I'm going back to wipes and gland opening cleaning .

    • Posted

      Also, there is so much gunk coming out of my eyes (sorry). Is this caused by my glands producing too much oil? Also, it this my bodies response to the bacteria? Like when your body produces excess mucus when you have a cold? Just trying to wrap my head around it.
    • Posted

      I'm not getting anywhere with the Bleph wipes, they're really expensive if using two a day too, I can't sustain this. I'm just going to try cotton wool and hot water I think. Have you tried the Wet Ones?
    • Posted

      That is the sympton , the gunk is being pushed out of the glands by the production of the good new oils . " Better out than In " as they say . Wow yours is text book as in all the vids . i've never got to the visible gunk stage . Crikey yours must be intolerable !

      Loads of Uk locations for the treatment .In the south I've Bournemouth or Esher in Surrey to name a few  to try . this coil;d well be the way forward . About a year ago Lupita messaged that it had worked for her .

      There is hope !

      David

    • Posted

      Hi Janmin,

      I too have mild Rosacea and in the past was given minocycline I took it for 2 mounths and eyes felt good for a long while ,only been bad since I had cateract surgery 3 mounths ago,I am thinking of taking it again.

    • Posted

      Yes makeup go's off! What do you think off the gel is it better than blep clean blepisol?
    • Posted

      Black ! In the videos I've only seen it as being yellow . Mine has never got as visually bad as any of the videos . That is truly awful .Has your GP not got you an outpatient appointment with a specialist ? I take it you've seen the vast number of videos on the subject posted on the web .

      Personaly I feel that you need a third parties  pair of hands to assist you in the cleansing operation . My near sight isn't too brilliant so as often as not I'm going by feel as much as I am by sight , especialy when i get to the second eye .Often I'm dabbing cleanser in the eye which of course doesn't help with the dryness issue .

      Without a doubt you are right up there as being an " ultimate sufferer " of the bleph' . You are especially unlucky.

      I'm surprised that the manuka honey on the lashes actually helps . Digested would bolster the immune system , hard to imagine anything gooey on the lashes would help . You'd think that it would "bind" things together in a mat in amongst the lashes . Maybe an intensive lashes cleaning followed by a seperate session of gland cleaning would be the way to go .

      Hoping that this would work for you . About to research more on the subject .

      David

    • Posted

      Yes it's gross, I kind of freaked out because it sometimes looks like very very tiny flies... though I think I might be imagining things. It's brown/black a present. Woke up and eyes puffy again today after them looking normal at the weekend. I've been referred to a specialist, waitng on appointment. Not looked up videos online yet. The manuka honey goes on the lids, it's antibacterial. Only started it so too soon to see if it will make a difference. I might try ingesting it though I expect that might be a bit difficult. Thanks, I appreciate all your help x
    • Posted

      I have yet to try it . I will give it a go tonight . My case isn't anywhere near as pronounced as others on here whom have the problem , so I can't actualy SEE any gunk to clean off . I am shocked by some of the images appearing in the videos , I had NO idea that it could get that bad . My thoughts go out to those suffering to that extent . Truly awful thing to happen .I watched the blephex vid this morning but couldn't work out what was gunk and what was the cleanser being used . Would you consider that as an option ?
    • Posted

      Hi Vanessa

      I had a 6 week course of minocycline and to be honest saw no difference . I find if I keep using hylo forte when my eyes are good ( but of course I forget ) it stays away. If I don't use it the itching starts and then the cycle begins in earnest very quickly. It's an awful curse if a thing but reading Davina and David's conversation I feel I have no right to complain ! Davina's situation sounds absolutely terrible! 

      I still think hylo forte all through the day and maxitrol for breakouts with regular cleaning and heat pack. It works! But keep it up when things are good Also!

    • Posted

      If I thought it would 'cure' me then yes though I expect it would be very expensive
    • Posted

      Make a nice hot honey and lemon drink , or even better a honey, lemon and grapefruit drink . As you would if you had a cold .

      Yes they are mites that live on our skin evidently .I take it that at the best of times our immune system keeps it away from ever infecting us but at times when our immune system has been depleted by a cold or other illness , the little nasties get a hold in our lashes and block the gland openings . If you are at all squeamish then the on the web content may be a bit upsetting but I'm certain that you can make your own case alot better and benefit from watching the close up camera work to understand what goes on . A series of pictures can say so much more than words can do sometimes .

      Try giving the lashes a lengthy exposure to the blephasol or blephagel , really give them a chance to "melt" the gunge , smother the mites and hopefully kill many off , then use your wipes moving away from the lids and then follow up with fresh blehasol liquid on the eyelids making sure you don't " double-dip " of course . You must be making plenty of natural oils , something that at my age slows down unfortunately . As I've mentioned before , If you had someone at hand that you could trust to assist in the cleansing procedure then i'm sure that you could vastly improve your chances of making things bearable and definately more pleasing on the eyes !

      Hang in there , I'm sure that other sufferers will be in contact once they've read just how badly you are suffering .

    • Posted

      Thank you smile a little disturbed now, I didn't think they'd be visible to the naked eye... do you think that is whats on the wipes after I do the warm compress? sad When you say about 'lengthy exposure' do you mean impregnate heated cotton pads with the Blephasol lotion??
    • Posted

      well I've been getting cotton bud tips saturated in the liquid cleanser and being carefull to NOT go right up to the lash " roots" and then using the bud tip to soak the lashes ( but don't get it in the eyes ) and then drag the bud through the lashes . Leave a short while then carefully use wipes being SO careful NOT to touch any gland openings with any part of a wipe used to cleanse the lashes . I personally wouldn't want to put pressure on the gland openings if I thought that I may be "smearing " any rubbish back into them .

