ectopics
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Hi everyone, i am knew to this site, found it by accident! I have been having ectopic heart beats for 11 years, i'm 37 now, and they first began after a great shock with one of my children. I had them now and then and didn't take much notice of them when i asked my hubby about them and he said that he had them too. Anyway, two years ago i had a routine operation which has left me with anxiety, PTSD and depression and they have got worse since then. I have found that certain things trigger more, caffeine, i drink tea, alcohol, don't drink that anymore but would love to be able to again!! I do smoke 15-20 a day, but don't do anything else that is bad. I have had hundreds of ECG's, which show nothing, and have had a 48 hour holter monitor, which i vertually begged for, which just showed sinus arrhythmia and sinus tacchycardia, normal rhythms!! The most ectopics i have had in one day is 25, up until today that is. When i opened my eyes this morning i was having long pauses and then normal rhythms again, continually. The kids are off school at the moment so i got up on my own today and took myself to work and i skipped breakfast. I had a shake and then took off for work, still having the problems. I had a cup of tea at work and tried my best to just carry on regardless, but i was having so many i could not even count them, must have been more than 20 in a minute, constantly. I know that they were happening, it was registering on the BP monitor, visually and audibly. And i felt my wrist pulse and they were there, hundreds of them. I don't know how i managed to carry on at work, they continued through everything i did, walking, talking, sitting, standing, but i just carried on and on. I tried to catch them on ECG's but they were there when i put all the stickies and wires on and as soon i pressed record, they stopped. I think they may have been because i had gas in my system, although i didn't feel as though there was gas there, no pain as such. But i had a banana for dinner and drinks of water and two cups of tea, they were still going! I did three ECG's to try and catch them, but no, of course i couldn't. I have never had more than 25 in a day and this has really frightened me, there were so many and constant, never been like that before. To be honest there weren't many normal sinus beats in there at all, all irregular! Anyway, i carried on all day and got to my mums and had a little to eat, my mum felt my pulse and she felt all of them too and was scared for me. I did start to burp a little after eating something but they still carried on. I came home and had something to eat and burped somemore and they eased off a little bit. I have had some tonight but nowhere need as many as earlier. I have had three bigger ones while i had been writing this to you all!! My BP is fine and i just really want these to go away, or at least to go back to how they used to be. I haven't felt anxious - to bring this on as far as i know, but they have been so bad and severe today that by this afternoon i was getting really worried and thought i would just die or end up having a pacemaker! Please can someone relate to this and am i ok?x
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Matt in Warrington
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Since i have bought my self this heart monitor from medick it records all different kinds of heart problems and during one of my tests it recorded over 60 ectopic beats in 6 to 8 hours i got worried about them and when i sent the test to be looked at it came back all ok no problems what so ever. I also done a test over a 4 hour period whilst in the gym and t only recorded 4 ectopic beats which must have been before or after the gym as you can look back over the test and find out when and where the ectopic beats happened.It also has a log button so if you press it when you feel the ectopics going mad in your chest the cardioligists will look at that part of the test in more detail.
All what i can suggest is try breaking down what you eat drink or do and when, say you eat something keep an eye on your heart rate about 15 mins to 30 mins later, does it increase or do you have more ectopic beats. this procedure works but it takes ages to really start pinpointing what food or drink is doing what to your heart.It took me about 8 months to find that it was chocolate that was causing these mind bending ectopic heart beats. also if i go out with the lads on a good drinking session, see the next day its not the hangover its my ectopic beats that are really thumping i feel as if iam dying but i have just got to get up and go and do something to take my mind of them. I have talked to my wife about what iam feeling i know she says she understand but until she has suffered them she carnt properly understand how scary these are and how anxious they make you feel its as if its only happening to me no one else gets them but they are really common .When i bought the machine and i done that first test and it came back all ok it was such a relief and in my eyes it paid for itself there and then in one test and if iam having any bad days i just wire myself up for eight hours and go about my daily tasks and then upload them and wait for the results to come back usally between 24 to 48 hours its like having my own cardioligists at my beck and call but still somtimes even with this monitor i can still feel anxious if they are really bad. hope this helps
matt
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I have tried to find the web site you mentioned about the heart monitors but i cannot find one at all, just says no such website. Could you let me know the web address of it again and tell me how much the heart monitor cost you, thanks again.x
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STAY AWAY FROM THEM BETA BLOCKERS it was on the news about 18mths ago that they can cause heart problems something to do with propanol i think they were called.The doctor offered them to me and i asked her about what i heard on the news and she just looked at me. Hence i didnt take them, doctors are taught how to treat a certain condition with a certain drug anything out of that, they are totally knackered thats why they put you on to specialists.
