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Hi. I am new to this discussion group...and happy to have found all of you.
Just a short history. I fell seven years ago breaking my right elbow. I was lucky and was dxed within a month of my symptoms of shiny palm, burning pain, could not close hand. It spread to my other arm after a bad blood draw. I was put into immediate PT 5 days a week along with exercises I had to do 8 times a day. It took almost a year, but most of my symptoms were better. Still, if my hands get cold I am in trouble.
My question is does anyone have CRPS in their head? I do not mean imagining this, but severe beyond severe pain on the side of their head.
I cannot lay on my left side because the region by my temple hurts. If I do not lay on that side I just have pain that I can manage. My doctor thought maybe I had vaculitis as I have RA, but the test for that was within normal limts. I really do not think he believes me. The pain is bad enough for my eyes to tear. Any thoughts would be appreciated.
I really think it is CRPS either in the soft tissues or tendons by my ear or side of head.
Thanks for listening.
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