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Dysautomnia

Posted , 5 users are following.

pam_87693
pam_87693

I went up to a London hospital last week and was told I had dysautomnia. 

I am 68 I was double jointed, then had PCOS

I felt reasonably well until the birth of my last son. I had  Hyperemisis Gravidarum (severe morning sickness for 39 weeks!)

After that I started to feel faint and now I have Sjogren's and POTS

however the neurologist I saw at the autonomic unit says dysautomnia 

1 like, 24 replies

24 Replies

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  • pam_87693
    pam_87693

    Posted

    I was born hyper mobile, my Rheumy found I have scoliosis. I don't know what is happening at the moment as I am having a dysautomnia crisis. I had the sicca symptoms of Sjogren's as a teen, then started to feel faint post the birth of my last son 29 years ago. I have a positive ANA but no Sjogren's markers. My BP has been low all my life but at the moment it's 181/101 P 86!
  • pam_87693
    pam_87693

    Posted

    I understand if you have Sjogren's SLE or Hughes you have POTS
  • pam_87693
    pam_87693

    Posted

    I was Biegton 9 then traumatic birth Sjogren's with the sicca symptoms at 20  now POTS and Dysautomnia with no leg reflexes
  • equillydire
    equillydire pam_87693

    Posted

    Hi Pam,

    Im in my forties and was cycling 100 miles per week until 2012. I started feinting for no reason and have generally declined since. I now drag myself through the week with only just enough life in me to do the basics. After 3 years of being told there is nothing wrong Dysautomnia has just been diagnosed.They havnt started looking for a cause yet. Its possibly cost me several jobs and my 25 year marriage is still suffering. May be its made me a better person? I take as long as I need to register each clear moment when I can. Not much - but enough.

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