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Hello, I am due to have a urethroplasty to fix a failed urethrotomy which I had in may 2014.
The urethrotomy was a 12 o clock incision, no indwelling catheter left behind to hold it open, no self dilation to prevent recurrence, the urologist felt catheters did more harm than good.
I kept a record of my flow rates and made a chart to give to the person at the follow up 12 weeks after, which I had on 31st July, the flow then was an average of 19ml a second, 4 days later it fell straight to 14, then over a week down to 10, then over a couple more weeks down to 7, then a week ago was at 3-4ml a second, then on Thursday afternoon the tipping point came, complete blockage, only 1 droplet every 10 seconds, I rang A local doctors, asked if it was possible to have a catheter fitted there, a doctor rang me back and said I could go visit but they couldn't insert a catheter, and it would of had to of been one which was a couple miles away instead of the one 600m from me as that one had just closed, I said I couldn't make it, she said have a drink and see if a full bladder could provide enough pressure to create a flow, and if I still couldn't go after an hour then to either ring 111, I waited an hour and still couldn't so I rang 111, after 15 minutes of faffing around and no progress in getting help I got to the point I realised it was becoming an emergency, I hung up and rang 999, it took 20 mins for a car to come and access me, i was hiding the pain which was at that point about a 4/10, we went to A n E with no sirens or lights, just followed normal traffic, was taken into a room in A n E and took about 30 mins before a doctor tried to insert a foley but failed as it was a 3.5mm soft rubber one, he went to find a more rigid one, at this point 797ml was scanned in my bladder by a nurse, but after 30 or so mins I was transferred to a ward, where I was questioned and accessed numerous times, they did another scan which was 650, I said "it was 797 an hour ago" they then went away, and at this point pain was 6-7/10 but I was still able to hide it.....just.
After another hour the pain was 9/10 and bladder was bulging out my abdoman and I couldn't hide it anymore, I didn't shout or rage but I was getting contractions every 30ish seconds which were one of, if not the most painful thing iv felt, I can empathise for women in pre child birth. I was in A n E at 6pm, it was 9pm by the time another doctor inserted a catheter, he struggled so much to get it in but it eventually broke through the stricture ( the peak of pain, I hulked out and shredded my shirt in agony ( sounds ridiculous I know, I didn't mean to do it) which was kind of funny, then it started draining, the relief felt so good, 1.3 litres I had in my bladder, the doctor was quite surprised. i think the reason it took so long is because I mostly hid my pain and they must've thought I was OK at the time which didn't call for an emergency, it was though, all acute retention is an emergency, if my bladder burst I'd of been as good as dead as I have a bleeding disorder and would of bled out internally in a matter of minutes, and even then , and the urine would of caused bodywide sepsis. Iv realise now I should of just put my manners and niceness aside and of been a shouting moaning patient, id of come across as a prick but I would of been taken more seriously and seen to faster.
I was kept in overnight, and in the morning a urologist and his team came to see me, he said they should of done a suprapubic catheter for multiple reasons, so they didn't damage the stricture and cause more damage and scarring, and also they'd of been able to do the 3 imaging tests that day ( cystoscopy, retrograde urethrogram, voiding cystourethrogram) I was discharged with this indwelling catheter on Friday afternoon, i'm currently awaiting a district nurse to come check on me at home today to make sure I'm using the catheter ok. I was only given 3 leg bags and 10 single use night bags so I was thinking maybe the op would be within 10 days of Thursday, I highly doubt they'd be able to get me in that early for a procedure which can take 3-8 hours , they mistakingly forgot the bedside hook attachments and / or stand, so iv had to use a makeshift DIY attachment.
Currently also awaiting referral letter to either leeds or Sheffield for the operation, but the 3 imaging tests are no doubt about it absolutely necessary before the opso if they try get me straight in for the op I will have to put my foot down, as much as I want this dam tube out, safety first., so I tend to think they will remove this urethral catheter and put a suprapubic one in, then do the imaging tests, Not sure yet until I getthe letters in the post.
Sorry for the wall of text, but if anyone who has had a urethroplasty could give me some information it wood be much appreciated. A few questions include:
1) how long did the procedure take
2) how long was the recovery, and how long were you bedbound
3) what aftercare did you get
4) how long did you have to keep a catheter in after the op.
And any other useful information thanks.
Thanks for reading
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