Due to have UAE
Posted , 11 users are following.
I'm a 51 year old with two large fibroids 9 and 10cm diameter . The latter causes me bladder blockage and have suffered with UTis for over two years until diagnosis of fibroids after ultrasound and MRI. I was offered hysterachtomy but decided to go for a second opinion and have now been offered UAE. I'm due to have treatment tmrw and thought I would document my experience here for others that might be in a similar position. I've never really had the heavy flows that others experiene until recently bleeding for 3/4 weeks but I'm pretty sure this is due to peri menopause symptoms. I do have to self cathetize now as the fibroid has grown rapidly and completely block my uretha. I'm hoping that the fibroids will shrink enough to cease my symtoms and then as I'm about to hit menaupuse might shrink naturally after. I do have an extended uterous of a 22 week pregnancy so hoping that will eventually go down to. The other fibroid is penduculated and is not being treated so will see how I go. I've found reading some of these posts has given me courage to make this decision withou evasive surgery thank you. Will post update on recovery soon
3 likes, 43 replies
farida2 annie65607
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annie65607 farida2
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farida2 annie65607
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farida2 annie65607
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joanna82751 annie65607
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tracy12090 annie65607
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annie65607 tracy12090
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toni44td annie65607
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I'm 52 and had my hysterectomy on 25 May. I had been suffering with heavy bleeding, clots etc for 2.5 years. I was due to have hysterectomy last June but my periods stopped last April and gp wanted me to have another scan to see what was going on. Well, my 7cm fibroid had shrunk to 4cm and was degenerating so op was cancelled. Then in October I started bleeding again, very heavily and couldn't leave the house. Dr put me on Norethisterone to stop the bleeding which it did, but not completely. In February this year I went into urine retention and spent 5 days in hospital. Another scan revealed fibroid was sitting on the bladder! Had to self cath, but couldn't get on with it so had catheter. Op booked for 25 May, all went well apart from surgeon cutting bladder, so am on a catheter again!!
I asked to see the fibroid that was causing all my problems and was shocked to see it was more cantaloupe melon than an orange as was originally told!!!
I wish you all the best with your procedure xx
farida2 toni44td
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annie65607 toni44td
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Thanks for your sharing your experience it's so comforting to hear other women's stories. Self cathetization was not easy at first but I persisted and eventually found a way to mange it. It does effect your life though as not something that can be done easily when having to use public places. Sorry to hear you are still having bladder issues I use a brand by Braun called mini screen they are discreet and easy to use. Hope recovery improves and thanks again for sharing x
annie65607 toni44td
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Wondering if my fibroid is also starting to degenerate ? Did you have any feelings when it was shrinking? I've not had any symptom improval
In last two months but not sure how degeneration should feel? It might even be growing still! 😞
toni44td farida2
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Thank you, yes it is a big op but I think the worst for me was the waiting, the worry beforehand etc. I feel better already knowing that monster is not inside me anymore!! Now I just have to recover properly!
Best wishes,
Toni xx
farida2 toni44td
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christine65130 annie65607
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annie65607 christine65130
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very positive to hear. I will defo keep you all posted as everyone's experience is so different. I wasn't offers Esmya as don't think I meet conditions of heavy blood loss. But I'd be interested to try if it also shrinks fibroids. Thanks again x
christine65130 annie65607
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annie65607 christine65130
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christine65130 annie65607
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