Early Onset, won't do surgery

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I'm 35 and had a cataract since I was a little kid due to trauma. It's starting to become worse (effecting my vision and becoming visible in my pupil) and the Drs won't consider surgery until I'm at least 55. That's 20 years!! In the meantime I am worried about my job and being the "freak lady with a white eye" and I'm not sure how to cope. It's gotten rapidly worse the last 6 months and I'm having problems with my peripheral in half of my sight. How do you cope with something like this?

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6 Replies

  • Posted

    Strongly suggest you keep looking for a new doc until you find one who understands your situation and is willing to do smething about it..
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  • Posted

    There are at least some people on this forum who have had a cataract surgery at a  young age like you are considering. So, I am curious about the reason which the doctors are giving you for wanting you to wait until you are 55 years old before they will perform the cataract surgery. 
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  • Posted

    I would most certainly look for other doctors to have

    1) Their opinions on the reason your doctor gives you to deny you with the operation.

    2) Their own opionions on performing the cataract surger on you, or an alternate solution.

    You must feel frustrated, I have one eye which is operated and the other not, the difference is significant, and I really wish you could see without the obstruction of the cataract as I do with my operated eye,

    If the reason for not operating on you is your age, then someone has to explain why Sightsavers, the world organization, regularly ask for funds to enable them to operate on children who are affected by cataract at their young age. 

    The articificial lens used nowadays are said to be made in material that is cataract free for life, find a good doctor (you will, eventually) who is understanding and willing to explain all there is to know about cataract surgery in your case.

    As you may have read in this forum, cataract surgery is not complication free, but as far as I am, and most of us here are concerned, the result obtained for a good surgery done is worth it. 

    Set your mind on wanting to see better and go for it. Good luck,

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  • Posted

    I totally agree with finding a new Dr. My husband has cataracts and the ONLY reason they will not operate now is that his are not bad enough according to medicare rules. They told us you have to be seeing 3 lines worse (worse than what I'm not exactly sure). I am 4 years younger than he and my cataracts qualify for removal and my surgery is next week. Best wishes on finding a good Dr or at least getting answers.

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  • Posted

    Hi Amelia, I am really shocked and concerned as to why your doctors will not consider surgery until you are 55? You did not specify if it is your doctor or the actual consultant surgeon who said this to you; but just to say that I have had fast growing cataracts that have subsequently been operated on and I was under 55. Yours sound more advanced than mine were, so you should not have to wait until you are 55, hence you should not have to cope with this until then either!  I know

    in the past, (1980's), that cataracts had to be as advanced as possible before surgeons would operate, this was due to surgery techniques and length of life span of implanted lens at that time. As another respondent has replied, things have moved on now! Hope this helps, good luck!

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  • Posted

    Sorry for the slow reply. I saw my regular eye doctor and an opthamologist and they both gave me the same answer, they don't do them at a young age and compromising the strengthnof my cornea due to past trauma . It's frustrating because the outer part of my right eye is where most of the problem is.

    I am very frustrated- maybe I'll just keep harassing them.

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