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Hi I am having a dilemma with 13 year old daughter. On 3/5/2016 last year my daughter got a sudden onset of abdominal pain. Was a stabbing pain in lower right abdomen in line where terminal illieum is. Was susspected appendicitis but after ultrasound decided it wasn't.
The pain has continued every day for last year apart from 3 weeks after she completed a six week course of modulen IBD.
In June she received a endoscopy and colonoscopy and biopsys which showed nothing. She has had 3 raised calprotectin one was 121, 330, 721. So not overly high but was enough to allow them to test. Then in November the fine an MRI scan which showed inflammation mild which could have suggested early crohns. She started modulen in January it took into week 3 to notice a change in pain she completed the other 3 weeks where it continued to reduce. Then two weeks after completion she was totally pain free. Then 3 weeks later it all flared up again, reflux, stabbing pain in chest which was heartburn but was suggested by own gp it was costochronditis. We repeated two more stool samples for calprotectin which came back 35 and 13. So now they suggesting ibs. She responds to no pain relief they only thing that reduced pain was modulen. Can you get false negative calprotectin. She mostly suffers constipation with intermittent loose stool no blood. But not severe constipation as has a bowel movement everyday. They refusing to do further tests. Now she getting referred to pain clinic and therapist to manage pain. I would expect IBS to have some kind of relief and not a daily pain. At my wits end. Any advice welcome.
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