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Is there such a thing as early stage LS?
ive had a pain/discomfort (not really an itch as I never wanted to scratch) in the vulva area (particularly right labia) since my hysterectomy 3 years ago. In December/January this year I had a biopsy and three white areas showed up, one area was diagnosed as "in keeping with LS" the other two were either acanthosis/parakeratosis with chronic inflammation.
In January I started with dermovate issued by GP. I finally visited the vulva dermatologist end of April and the consultant said the left labia had shrunk (but still a little left). Due to having HPV she wanted to change my dermovate to betnovate. I started using betnovate. The pain/discomfort never went away. I finally got back in to see the consultant last Week as I felt the betnovate was not doing anything as the pain/discomfort was still there,
the consultant decided she thought I did not have LS and that I had vulvodynia. Changed my medication to lidocaine. The lidocaine on the right labia has really helped. The consultant asked me to stop using the betnovate.
But, I still have a red sore patch and a mild pain/discomfort which comes and goes in other areas. I still have some white patches.
The consultant showed me a presentation she did and some pictures of LS - she said she couldn't see any of these signs on me and that she didn't think the biopsy (which was done in another country) was right, even though I can see some white with the magnifying mirror and it's clear to me too that the left labia has shrunk into itself.
im wondering if I have early stage LS. Should I use betnovate a couple of times a week for maintenance and keep an eye on it?
im due back at the clinic in January, any thoughts would be appreciated.
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