That website is www.medick.com it was a god send. For the monitor and 6 reports with all the sicky pads and wires. Its is really discrete aswell its like having a mobile phone in your pocket and the three wires go up through your clothes, costs around £350 but it was worth every penny to me. let me know if you have any problems
Matt :wink:
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I have found that web site, thankyou, and would love to get one to put my mind at rest. I have had a 48 hour tape but nothing was caught on it, exept for sinus arrhythmia and sinus tacchycardia, both of which they have said is normal. I think that after all this time i have been suffering with these things, i would feel a hell of a lot better if i could just catch, just one, on paper, so then i can be looked at properly and then diagnosed from actually seeing them. But i have tried and tried to catch them and have never managed it. So i would love that machine to be able to do this once and for all, but i just cannot afford it. I am also sure that my hubby would go mad if i were to suggest that i had one of them, he says he knows that i am fine and nothing is going to happen to me and i should try harder to ignore them!! He also gets them everyday and he can feel them, but they do not bother him at all, if he gets them, he gets them, he just carries on. They, unfortunatly, bother me a lot and it doesn't help that i feel everyone! Thanks again for your help. Angiebaby.x
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Of what i have been told after constantly nagging the doctor and hours on the internet looking at heitus hernias is that the hernia gives out simlar symptoms to what the ectopics give out. Dont get it wrong having a heitus hernia does not cause ectopic heart beats. apperntly the hearts beat is controlled by the brain and having digestive problems is a completly different problem. When you have the ectopics do you feel abit jittery amd abit anxious
I ve also be told that everyone has ectopics from time to time but as like your husband it doesnt bother him unlike you and me we have become supersensitive to them so we notice every single beat and more so when your chest goes bump you think christ is this it am i going to meet my maker today but its just that we notice them more which drives me mad every day when i might just be sat there watching TV and bang my heart goes nuts but when iam out doing something i dont notice them because my mind is on something else. Unlike today ive been having a bad day couldnt count how many ectopics ive had to day or is my hernia going into spasam because ive eaten something thats kicked it off. Thats why they are so simlar and the symptoms of what the hernia giving out and what the ectopics feel like, i carnt decide which one is which until i put the machine on and tape them. I think your husband should be a bit more understanding and let you buy one if it will put your mind at rest whats £350 on your health if i was you i would just get it and put your mind at rest. I went for a full medical exam yesterday for my job and ive told the doctor about the ectopics yet he didnt pick them and my blood pressure was 120 over 80 which he said is very good i havent a clue about what is good and what is bad blood pressure dont know how that works. I can totally sympathase with you about how they drive you mad and how much they can stop you doing things etc... i must admit its nice to know that iam not alone having them and how they make you feel
Matt
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When i first noticed these ectopics they used to make me feel as if they were taking my breath away and i used to jump up suddenly or do something, its as if the heart has stopped and they used to scare the hell out of me.
When your in bed as well you tend to notice them more and ive had them when iam just nodding off to sleep then my heart misses a beat and its woke me up and i have had one panic attack once in the early days of having these dam ectopics. What makes it more frustrating is that when you try talking to someone about them nobody really understands how you feel and how low they make you feel about yourself.
I only found out that i had a heitus hernia because i had convinced my self that there was something nasty going on in my chest and i wouldnt leave the doctors room until i got the camera down the throat and thats how ifound out about that, it sort of made me feel better for abit but like you i think i had got my self in such a state that i was convinced that i was going to die soon. I totally understand how you are feeling and frustrated you are.
Because i have been through all what your going through all i can say is keep your chin up there is one thing is that do you know anyone with the heart monitor because anyone can use it you would just have to pay for the report which is £25 i would lend me mine if you lived near me (Warrington Cheshire) and i would upload the report for you because all i would have to do is change the name on report and then email you the report.I wish i could i help you more.
Iam an ear if you need it
Matt
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Matt.
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Send me a message then i can add you to my contacts.
Anyway, i am too scared to drink, i get more ectopics and my heart rate goes up, this really, really scares me.
My ectopics have calmed down loads since i've been on the omeprazole, but still have this 'fluttery' feeling now and then. ? why. Probably just PAC's or something. I'm suffering now with the unreality and feeling like you are a totally different person than you used to be at the moment, don't feel like i know who i am anymore. Sounds daft i know.x
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daz123
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come have a chat daz
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scott.c Guest
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I'm a 29 year old male and began having ectopic heartbeats about 5 days ago, because they started so abruptly and got around 7000!! My wife convinced me to go A and E out of hours on Sunday.
They put me through rather rapidly to have an ECG, at the time weirdly they said my results were fine, I took my ecg scan to my doctor the next day and he stated that the ecg showed ectopic heartbeats, I have been having them the past 5 days now and I have been assured by my doctor not to worry however I am still having around 7000 a day.
I have no pain, breathlisness, light headidness at all and no symptoms to speak of, I am awaiting a blood test this Tuesday and a follow up appointment when the results come back.
Yesterday in work as you can imagine they really got to me so I phoned my doctor again stating the frequency of these beats!
He prescribed me propranolol over the phone and I collected it last night, I had a good nights sleep last night and they seem to dissapear through the night and when I wake up for 20 minutes or so (I get the occasional flutter but that's like a holiday in comparison!)
I still feel worried about waiting all that time for results etc however my wife works alongside a highly experienced cardiologist and he looked at the ECG and stated the same as my doctor, everything my doctor has said I have run past him and he has approved everything so far.
He did state he would have organised a 24 hour ecg if it was him as my sister has LONG QT syndrome he would like to have seen them over 24-48 hours etc.
Anyway, I am in the midst of all this so will keep you updated.
Just nice to chat to people who have had the same issues.
mark1504 scott.c
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k3rivers Guest
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