      The gunk on the wipe would be infected gloopy oils that i would suppose the bacteria thrives in . I think attention to the detail of the cleansing has to be a must for certain in a case as severe as yours .

      I use the bud tip slightly moistened with the bleph' liquid to make one pass only over the glands holding the eyelid away from the eyeball as my final " move " . Put drops in straight away as the eyeball will be drying out during the cleansing .

      I get the impression that the eyelids coming together and then parting during a blink act a bit like them kissing and drawing fresh oil up to the gland openings to be then spread across the eyeball .

      I will try the gel cleaner later tonight so see how it is to use .

      Do look at the various vids' to get a better " view" ( sorry ) of the condition .

    • Posted

      Hi David, should I not be cleaning the gland openings?
    • Posted

      Definately clean the gland openings once you are sure that the lashes are completely clear . The last thing anyone would want to do is to clean the gland openings first  and then chance re-infecting them within seconds from debris in the lashes . In fact , thinking about it , the gland openings of both the upper and lower eyelids of any one particular eye would have to be the last part of the cleansing routine to avoid cross contamination between eyelids . time consuming but avoidably necessary  . maybe have some time out between doing each eye ?

      In short , unless you are sure that the lashes are free and clean , avoid moving onto the glands . That is the practical way that i see the problem . I'm sure that a thorough and systematic approach , albiet time consuming , for the next few days will make a big difference . In your particular case i would have imagined that it will actually be able to be seen by the reduction in residue in the lashes . Have you a date for the forthcoming visit to a specialist yet ?

      I'm hoping that someone else who has suffered the same severity of Bleph infection will get in contact via the site soon .

    • Posted

      Thank you, i might try steaming my eyes tonight as my eye bag is knackered. Will try a thorough clean and report back in a few days. I think my condition could be related to my scalp as well as I suffer from an itchy scalp too :-(
    • Posted

      Yes just conentrate on the best possible cleansing technique and don't go anywhere near the glands until you are sure that the lashes are spotlessly clean .

      Fingers crossed for you .

    • Posted

      Hi Janmin

      sorry to hear Minocycline did not help you,how many mg did you use?

      i do not have the dreaded itch my problem is that my eyelids seem to hang on to each other(sticking a bit) they are not stuck together in the mornings 

      left eye worse,also my eye lids are a bit swollen and upper eye lid is also shiny and sticky( I can some times see tiny white spots on the under inner rims) have lost some eye lashes on from the lower lash line.

      i use preservitive free eye drops ...Blepasol or blepaclen warm compress.

    • Posted

      Davina if there is too much oil I was wondering if oral antibiotics may help?
    • Posted

      Hi Davina , was wondering how this week has been for you so far ? Thought I'd try the wheaty bag as my origional mask has come to the end of it's peak performance now .
    • Posted

      hi Jamin 

      is his hard for us girls I just use mascara on my upper eye lashes useing through way mascara brushes one for each eye ,now I am not wearing eye shadow my eye lids are quite shiny and oily,I have found that making the most of my eyebrows and wearing a brighter lipstick helps.

    • Posted

      Hi Vanessa

      Lucky you! I gave up on mascara, I never had great eyelashes and now if I wear it I scratch and lose more so I don't bother unless it's a very special occasion. Eye liner is my thing, I hate to go without  it. I'm bald looking.   

      I don't have sticky eyes but my eyes run and that that make the raw. I'm good this week. Last week was horrible. What annoys me is you can never rely on your eyes if there is an occasion ! 

      Having read Davinas posts I feel bad for complaining. She seems to be having a terrible time of it.

      Janet 

    • Posted

      Hi Janet

      i know there will be others who may have worse things going on with there eyes,however the eyes we have are the ones we live with each day and it is hard never dyeing able to forget them.

      Take Care Vanessa.

    • Posted

      Whoops..... ment being able to forget them.
    • Posted

      Dear Cheryl,

      I rubbed both lash areas. Mine itched like crazy so I rubbed as went along the lashes. After the first week and a half it was better so cut it down to 3 times a day.

      I wore mascara and killed it at the same time. Use throw away wands and one for each eye and never double dip (in new mascara).

      I took it off when I came home. I still use those wands but one for both eyes now and still keep the mascara clean. I buy a new one every month now too.

      Be sure and do both lash areas.

      One girl, Jill, said her lashes grew back in and the doctor said she had it for 20 years so would not. She was a happy camper. She worked and did it 2 times a day. I don't know how long she had to do it but she said she gets compliments on her lashes now.

      Hope this encourages you.

      Lynda79

    • Posted

      Hi Lynda. I have sourced the wet ones in red and yellow packs. They have .3% BENZALKONIUM. There are also ones for sensitive skin. Any thoughts on those ? My neice is on oz and she got them for me. She will be home next week so I'll start using them as soon as I get them. I'm thinking I might start with the ones available her while I'm waiting. They have .097%. Maybe worth my while. Wish me luck! 
    • Posted

      Dear Janmin,

      The other wipes could have a lot more things that could irritate your eyes. That is not enough of the Quat to kill it. It took me months with the .3%.

      I worry you could have problems before you start with the right ones. Someone from Florida tried the store brand and ended up using the ones with .3% after all too.

      Wish you success,

      Lynda79

    • Posted

      Dear David,

      It is Quaternary ammonium compounds. There are several of them.

      You can look for the tox report on these too.

      Hope this helps you.

      Lynda79

    • Posted

      Thanks Lynda , I've been free for a week now but will keep up with research and any tips available to enable me to be ready for next time !

      I'm just using Viscotears Gel at night .

    • Posted

      Hi Vanessa, took a course of antibiotics, they made no difference at all. sad

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