EBV Nightmare/still dealing with symptoms @6months!
Posted , 9 users are following.
Hello to everyone,
I got hit by this mack truck of a Virus AUGUST 14,18.
I was doing yoga one night- next day, whack! I'm hit hard, fever, burning, throbbing body- I thought I was dying or poisoned . From that point on the most scary horrifying syptoms came about. Never had low back pain, severe low back pain started three days later, leg pain, arm pain. Diahrea , headaches, all my muscles were like feeling encased in concrete could barely move-tight stomach muscle nausea-the full blown works of this virus are relentless. I barely could function running from DR to DR wondering what was happening. No diagnosis until 4 months in! EBV numbers high- I had a hunch it was something like that. Started on antivirals- seemed to help a little. Still dealing with muscle pain, back pain, muscle fatigue, weakness. My immunologist says I don't have antibodies to the streppocaucal bacteria, which cause sinus infections-could be adding to my length of time for healing. I let her give me a Strepoccaul vaccine. BIG MISTAKE! Caused a relapse, made me sicker made old symptoms surface that were long gone-started getting fever, night sweats, debilatating fatique.
I regret gettin this shot so much, what it made me realise is that I was improving, just hard to notice. I have taken steps back and am hoping to get back on track. What has been my main symptom is leg pain/low back pain,pain in arms-this seems to stick. Hard to function really have to pace myself daily. I'm depressed at times, cry daily at times-its been so hard this thing! I started a strict diet when it hit me- I juice,fresh produce- drink water, really trying to move forward but feel stuck!!! This forum has given me hope and relief- unlike all of these Doctors! I've been to every specialist known to man-before I got diagnosed-this has been so scary, traumatic and brutal-
I feel as if I'm in the middle of the ocean treading-going no where!?
When will I recover?
sorry for long story....
THANKS !
StarrA
0 likes, 67 replies
josh46287 starrA
Posted
I would like to say i am not sure how long i have had it but i know i was told i had it maybe a month ago and been actually sick sick for almost three months. I am actually feeling mostly better not as severe as it was but still symptoms lingering. Headache nausea are the worst with some stomach pain i went to and had a scope today and they said my whole stomach and half of my throat were "inflamed" checking for helibactor pylori. Maybe that will fix my nausea which is my biggest problem by far. I am gaining weight back about 7-8 pounds only another 10 to go. I feel like my body is winning the fight but trying not to over do it at the same time. i start back to work in two weeks so i hope that goes well trying to limit myself but i am an ironworker which is a very tiring and strenuous job so i have a feeling it will be tough but i think i can do it. I am surely better but not well yet maybe my
doctors can reduce and remove symptoms and let me get back to 100%.
craig07920 josh46287
Posted
Hey Josh,
That is a really encouraging sign that you are managing to put weight back on, a good indicator that hopefully your body is recovering and finding its way and balance again. It's a frightening thing when you lose weight due to health for sure, and hoping very much you are feeling a bit more settled about things.
You definitely will win this battle Josh, but remember just be wise too and if you are going back to work try not to overdo it and do things at the pace that's right for you just now, or even with a phased return, and of course if you felt you still needed more time then do take it and put your health first - I know it's easier said than done when work pressure are on you to return, but I know I needed longer than 3 months off work with this thing so just remember to put your health first and continue to get as much rest as you need and your body will recover, it just takes time Josh so don't try to push things too soon.
Craig
josh46287 craig07920
Posted
Well i do not have the money to sit at home anymore. I would love to wait longer but i can not. they are doing a stress test on March 1st and will probably release me to go back to work and once he does i will lose my short term disability pay therefore i have to go back to work. As of today i felt fine this morning move a stand off of my truck took out the trash and sat in the sun for about an hour and now as always i felt worse. I do bot understand it but i must find a way to fight through it at work. I have two more weeks to heal which does not seem like that much with mono but maybe i can get a boost somewhere in there .
lori93950 josh46287
Posted
well i do hope you feel better by then im at month 11 and theres no way i could work . praying for you that things level out. it must be a lot of stress knowing you have to go back to work with such an awful awful virus that completely debilitates you .
craig07920 josh46287
Posted
Agreeing with Lori for sure Josh in hoping that you feel much better soon. I do understand the pressures regarding getting back to work, it's not at all easy, at the time I had mono was fortunate to have a good employer who stood by me even though I was off a considerable time and I know not everyone is so fortunate, I am grateful for the support I had at that time.
If at all possible Josh try not to put yourself under that pressure of timescales or feeling you must be fit and well for work by such and such a date. I know it's much easier said than done, I know everyone is different but I found just trying not to look too far ahead or expect too much of myself or set timescales for when I must feel better was the best way - I always find that's when it stresses me out more when I'm putting that expectation or a sense of things having to happen by a certain time.
And of course if you do go back to work, take things at your own pace and work at the level that's right for you just now - and if it means that certain things take longer or don't get done at all then so be it, I know that is also easier said than done but thing I'm really just trying to stress is put your health first and take things slowly, don't push too much too soon.
Hoping for a better weekend ahead and hang in there Josh - things WILL get better with time.
Craig