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DSNS

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jeannae68307
jeannae68307

Where do I find the details?  I thought it was up on this site months ago but I can’t find it.  Also, my endo says there is always the adaptation to the lower dose and it takes up to a month to see if your body is going to adjust.  How do I know whether it is the adaptation or the disease being unmasked?  Thanks.

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3 Replies

  • Anhaga
    Anhaga jeannae68307

    Posted

    Your endocrinologist must be an angel, accepting that it can take up to a month to get accustomed to a new dose.  I believe the difference between steroid withdrawal and re-emergence of PMR pain is that steroid withdrawal happens very quickly, whereas PMR will build up slowly over a few days or even a couple of weeks.  I had a flare last year and I can tell you it was very obvious to me what was happening, although fortunately I didn't need to go up very high to mute it again.  I'm still at a slightly higher dose than I was last year at this time, but feeling well.  I do have some aches and creaks from osteoarthritis, but they are not particularly worrisome; they had vanished at the higher doses of pred!   The beauty of DSNS method is it gives you time to get through any steroid withdrawal, and I always have a little even with a tiny reduction of only .5 mg.  But a successful taper always ends with me feeling as well as, or better than I did at the beginning of the taper.  

  • 1951grumpa
    1951grumpa jeannae68307

    Posted

    I’ve had many a relapse / flare . At around 1.5-2 weeks my symptoms would return. One time early on I had just had a routine blood test and a few hours after I had the test my rheumatologist called and asked me how I was doing. I said terrible. She told me my esr and crp  we’re both 40 and I should increase my prednisone. So after that I recognized when the PMR  swelling was returning and increasing my dose of prednisone was called for. 
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