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Dumb yet again !

Posted , 11 users are following.

judytal
judytal

mornin all,  thought I could do alittle work on my deck...dumb, dumb.. I think I have finally learned my lesson... I spent 3 days feeling absolutely terrible... Weakness, sick all over... Tried to sleep it off but just had to wait for my body to try and recover!!  Not a fun time..  

My head is so full of articles re. PMR yet what seems to be a difficult "problem" to have friends understand.  Since before I was the one to say "Let's go for a walk or let's go work out ..." Now I can barely walk my dogs !  clean house, cook, forget it!!  

Sorry for being down but I know you all understand.  Thanks and all the best to all.

5 likes, 26 replies

26 Replies

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  • EileenH
    EileenH judytal

    Posted

    Leave the cleaning - dudt is very patient! Though I do realise that with dogs it is a slightly different need! Find a cleaning lady...
    • EileenH
      EileenH

      Posted

      That should - of course - be DUST! I can blame sitting in the sun though cool
    • judytal
      judytal EileenH

      Posted

      Hey Eileen,  Thanks for being there.  Forget the dust... my dogs (2) chihuahuas shed like crazy !!  Could put togther another dog or 2 !!  But I really don't care.  I do what I can. 

        Unfortunately can't afford a cleaning person.  But that's ok too.  Alittle here alittle there. 

      Trying to get my head around not being the active person I used to be.... I can tolerate the pain but I need to be active... that's who I am or was! 

      Hope you are doing well, take care.

    • EileenH
      EileenH judytal

      Posted

      Many of us were. Sporty, the go-to person in the family circle, never said no.

      It's a steep learning curve!

    • constance.de
      constance.de judytal

      Posted

      Third paragraph:  "that's who we all are, or were", so we do understand.  Hang in there😀
    • judytal
      judytal constance.de

      Posted

      Hi Constance,   Hard to say "used" to be...  But hopefully this too will pass... someday. 

      Hope you are doing well. 

      Thanks

    • margaret22251
      margaret22251 judytal

      Posted

      Hi Judy, i can quite agree with you, i was always on the go before this , and i just cannot get it into MY  head that we cannot do as we did before PMR, take care and sending a hug.biggrin
  • david14272
    david14272 judytal

    Posted

    judy, the sun is out hence been doing abit off pottering in my small garden,  it is one of my joys in life, the trouble is once i start i find it hard to stop, but have learnt to force myself to take break,hence sitting & having a cuppa & sandwich.like the girls have said most of us were busy active folk till we started on this journey and it is very hard to ajust.as for dust etc erm; they have given rain for tomorow so who knows? just a thought how is your reduction plan going?Best wishes&take care.Dave
    • judytal
      judytal david14272

      Posted

      Hey David,

         The deck is mid clean up and will stay that way until I can't stand it any more.  I tried to clean it up with frequent rests etc but it still did me in.  I felt fine while I was doing my thing.. and it felt good to do it.  BUT the next day I was "dead in the water"  to say the least !!    I like to sit out there and read or listen to books on tape ( need to get new glasses, not up to getting out there for that)  . 

      Once I tried to start a garden but I'm not good at that.... everything died! 

      Thanks for your thoughts, Dave.  Take care of yourself as well.  All the best.

  • Guest
    Guest judytal

    Posted

    Oh Judy, you sound just like me! Months ago I would decide I had to clean and would be totally exhausted for a few days. My husband does not take over my chores BUT he helps by making me rest and says he just does not care about clean anything compared to my health. Now I think for days about trying to do a task and oh gee it may have to wait a year! Just remember we are all dirty together! Ann11295
    • judytal
      judytal Guest

      Posted

      Hi Ann,

        thanks for your thoughts.  I'm not married but it's me who looks around and says Wow I should clean this place up !! But I do do a bit... forgetting how it will have reprecussions on me the next day. 

        Thank God it's a beautiful day so far today.  Just got out of the shower.. shower does me in as well !!  Hard to keep myself clean as well !!  I do my stretches in the shower and marching to work on a bit of strengthening. 

       Thanks again, keep well. 

    • margaret22251
      margaret22251 Guest

      Posted

      oh wish my man did not mind about dirt, bless him, but i must admit he does more cleaning now than me.(he has cod) ops brain not working today still fuzzy, but better that i was, take care
  • Danrower
    Danrower judytal

    Posted

    Judy, I am 1 year into my second bout of PMR, down to 5 mg and up to working 5 hours a day. Some of this work is Must Do, so yesterday, @ 4:30 ( I take my pred @ around 6 am) I'm walking in 90 degree F (32.2 C) lifting and sweating. And speaking a cadence of "pain, pain". So I reach my limit, go in and drink a quart of Ice water and rest. And forgive myself.

