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Hi all. I'm new to the community but I have lurked on many forums in the past. I'm looking for advice, support... Pretty much anything. So here goes. Bear with me, as I'm rather wordy.
A few months ago, I noticed I was having difficulty swallowing. It had been going on for some time, but I thought it had to do with chewing, smaller bites, etc. When I realized it was true dysphagia, I made an appointment to see a neurologist--I had had an endoscopy (after the dysphagia began) that revealed a pristine esophagus and nothing but a little gastritis. It was the act of swallowing that was difficult, as if my throat and tongue have gotten weak. Even small bites won't go down in their entirety. Since this began, I've slowly been eating less and less, to the point where some days I don't eat at all. I'm now at a very dangerously low weight and will be having an NG tube placed in the next few weeks.
The other two big symptoms: fatigue and weakness, unrelated to food consumption/weight. I have never felt such fatigue and muscle weakness in my life. Sitting at work is an enormous challenge. Things that used to be no problem are extremely daunting... You know the drill.
So, the neurologist. He ran through the typical neuro exam. I thought my balance was fine, but I fell over during the "tightrope" test. The exam revealed significant weakness on my left side, weakness that I didn't begin to notice in everyday life until the following week or so.
The MRI was normal.
The EMG was normal.
Bloodwork (including ANA panel, blood count, thyroid function, etc) was completely, perfectly normal.
Of course I took to the web with my symptoms, and myasthenia gravis seems like a spot-on fit. I feel much better after rest, and much worse towards the end of the day. I don't have ptosis, but everything else fits so well. But...
AChR test was completely normal.
A few days ago, I had a spinal MRI but haven't received the results yet.
I have no clue where to go from here. I have no idea what else this might be. I know for sure that the symptoms are not psychosomatic, and I know that the symptoms are not caused by my low weight. I don't have very much, if any, pain, other than migraines that are somewhat controlled by medication.
I know that a lot of people suggest staying away from Google and symptom checkers, but for me, I lose hope if I don't have an inkling of an idea. I'm becoming less and less functional and more and more desperate.
Has anyone else experienced anything like this? Does anyone have any ideas?
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