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Due to start humira?

Posted , 4 users are following.

jenny39132
jenny39132

Hello people hope everyone is keeping well, ive got uc, and have had a bad year with it so far cant seem to keep myself in remmission so now they wana start me on humira! Theres alot of mixed reviews about it and one min im ok with it then one min i dnt wana start it?? Any advice on the drug? Good and bad welcome aswell as i know not everyone is the same with uc, i had a reaction to azathyprine so couldnt take that, and im hating the steriods as im getting bad side affects from them, just dont wana take somethink and end up with somethink else ontop of uc if that makes sense! Sorry for the long msg and thank you 😁

0 likes, 9 replies

9 Replies

  • james_sull
    james_sull jenny39132

    Posted

    I was in the same boat but my IBD nurse gave me the information on all the anti tnf/immunotherapy drugs out there and let me chose.

    Although it was the least fast working of all the drugs I went for Vedolizumab (30 minute infusion every 8 weeks) and after 6-8 weeks I've been in remission ever since (19 months ago) - it's a gut targeting drug - ask them about it. (I chose it because it had the least side affects)

    If it wasnt for the medication Id forget I had UC.

    • jenny39132
      jenny39132 james_sull

      Posted

      Hello james thats the one i wanted but they said i wont get funding for it unless tried one of the others first
  • rachelle52846
    rachelle52846 jenny39132

    Posted

    Hi Jenny39132

    I was put on it for a few months unfortunately it didn't end up controlling my flare which resulted to having surgery in the end .. however I would say I coped ok with the injections ok and didn't feel much side affects on the plus side my friend takes it and lives a very happy life so everyone is different.. good luck I hope it works for you x

    • jenny39132
      jenny39132 rachelle52846

      Posted

      Thank u rachelle im coming off the steriods and seem to be doing ok, just wish they would let me try the bio logic i wanted to try rather than them telling me what one i have to have
    • rachelle52846
      rachelle52846 jenny39132

      Posted

      Anytime well that's good you are coming off them I hated them but that's because they didn't work and still had the awful side affects humira is very good but doesn't always work for everyone let's hope it does for you xx

    • jenny39132
      jenny39132 rachelle52846

      Posted

      Yh i hope it does just scared if i get any 'long term' side affects which im not sure if u can or if it was just bad luck for someone, i did google it and think its scared me readin bout peoples experience with it, but when ive asked on forums it dont seem that bad

    • rachelle52846
      rachelle52846 jenny39132

      Posted

      Yes I've done that before best to ask on forums or your ibd docs google isn't always your friend take care..

  • abcfox
    abcfox jenny39132

    Posted

    I've been on Humira for 3 years and before that 3 years on remicade infusions.  Expense is my issue, these drugs are ridiculously priced.  The remicade just stopped working, the Humira keeps the flares down, but I still flare up sometimes up to 3 times a year.  My only choice to go med free would be a coloctemy and boy I sure don't want that.  My recommendation try the cheapest meds first and see how they work, usually you know within a week if they work!  Good Luck

    • jenny39132
      jenny39132 abcfox

      Posted

      How was the humira for you? Im down to 3 steriods now and have been avoiding answering the calls from the delivery people and hunira nurse to get them delivered and to start me on the humira
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