    I went through PMR the first time 10 years ago, undiagnosed and untreated. And it took a 1.5 years to get back to almost complete remission. It is specifically the prior experience and hope of remission that keeps me going. With no guarantees, the trend is consistant with some future remission! Hope!

    Julian's advice in this thread: spot on!

    I've 2 dogs also. 5 if you count the dust dogs. A Big component for me is guilt, and I have lost many friends during this last year. I have been told many times to get over it. "You're hands are not knarled over with rheumatiod!" Well I guess I can't lose what I never really had.

    The people Here have been the single greatest personal support that I have had. Not coddling, but personal care, copious time given in sharing their wealth of information to help those of us who struggle. Articulate, intelligent and compassionate. Eileen and Julian, as example of many here,and they are as theraputic to me as the treasured 5 mg of Pred.

    Stay here and talk, first just float. Then you will tread, then swim once more! You will.

     

    • judytal
      judytal Danrower

      Posted

      Wow I can't imagine going thru all this a second time after a remission.  Your journey sounds challenging to say the least. 

      I take 4mg in the morning around 6am and then 2mg around 5pm.  My days are so very inconsistent.  Hard to plaln what I can or should do each day.  I get a false sense of well being when I'm sitting for awhile BUT then when I get up to say walk the dogs; I get exhausted very quickly.  some days they get short walks, other days a bit longer... Coming back into the house I am most times out of breath and the legs are weak. 

      Well Dan, be good to yourself.  Thanks again for your thoughts.

    • constance.de
      constance.de Danrower

      Posted

      Some 'friends' - "get over it"!!   That's the trouble with PMR, you can't SEE it, so many people think you are exaggerating when you tell them of the pain and fatigue you are going through.  (It' all in the mind!  I don't think!  😡😡).

      We all know of the 'guilt' one feels when things don't get done, but, as my husband says "guilty of WHAT".  And really, of what?

      I really must add here that none of our friends have abandoned us, thank goodness.  We are sooooo lucky.

    • EileenH
      EileenH constance.de

      Posted

      You find out who your real friends are on this journey. And make a load of new ones...
    • pat73046
      pat73046 Danrower

      Posted

      Hi Dan, I really feel for you going through a second bout with this PMR. I think I also had mine for possibly for a year to 1.5 years I had seen Ortho docs about shoulder bursitis and was given a medal injection; then I had tendonitis of the thumb_same side left and was given injection if medrol. .at my son's wedding needed a cane due to pain in left hip that summer had pain in both hips like ground glass. Then the worst pain was what they called tendonitis left forearm Given a dose pack by urgent care doc couldn' t get in to see GP. Finally asked them to do ESR--64 and crp also high. It took more than half a yr to get these down to normal and plaquinyl was added. This time I thought symtoms were familiar despite 2 total hips and 1 total knee I was walking like an 89 year old with bad arthritis in hips and had not waked like that 2 months before.

      I COMPLETELY AGREE WITH YOU ABOUT THIS FORUM. NO ONE CAN UNDERSTAND WHAT WE ARE FEELING. THIS FORUM WAS LINE FINDING A COMMITTEE WHO ALL UNDERSTAND AND TELL THOSE THAT DO NOT TO TAKE A FLYING LEAP. I FELT I WASN' LOOSING MY MIND OR BECOMING SENILE YOU ALL UNDERSTAND THE DEBILITATING result CHRONIC PAIN AND FATIGUE CAN CAUSE. YOU ALL GIVE ME HOPE.READING EAch POST IS LIke taking 5 MG of Valium to me.I also knit and get the same effect --serotonin release. I appreciate the time then to research and write us I read every post hoping to learn something more. Thankyou Dan. Only one med person has told me to take it easy but I am because of the forum. Thankyou again Pat

    • Danrower
      Danrower pat73046

      Posted

      Of course,You are Welcome, Pat.

      Here in US, we, here, apparently do not have the support groups and forums like this. I think that is a result of the American Medical Association and associated groups efforts to keep their waiting rooms filled with patients with the unfulfilled promise that they, and only they can fix us. And liability may also be an issue.

      I will start a thread about communication and voice next, and an experience I just had. It will corroborate your serotonin theory.

      Good luck.

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