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EDS Type 3 any conection with years of chronic diarrhea?

Posted , 4 users are following.

tymrose30
tymrose30

Hi im looking for some hell or advice.

I have type 3 eds and have had some problems with my digestive system and wheat and dairy effect my most.

this though is about my almost 10 year old daughter, she is the most lime me out of my 3 girl. She has had chfonic diarrhoea all her life and never gose to thoilet normally and can have diarrhoea up to 8 time a day.

she has been tested for eveything under the sun even constipation though this was really because tbey ran out of ideas, she has also had jwheat and dairy removed from her diet with no real change, and we really dont nk waht to do though from my other post I have been given the advice of using tea to bind her stools.

I am just wondering is her problems are a syptom of eds and by this point are we just going for trying go manage the problem rather then looking for a cure. Has anyone else had this constant problem and hat have you done to help, becasue at this point we have given up going back to the docters as they seem to have given up on her now that they are out of tests to give her.

0 likes, 4 replies

4 Replies

  • cec57
    cec57 tymrose30

    Posted

    Hi I have EDS 3 myself and have had IBS all my life.  

    I have left the site addresses of two oranisations who have a massive amount information.

    http://hypermobility.org/

    https://www.ehlers-danlos.org/

    I Hope they are able to point you in the right direction smile

    • tymrose30
      tymrose30 cec57

      Posted

      Hi thank you for help I will take a look and see if anything on them helps any sgep forward is a good thing thanks tym
  • Bouncyville
    Bouncyville tymrose30

    Posted

    Same here. Had IBS for the last 30 years. Can be controled with diet and medication. I always have buscopan in the house, avoid spicy and fatty foods and chew my food well.
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