Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I went up to a London hospital last week and was told I had dysautomnia. 

I am 68 I was double jointed, then had PCOS

I felt reasonably well until the birth of my last son. I had  Hyperemisis Gravidarum (severe morning sickness for 39 weeks!)

After that I started to feel faint and now I have Sjogren's and POTS

however the neurologist I saw at the autonomic unit says dysautomnia 

1 like, 24 replies


24 Replies

  • Posted

    I was born hyper mobile, my Rheumy found I have scoliosis. I don't know what is happening at the moment as I am having a dysautomnia crisis. I had the sicca symptoms of Sjogren's as a teen, then started to feel faint post the birth of my last son 29 years ago. I have a positive ANA but no Sjogren's markers. My BP has been low all my life but at the moment it's 181/101 P 86!
  • Posted

    I understand if you have Sjogren's SLE or Hughes you have POTS
  • Posted

    I was Biegton 9 then traumatic birth Sjogren's with the sicca symptoms at 20  now POTS and Dysautomnia with no leg reflexes
  • Posted

    Hi Pam,

    Im in my forties and was cycling 100 miles per week until 2012. I started feinting for no reason and have generally declined since. I now drag myself through the week with only just enough life in me to do the basics. After 3 years of being told there is nothing wrong Dysautomnia has just been diagnosed.They havnt started looking for a cause yet. Its possibly cost me several jobs and my 25 year marriage is still suffering. May be its made me a better person? I take as long as I need to register each clear moment when I can. Not much - but enough.


Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up