Posted , 5 users are following.
Hi, Having just been diagnosed with type 1 Hereditary Haemochromatosis, I'm wondering if it could be the reason I have the problem with my heart, I've got a heart monitor fitted and it's checked every 6 months, but no-one seems to know what's wrong. Has anyone else experienced anything like this? I would like to know if it's connected.
Thanks.
1 like, 26 replies
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eric89660 Primrosegirl
Posted
You're better seeing a haematologist. I have to suffer a gastro and they may know about livers but they know little about haemochromatosis. I thought it was criminal when he told me,a light drinker,to abstain from alcohol for 3 months when my ferritin was at dangerous levels (1500) but he told someone whose ferritin was 5500 the same.How he didn't get cirrhosis due to his negligence I don't know.
Primrosegirl eric89660
Posted
I hope you've now seen a haematologist Eric and are now having regular venesections.
Very best wishes.
eric89660 Primrosegirl
Posted
I haven't but after nearly a year of venesections I will soon be in maintenance.It was just the unnecessary wait at the beginning that worried me at the time.
Primrosegirl eric89660
Posted
Good to hear!
I have only just started, had my first one a week ago. My ferritin was 720, so I'm hoping it will take less than a year to reach maintenance, but I know everyone is different.
eric89660 Primrosegirl
Posted
Primrosegirl eric89660
Posted