Posted , 4 users are following.
I have af and although I have had ectopics recently they have be one more noticeable. I have just had my meds changed from. bisoprolol to propanalol. The ectopics still there so I am not sure whether the pills are working. How do other people manage these I feel so anxious which clearly isnt working. It would be good to hear other people's experiences. Regards
0 likes, 8 replies
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jenny61596 Crystal1953
Posted
i am on a very low dose of bisoprolol and mine stopped , why did they change your meds? thought beta blockers were all much the same . Have you tried magnesium ? it seems to vary so much and i only had ventricular ectopics so maybe thats why they responded so quickly to the meds , and the cause for each person too is different. I am sure mine started with stress , and even the small dose i am on has stopped my anxiety . listen to some York Cardiology videos hes very good at explaining things , if you havent before google him . Try and keep calm , not easy i know and be guided by your cardioligist
Crystal1953 jenny61596
Posted
Thank you Jenny so much. I am not sure about my ectopics I was on 5mg bisoprolol but when I saw the cardioligist he changed them as it's been 3 years or so since I was on them and the ectopics were getting worse so uncomfortable. I am also on flecainide x2 and amlodapine. I know this is a progressive condition. my cardiologist said there is no cure and they have to be managed. Regards
jx41870 Crystal1953
Posted
Beta blockers are not a cure for ectopics, though they often help.
Problem is there's nothing that really is a cure, and a lot of the other stuff that's supposed to be more specific doesn't work much better and often has worse side effects.
So, you try different stuff and hope you find one that works best for you.
Crystal1953 jx41870
Posted
Thank you very much. I will have to see my cardiologist and not sure the meds are working as they should. kind regards
jennifer44574 Crystal1953
Posted
I was on bisoroporol for a few months when they suspected i had WPW (turns out i had RVOTVT). The bisoprolol made my PVCs/ectopics so much worse, more frequent and more intense. Once I was rediagnosed with RVOT-VT my cardiologist said he wasn't going to keep me on beta blockers as they can sometimes make my condition worse. He didn't say why though.
I've since had my VT fixed with an ablation, but my ectopics are still around 1.5k a day so I've just got to live with them. I'm learning to ignore them and if they get really bad when I'm stressed or anxious I do something calming, even if it's just leaving my desk to get a glass of water and a few calming breaths.
Crystal1953 jennifer44574
Posted
good strategy I find sitting I feel them more. Kind regards
jx41870 Crystal1953
Posted
Mine often seem positional, sometimes triggered by lying down, and then standing, or even sitting, turns them off again. Other times the other way around! Sometimes a little accupressure to the eye orbits, bridge of the nose, web of the hand, helps. Other times not so much. Sometimes walking helps, other times it makes it worse. Fun, huh?
Crystal1953 jx41870
Posted
very stressful but good to know others who suffer really understand difficult for our friends and family to understand.