EBV? Don’t know please help

Hi vancityraincity,

from my my personal experience your symptoms sound typical for someone with glandular fever/mono.

my blood test also showed a past or recent infection to this horrid virus, 

I got my diagnosis dec2016, so it's been a year for me now. I'm 41. And I have never experienced an illness like it.

ive experienced two stiff necks, extreme fatigue, hot and cold, aches, burning thighs, tingling in arms and legs, nausea, breathlessness, very low mood, crying.

last January I was completely wiped out and could hardly move, it's been a really hard year, I would say a roller coaster, or zig zag recovery! It feels like 2 steps forward then 3 back, but slowly, very slowly you do get better!!

i eat as healthy as I can, avoid alcohol, sugar. I take vitamins, ginseng, probiotics.

and get plenty of rest, and when you find you have a bit of energy back, take it easy and still rest.

a year on I am doing a great deal better, I can now do food shopping, walk the dog, but I'm not quite normal yet. But it will,happen. It's happening right now, every day is a step closer.

there are so wonderful people on this forum who I'm sure will share their stories and advice, it helped me so much to know that this is normal for the virus and not to panic that it takes so long.

take care

Caroline.x

Hi Van City,

So sorry to hear you have been struggling and feeling so bad lately. I agree with Caroline that those symptoms can be common with glandular fever / mono / EBV. You're doing the right thing seeing your doctor about it all and make sure they keep monitoring you and doing blood tests etc when feeling this way.

It really is a horrible virus, it was over 10 years ago since I had it but I felt unwell and with low grade fever and fatigued to a level like I never had before. Gland pain in my neck and upper abdomen and groin were all factors for me too. It was awful and just didn't know what was happening or when it would get better. Just want to reassure that things do get better with it and that you will get better. Hoping your doctor can give you a clearer picture of if it is likely to have been EBV causing this, I think if you're not tested within the first few weeks of feeling unwell then it can possibly not show.

As Caroline says, just make sure you get plenty of rest and look after yourself through this time. Taking vitamins and herbs really helped me, a good strong multi-vitamin per day, along with B complex (great for energy levels and nervous system) and extra Vitamin C and D, and immune boosting herbs like siberian ginseng and echinicea can all help boost your system to cope with things better.

Really hoping 2018 can be a much better year - remember things will get better, don't panic if it takes a bit of time in terms of months rather than weeks from the time of initial infection, because it did for me and others I know, but that doesn't mean to say you won't get better because you definitely will - hang in there and hoping everything settles down soon - if it's EBV then this is definitely the worst phase you are going through and the intensity will lessen and it will become more bearable and full recovery will come.

Thinking of you and the forum here has lots of good folks like Caroline and others for offering good advice and emotional support too which is so often overlooked when dealing with such a virus,

Craig

I tested positive for EBV. You listed my symptoms. I also had a few others like headaches, sensitivity to noise, crying, and extreme weight loss. I'm 17 months in and am much better. I still have waves or short cycles is some symptoms. Not as often or as severe as in the past months.

I know one person who had same symptoms and they had checked her for every thing and told her she was fine. Once I told her our symptoms were the same she ask for EBV panel blood work. It came back positive. They told her the active virus was over but she has post viral fatigue. Strange they say post viral fatigue since all symptoms began with the virus and has just became less frequent and severe with time.

Good news is it does get better!

This forum has helped keep me encouraged. You will find goodwill, encouragement, and compassion from all of us. We seem to all be in different stages of recovery but all are recovering slowly but surely by God's grace.

Prayers,

Rhonda

Hey guys, 

Thanks for the responses. I actually have been reading almost every thread on this subject and the understanding and support here really have calmed me down multiple times, reassured me that I’m not going mental that this is something that has been experienced by others. Thank you for taking some time out of your day to show compassion and share your experience, it means the world to me and others I am sure. 

Oh also have night sweats with no fever which also come and go. 

Today looks like a better day. Yesterday I seriously felt like I was dying. Went to the ER at 2 am for weakness and back pain and shortness of breath and nausea... when I got home I was so weak and terrified I wanted to go back but forced myself to stay home. So scary. 

Took vitamin C, D3, D12, and multivitamin. Woke up today feeling fatigued but bearable so I can actually walk to the kitchen and make myself something to eat. This virus plays with your head! When it’s bad you feel like you’re dying and when it’s better you feel crazy like was I just exaggerating yesterday? Hate it. 

Hey guys. 

Really struggling right now. I’ve been crying all day, scared that I’m dying or that I’m never going to get better, feeling so weak like I’m abojt to collapse. I don’t even know if this is EBV. The panel said EBV IGG+ which means past infection but every other EBV test was negative. I am so scared and so weak.