EBV - OVER IT

Posted , 4 users are following.

Hello everyone! I'm apparently at 8 months of this hell on earth virus. I'm so drained and discouraged. Yesterday i had maybe one-two hours of almost feeling human again. I felt like maybe I beat this thing finally and thought it was going to be up from there. WRONG.... symptoms came back later that evening and with vengeance too. I feel like I'm losing my mind. I never had suicidal thoughts or anything but i'm pretty close to just wanting to end this suffering (if this virus doesnt end me first). Please give me some reassurance or something to help because im at my wits end and just want peace! I'm usually a strong person but this thing is beating me down!!

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  • Posted

    i can't give reassurance, but I can tell you that you aren't alone.

    I have been sick since October of 2021. It started with a severe sore throat, cough, shortness of breath, stiff neck, headache, persistent low grade fever. I went to an ENT who could not tell me what was wrong. I convinced myself I had cancer. I seen her 3 separate times because my symptoms were not getting better. The 3rd time she referred me to a different specialist. My appointment with them is on the 25th, but I seen my primary last week when I was researching and came across EBV. I requested to be tested. My mono test was negative, but my EBV was positive. I still have a sore throat most days and a low grade fever almost every day. I still have a cough. My new symptoms are all over body aches, fatigue. Mine has been going on for almost 5 months now. I do sincerely hope you get better soon. Hopefully we both do.

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    • Posted

      So sorry you too have to deal with this erika! This virus is beyond evil. I've seen so many specialists and doctors with no avail... but many on here have reassured me that's a good thing and that it's this virus and this virus only. It can make you feel like you're dying sometimes... I also convinced myself it was cancer but nothing ever points towards that. I hope you get better as well. Feel free to message or vent ... I sympathize.

      Jay

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  • Edited

    Hi, so sorry to hear you are struggling with this virus as well , i know how terrible it is . I'm at the 14th month now , and I've had a few relapses or whatever it was , when I finally could feel NORMAL but then all this got back to me . Last time it happened around the 10th month and took a few months to resolve . And even though I still experience some occasional bad days with fatigue and anxiety , i feel way more myself and "normal" than i used to, i don't feel this profound doom stuff anymore . I can work, go out and socialize with no serious problems . I know 14 months sounds not fun , but i had tons of good moments and just "life" through this period , so please try to stay strong ! Wish you feel better soon

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    • Posted

      Thanks anna! So it took you a full 14 months until you felt well again? I have been feeling worse at 9 months and it feels like im never going to get better. I've had moments where it feels like im normal but it doesnt last long. I think im making progress only to go back to being sick. I have heavy fatigue and still have this fear that my body is shutting down or failing me. Glad to hear you're doing better.

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  • Edited

    Hi Jay,

    Be encouraged by feeling better at times, this is how recovery starts. It may be over a year before you see noticeable results. I am waiting to turn the corner also but know that it will happen at some point.

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  • Posted

    Hi Jay,

    It is hard to believe a virus can last this long, I feel like when we are feeling our worst it is our immune system fighting off the virus, on good days I feel the like the immune system has had a small victory and then on bad days its mopping up the remaining virus.

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